Dizzy still after my liver transplant

Posted by livertrex @livertrex, Oct 4, 2019

Does anybody else feel light-headed and get very dizzy. I'm having to use a cane pretty wobbly. I had my transplant on August 22nd. Thought this would all go away by now. It's the same feeling I had before I had my transplant with my old liver. Please respond thanks everybody

Interested in more discussions like this? Go to the Transplants Support Group.

@jamesduaiswamy

Hello
You mentioned that Myfortic was recommended to you for a liver transplant.
As a post-liver transplant recipient, I was prescribed Cellcept and Tacrolimus for rejection.

Myfortic, according to my research, is exclusively for kidney transplant patients.

I investigated and discovered the following:

Is Myfortic synonymous with CellCept?

Myfortic (Mycophenolic acid):

Mycophenolic acid (Myfortic) and mycophenolate mofetil (Cellcept) are related but not identical. Both drugs are given twice a day and work to suppress the immune system in order to prevent rejection following a kidney transplant. They are not interchangeable since they are absorbed differently by the body.

I need to know a little more about this topic, so please share your thoughts.

Thanks

Jump to this post

Hi, as previsouly mentioned, my patient had kidney transplant.
I asked nephrologist if she can lower the dosage to 1 tablet twice a day instead of thrice a day, she doesn't want too. She thinks Myfortic is not causing the lightheadedness/dizziness.

REPLY

Hi

The information says Liver Transplant, hence my state of confusion.

** It’s the same feeling I had before I had my transplant with my old liver. Please respond thanks, everybody**

Thanks

REPLY
@jeeeemv

Hi,
I suggested to use a cane for the meantime.
I'm not so sure if this episode is caused by his anti-rejection. He's taking Myfortic 360mg/tab 1 tab 3x a day and Prograf 1.5mg 2x a day.

One of our doctors told us that in time, this lightheadedness/dizziness will be gone as he recovers.

Now, I'm really puzzled what's the main cause of it.

Jump to this post

@jeeeemv, I'm going to go along with the doctor's opinion that this dizziness will go away in time. Recovery from transplant surgery is an individual thing. So much depends on the patient's pre transplant conditions and any pre existing health conditions.
Using a walker and a cane is great! It is a proactive way to assure that client will get up and moving. This will help increase strength and stamina for independence. I needed physical therapy because I had been depended on a wheelchair and walker prior to transplant, due to my advancing liver and kidney failure. Healthy eating, staying hydrated, and getting physical activity like walking are what my team advocated for me. As a patient, and that is what helped me. Take it slow and steady with slight increases. Also make sure that patient IS taking medications according to the doctor's orders. There will be some adjustments as time passes, but for now - the health of the new kidney and preventing rejection if the primary concern.

jeeeemv, Has your client thought about keeping a list of when he/she notices the dizziness? This might be something for the transplant doctor to see. Is there someone who is available to be with client when he does walk?

REPLY
@jamesduaiswamy

Hi

The information says Liver Transplant, hence my state of confusion.

** It’s the same feeling I had before I had my transplant with my old liver. Please respond thanks, everybody**

Thanks

Jump to this post

@jamesduaiswamy, You are justified to be confused! You are correct: the title reads liver transplant, and the discussion includes patients with other transplanted organs. That is because we all have similar reactions to medications, and similar pre/post transplant experiences.

Here is a brief summary of Immunosuppression Medications for anyone to access.
- Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/

REPLY
Please sign in or register to post a reply.