This is briansr to Jvivian, this year brings me to my 33rd anniversary and<br />
there's no happy involved!. Spent all of the past 30+ hrs with no sleep,<br />
120 mile round trip to Dr, then a 4 hour wait to not see my own Dr. He was<br />
too busy hopping from surgery sweet to another so he could play. He's an<br />
anesthesiologist wanna be surgeon but he owns the hospital. Four hr wait,<br />
2 minute visit with s different Dr, and my list of questions will have to<br />
wait. Wasn't like this 4 yrs ago so I will be looking for more personal and<br />
pallatative care. NO MORE SURGERIES, NINE AND THERE AFTER ME AGAIN. I'M 60<br />
YRS OLD AND WOULD LIKE TO ENJOY WHATS LEFT. And with all the problems plus<br />
alot more, I just can't take much more. This place is turning into a<br />
factory, ESP. for Medicaid, which I don't have. Today I got word of a pain<br />
Dr I had 25 yrs ago and am going to look him up. Wish me luck!!! brian SR.<br />
When one has bad back pain, or many other types of pain, it is<br />
discouraging and a torment to have to wait a long time past your<br />
appointment to see one's dr. At least 2 times after telling the<br />
receptionist I could not sit in the chair any longer and getting a<br />
cold answer, I have opened the doors to the inside and laid down on<br />
the floor just inside. I get attention.......@ladyjane85<br />
You've hit the nail on the head. One thing that needs to change is the pain<br />
rating scale. I am asked give me a number, well do you want my low back, my<br />
neck, my left shoulder, my hips, my lower legs, my right arm? All I know is<br />
my dr needs to step up and help. I'm not the normal patient. I fee as<br />
though I have cancer but have not been told how long do I have. Pain is<br />
pain it is immeasurable from someone looking in, only the person looking<br />
out ever knows! briansr<br />
Selna a little late to reply to this but my computer was down plus the internet was not working all at the same time.<br />
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My problem with pain reporting is that right at the time they ask I may not have much to report while at other times it can be bad.<br />
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Sent from Windows Mail
Selma sometime I I say my pain level is a nine even when it is a 6. If not they don't seem to take me seriously I hate to exgarate my pain but like you said if they ask me at 2 in the afternoon it is a 10. But when they ask me at 9am it is only a 6. So what do we do???
@ladyjane85 No herioism, more like wrong place at wrong time.
Thanks for reminding me stem cell injections are a new method and I have heard good things about the research. If you have the money you can go to Europe for treatment. 19lin
Selma sometime I I say my pain level is a nine even when it is a 6. If not they don't seem to take me seriously I hate to exgarate my pain but like you said if they ask me at 2 in the afternoon it is a 10. But when they ask me at 9am it is only a 6. So what do we do???
From 30 + yrs of these questions, I only rate 10 when I just have s<br />
surgery. After that guess what else can you do? I usually tell my doctor<br />
that I just feel like hell and can't take the pain. I don't have a number.<br />
And I always tell them the number system is no good. Like I'm ready to<br />
drive off the nearest bridge, the how bad I hurt, now doc, give that a<br />
number! briansr<br />
I have been really sick so I'm starting over to try walking. We could do this together and encourage each other. I live in the Adirondacks in NY and its been col frozen and snowing but today sunny and40. Who wants to join ? We can kind of start around the same time. We should decide when we want to start. And give each other time to walk for however long for the first time before moving on. Small steps. Everyone will be going different distances i won't be going far we could go a little bit everyday up to a week. But we can talk and encourage each [ther along the way. I know i need it whose in. I need this or i'm going to sit with my cat and dog and read
This sounds good to me. I wish you lived here but online support is good. It's so hard when everyone tells you to just walk and "JUST" walking in very painful. i can only go less than a block. But I need motivation to try to move more.I have fibromyalgia, CFS, osteoarthritis among other issues. I really struggle with the pain and fatigue but can push to function at a low level, but what gets me down is the flu like symptoms. No one seems to even care about this. How would they like to wake up everyday feeling like they are at the worst of the flu?
Anyway, did you start walking yet and has anyone else joined you?
I have been really sick so I'm starting over to try walking. We could do this together and encourage each other. I live in the Adirondacks in NY and its been col frozen and snowing but today sunny and40. Who wants to join ? We can kind of start around the same time. We should decide when we want to start. And give each other time to walk for however long for the first time before moving on. Small steps. Everyone will be going different distances i won't be going far we could go a little bit everyday up to a week. But we can talk and encourage each [ther along the way. I know i need it whose in. I need this or i'm going to sit with my cat and dog and read
@ly, I,too, have fibromyalgia, but my back pain is so bad that it is<br>my main distraction. Cannot walk far so spend most of my life on the<br>bed. Someone said to try the brownie recipe, but living in an<br>independent living facility I would not know where to get the main<br>ingredient. Life is terrible t 86, although to people I look very<br>much younger and the do not know how much pain I suffer. Tmrw I am<br>seeing a dr and asking about radio frequency ablation which none of my<br>pain mngmnt drs have ever mentioned. Hope all who read these<br>exchanges feel "betta" @ladyjane85<br>
Hi Lady Jane I'm sorry to hear how much pain your in.I have learned that<br>nobody understands or can feel how bad are pain is. I used to think if only<br>my Dr could feel my pain then he would know. So after being in severe<br>chronic pain for years I learned you have to express how much pain your in.<br>If you are like me that's hard to do. You have to do it. You have to<br>communicate the real level of your worst pain. I know that edrenalin and<br>being out with people can distract us from our pain. That makes it hard to<br>feel and say what pain level you are at. They always say what is your pain<br>right now, but you have to think about when you get home and when your in<br>pain. That is the number I would tell otherwise your not going to get<br>enough good appropriate pain relief. I know your not getting 0ain relief<br>because your in pain all the time. You can't act nice. You have to be<br>strong and tell the truth about your real pain so you don't have to be in<br>pain all the time. You have the right to get appropriate good pain relief.<br>You shouldn't be in pain all the time. Tell your Dr tell everyone involved<br>in your care. God bless<br>
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When one has bad back pain, or many other types of pain, it is<br />
discouraging and a torment to have to wait a long time past your<br />
appointment to see one's dr. At least 2 times after telling the<br />
receptionist I could not sit in the chair any longer and getting a<br />
cold answer, I have opened the doors to the inside and laid down on<br />
the floor just inside. I get attention.......@ladyjane85<br />
-
Like -
Helpful -
Hug
1 Reaction@ladyjane85, you go girl!!!!<br />
<br />
Selna a little late to reply to this but my computer was down plus the internet was not working all at the same time.<br />
<br />
<br />
<br />
<br />
<br />
My problem with pain reporting is that right at the time they ask I may not have much to report while at other times it can be bad.<br />
<br />
<br />
Sent from Windows Mail
-
Like -
Helpful -
Hug
1 ReactionSelma sometime I I say my pain level is a nine even when it is a 6. If not they don't seem to take me seriously I hate to exgarate my pain but like you said if they ask me at 2 in the afternoon it is a 10. But when they ask me at 9am it is only a 6. So what do we do???
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Like -
Helpful -
Hug
1 Reaction@ladyjane85 No herioism, more like wrong place at wrong time.
Thanks for reminding me stem cell injections are a new method and I have heard good things about the research. If you have the money you can go to Europe for treatment. 19lin
From 30 + yrs of these questions, I only rate 10 when I just have s<br />
surgery. After that guess what else can you do? I usually tell my doctor<br />
that I just feel like hell and can't take the pain. I don't have a number.<br />
And I always tell them the number system is no good. Like I'm ready to<br />
drive off the nearest bridge, the how bad I hurt, now doc, give that a<br />
number! briansr<br />
-
Like -
Helpful -
Hug
1 ReactionThis sounds good to me. I wish you lived here but online support is good. It's so hard when everyone tells you to just walk and "JUST" walking in very painful. i can only go less than a block. But I need motivation to try to move more.I have fibromyalgia, CFS, osteoarthritis among other issues. I really struggle with the pain and fatigue but can push to function at a low level, but what gets me down is the flu like symptoms. No one seems to even care about this. How would they like to wake up everyday feeling like they are at the worst of the flu?
Anyway, did you start walking yet and has anyone else joined you?
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Like -
Helpful -
Hug
1 Reaction@ly, I,too, have fibromyalgia, but my back pain is so bad that it is<br>my main distraction. Cannot walk far so spend most of my life on the<br>bed. Someone said to try the brownie recipe, but living in an<br>independent living facility I would not know where to get the main<br>ingredient. Life is terrible t 86, although to people I look very<br>much younger and the do not know how much pain I suffer. Tmrw I am<br>seeing a dr and asking about radio frequency ablation which none of my<br>pain mngmnt drs have ever mentioned. Hope all who read these<br>exchanges feel "betta" @ladyjane85<br>
Hi Lady Jane I'm sorry to hear how much pain your in.I have learned that<br>nobody understands or can feel how bad are pain is. I used to think if only<br>my Dr could feel my pain then he would know. So after being in severe<br>chronic pain for years I learned you have to express how much pain your in.<br>If you are like me that's hard to do. You have to do it. You have to<br>communicate the real level of your worst pain. I know that edrenalin and<br>being out with people can distract us from our pain. That makes it hard to<br>feel and say what pain level you are at. They always say what is your pain<br>right now, but you have to think about when you get home and when your in<br>pain. That is the number I would tell otherwise your not going to get<br>enough good appropriate pain relief. I know your not getting 0ain relief<br>because your in pain all the time. You can't act nice. You have to be<br>strong and tell the truth about your real pain so you don't have to be in<br>pain all the time. You have the right to get appropriate good pain relief.<br>You shouldn't be in pain all the time. Tell your Dr tell everyone involved<br>in your care. God bless<br>
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Hug
2 ReactionsAnd the ingredient in brownies is pot which is illegal but I don't know<br>what state your in. Your pain Dr is in charge of that.<br>