Multiple Autoimmune Diseases & Post Covid
Has anyone else been having pain levels of 8-12 not normal. Things in pain, cognitive, insomnia, nerve issues, etc since having Covid?
Interested in more discussions like this? Go to the Autoimmune Diseases group.
Have no taste or smell from Covid in October now another major issue rectal prolapse
Waiting for surgery in mean time I m in a lot of pain.
Ellen307
Oh @ellen307 How terribly uncomfortable for you, though it’s painful. When are you scheduled for surgery? I added a link that has some good articles to read:
https://connect.mayoclinic.org/comment/53761/
You put your discussion under the Autoimmune Diseases group. May i ask what AD you have and if the prolapse is, in anyway, connected? How are you managing now before the surgery?
I will contact my Cardiologist’s office and find out for you. I will get an answer for you on Monday 💫✨
I am fully understanding your concerns. I have nerve pain anyway. My pain in general since COVID has become intolerable at times. My cognitive function is off. I get dizzy, I am dropping things. I feel very scattered and emotional. I have fallen twice. I am going to be sixty-five and COVID long term symptoms, are still there. I finally just got my taste back after 3 months.
I have symptoms of Fibromyalgia but no doctor has diagnosis me with it. I seen Rheumatologist, Muscular Skeletal Neurologist, Physiatrist, and my Internal Medicine doctor. I've had all kinds of blood test, EMG, and 2 Skin Biopsy to see if I have Small Fiber Neuropathy. Can you tell me what does your nerve pain feel like? I'm so frustrated from not knowing what is wrong with me because I know something is terribly wrong. I'm unable to exercise, clean or cook with out enormous nerve pain. I'm so sorry you are having such pain.
Thanks!
Phillip: you need to keep looking until you find a proper doc who will earn your trust. He/she must be excellent in every way, not afraid to say ‘’ I don’t know’’, but willing to suggest alternatives and other specialists, makes you feel safe and respected. It might take some time, but keep looking, you and new doc are worth the effort.
Thanks for the suggestion.
I'm a few weeks a way from making another attempt in Portland. My primary care doctor and a local neurologist believe that OHSU's nerve center (who claims they will consult with any other OHSU specialists as needed in each case, if they do this I stand a good chance with them.)
The main reason for I'm making an attempt with them is because they have the ability to test for autoimmune issues that may have effected the nervous system. That seems important to look at right now because achalasia is both an autoimmune disease and a degenerative nerve disorder. (and it's my third major autoimmune disease) and considering the fact I took a series of powerful vaccines (the circumstances really left me no choice) with eight months of the second surgery this seems important.
Autoimmune reactions to vaccines do happen (I should stress I believe even thought he vaccines may have played a significant role in my current conditions, I don't believe I had much of choice but to take them because if a vaccine can do this, Covid would be far worse-possibly fatal) and that they reactions vary and can be confusing because there is often a delay, because what my immune system is reacting to is the build up of antibodies in my system.
Autoimmune disease have to be one of the most complex areas of medicine, and you're absolutely correct in suggesting that a doctor not willing to say "I don't know" is one to stay away from
Philip
@shack76 diagnosing autoimmune diseases is so difficult for everyone!! When i first got so sick, no one knew what was going on. AD have such unseen symptoms or ones that make no sense. My husband kept calling the University hospital in the next city and we were finally connected with a neuro-immunologist, who knew exactly what was going on. I’ve been seeing her ever since. Look for medical centers of excellence or university teaching hospitals in your state. Find out if any of the neurologists are cross-trained or have a fellowship in immunology. They frequently treat MS patients. Keep trying and don’t give up!
The test is called D dimer, it rules out pulmonary embolisms in the lungs
Have you ruled out Sjogrens? I had a neuro presentation first and docs found it difficult to diagnose.
Ellen I am so sorry that you are in so much pain. I totally understand I have the whole ball of wax..I have the complete pelvic floor problem and it has become almost impossible to function some days. Are you having robotic surgery or regular surgery. I’m not sure that robotic is the right term.