Has anyone heard of low dose Naltrexone as a potential treatment?
Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.
Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.
I have been on low dose naltrexone ie 4.5 mg daily for 8 weeks, combine with NAD (a supplement( as per protocol at Mayo climic). It has helped me significantly. My first prescription was from Mayo pharmacy, subsequent refills from a local compounding pharmacy.
I've been taking LDN for 6 months. At 3mg now. I think it has helped with brain fog. I am also taking duloxotene, which helps also. I noticed a slight improvement when adding LDN. I have to have it compounded at a specialized pharmacy and it is $75/mo. There is a YouTube video on the theory, and a med study that helps convince a doc to prescribe it.
Low dose naltrexone is often discussed in the Post COVID Recovery support group. You may also be interested in these related discussions:
- Anyone taking Naltrexone for Long COVID?
https://connect.mayoclinic.org/discussion/anyone-taking-naltrexone-for-long-covid/
- Low dose naltrexone for Post-Covid Recovery experiences?
https://connect.mayoclinic.org/discussion/low-dose-naltrexone-for-post-covid-recovery-experiences/
- Any research on low-dose naltrexone?
https://connect.mayoclinic.org/discussion/any-research-on-low-dose-naltrexone/
I have just started taking LDN as I have a long hauler niece back east who has had good results with it....she was lucky enough to get in a long haul clinic so it was prescribed thru them. The recommendation is to titrate with it so I am taking a low dose and will very slowly work up to 4.5 mg.
Can you offer more details, such as her LDN dosage and what symptoms improved?
Can you provide some info on what symptoms improved?
Yes, low dose Methylene Blue is interesting also.
I have been on LDN for Long Covid as post viral anti inflammatory. It is compounded at a well known pharmacy with high standards on preparation and cleanliness. So far I have not seen any improvement in my pain and I too developed burning in my arms. I am going to try to stick with the LDN though to see if it helps the bigger picture or until I cannot take the burning in my arms anymore. I have only been on the 4.5 mg dose since July 7th, 2023 and have had long covid issues since Oct 2022.
Recently recommended I try this as well-I would greatly appreciate your pharmacy contact and measurements, please! As a fellow nurse, I am SUPER particular about my med quality and sourcing! Thank you for sharing your knowledge/experience!
I am trying LDN. I started at 1.5 and then 3.0 for a few months with no noticeable improvement. I do have to take it in the morning to avoid insomnia. I have just recently started 4.5 and am seriously reconsidering it. I find myself taking deep breaths (anxious) and my sleep is horrible, not to mention daily headaches. I know it can take time but not sure it’s worth the trial period. I also take the gummy Coq10, no noticeable difference in my LHC symptoms.