Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.
Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.
Hello, I too have and had NHL(not the national hockey league)./ for me it's Low grade B cell non-hodgkins lymphoma, diagnosed in 2008 and treated with 6months of chemo, and maintenance doses that followed, and left me in remission until 2014 then soaking night sweats had me back to chemo again, 2009 chemo wasn't bad at all 2015 wasn't good at all low blood counts fevers ER visits near neutropenia fever and chills,...blood count back to normal fen.2016 now lighting up like a Christmas tree on last two PET scans...another PET in October, see where treatment take me this time if it is still showing on scans..I am a 62 year old male that felt great two days ago..now night sweats the last two nights..
Colleen Young, Connect Director | @colleenyoung | Aug 25, 2016
Welcome to Connect, @muskegonsid. I'm glad you found us so that we can accompany you on this return to the "journey". I'd like to introduce you to @maisyann@aamarion and @travelgirl. Also please meet @hopeful33250. She's checked in to the cancer train for a third time, and is one of our Connect mentors.
Muskegonsid - what is your next step? Have you had an appointment with your oncologist?
Welcome to Connect, @muskegonsid. I'm glad you found us so that we can accompany you on this return to the "journey". I'd like to introduce you to @maisyann@aamarion and @travelgirl. Also please meet @hopeful33250. She's checked in to the cancer train for a third time, and is one of our Connect mentors.
Muskegonsid - what is your next step? Have you had an appointment with your oncologist?
Hi<br>Thankyou very much for your kind message. I was diagnosed nearly four years ago with follicular lymphoma NHL , stage 3, and immediately began chemotherapy R CHOP which I responded to extremely well. I then stayed on track with what we call the four pillars, vitamin D ( sunshine) , exercise, sleep and diet. I enjoyed a good lifestyle during this time. Last November however, I had another surge( transformation ) not sure of the terminology but it came back. I was then chosen to have a stem cell transplant . I completed the chemotherapy for preparation R ICE but unfortunately failed at the harvest time. The chemo worked for a short time but lymph nodes are on the growth again. I am classified as palliative and am having mostly a very good life. <br>I live in New Zealand so I know treatment may differ but I just thought it may be good to read how are people are dealing with similar prognosis etc<br>Thank you<br><br>
@muskegonsid I'll join Colleen in welcoming you to Mayo Connect. It is a great online support group for those of us facing serious illnesses and trying to make the best of it! As Colleen mentioned, I have checked in on the cancer train for the third time this year. I have had a rare form of cancer, neuroendocrine tumor (also called carcinoid). While it different than NHL the feelings that go along with a cancer diagnosis are all similar. In some way, we all do our best to increase our education about our disease and to make the most of each day. I wish you well in your treatment!
Welcome to Connect, @muskegonsid. I'm glad you found us so that we can accompany you on this return to the "journey". I'd like to introduce you to @maisyann@aamarion and @travelgirl. Also please meet @hopeful33250. She's checked in to the cancer train for a third time, and is one of our Connect mentors.
Muskegonsid - what is your next step? Have you had an appointment with your oncologist?
Thank you so much for joining this group @designer. And welcome from down under. I'm sure @muskegonsid will very much appreciate hearing from someone with a similar situation.
You may be interested in joining the discussion about palliative and hospice care. IrvKay started the discussion to share experiences and to help people understand what palliative care means. https://connect.mayoclinic.org/discussion/palliative-care-and-hospice-care/ Would love to get your perspective.
Hello everyone. I have follicular lymphoma. I was diagnosed two years ago. I had two radiation treatments. My PET scan 6 months ago did not show any signs of cancer. I have another PET scan scheduled for Sept.. I know my cancer is not curable but can be kept in remission for years. I am optimistic about living with it for many years to come.
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I do not know what NHL means, I have pancreatic cancer and I am looking for<br />
the best supplements and news about the treatment.<br />
Hi @seekhealth2016, NHL stands for non-Hodgkin's lymphoma, which is what the people are talking about on this discussion thread.
Let me introduce you to people talking about pancreatic cancer. Click this link https://connect.mayoclinic.org/discussion/i-have-just-been-diagnosed-with-pancreatic-cancer-1-12-inch-mass/ to see the discussion and meet SJG and Ronmac. I hope you'll join us there.
Hello, I too have and had NHL(not the national hockey league)./ for me it's Low grade B cell non-hodgkins lymphoma, diagnosed in 2008 and treated with 6months of chemo, and maintenance doses that followed, and left me in remission until 2014 then soaking night sweats had me back to chemo again, 2009 chemo wasn't bad at all 2015 wasn't good at all low blood counts fevers ER visits near neutropenia fever and chills,...blood count back to normal fen.2016 now lighting up like a Christmas tree on last two PET scans...another PET in October, see where treatment take me this time if it is still showing on scans..I am a 62 year old male that felt great two days ago..now night sweats the last two nights..
Welcome to Connect, @muskegonsid. I'm glad you found us so that we can accompany you on this return to the "journey". I'd like to introduce you to @maisyann @aamarion and @travelgirl. Also please meet @hopeful33250. She's checked in to the cancer train for a third time, and is one of our Connect mentors.
Muskegonsid - what is your next step? Have you had an appointment with your oncologist?
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1 ReactionHi<br>Thankyou very much for your kind message. I was diagnosed nearly four years ago with follicular lymphoma NHL , stage 3, and immediately began chemotherapy R CHOP which I responded to extremely well. I then stayed on track with what we call the four pillars, vitamin D ( sunshine) , exercise, sleep and diet. I enjoyed a good lifestyle during this time. Last November however, I had another surge( transformation ) not sure of the terminology but it came back. I was then chosen to have a stem cell transplant . I completed the chemotherapy for preparation R ICE but unfortunately failed at the harvest time. The chemo worked for a short time but lymph nodes are on the growth again. I am classified as palliative and am having mostly a very good life. <br>I live in New Zealand so I know treatment may differ but I just thought it may be good to read how are people are dealing with similar prognosis etc<br>Thank you<br><br>
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Hug
2 Reactions@muskegonsid I'll join Colleen in welcoming you to Mayo Connect. It is a great online support group for those of us facing serious illnesses and trying to make the best of it! As Colleen mentioned, I have checked in on the cancer train for the third time this year. I have had a rare form of cancer, neuroendocrine tumor (also called carcinoid). While it different than NHL the feelings that go along with a cancer diagnosis are all similar. In some way, we all do our best to increase our education about our disease and to make the most of each day. I wish you well in your treatment!
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Helpful -
Hug
1 ReactionThank you so much for joining this group @designer. And welcome from down under. I'm sure @muskegonsid will very much appreciate hearing from someone with a similar situation.
You may be interested in joining the discussion about palliative and hospice care. IrvKay started the discussion to share experiences and to help people understand what palliative care means. https://connect.mayoclinic.org/discussion/palliative-care-and-hospice-care/ Would love to get your perspective.
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1 ReactionI would like to join a support groupl
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1 ReactionWelcome @vonbaron36 to our virtual support group on Mayo Clinic Connect for people living with cancer and specifically in this forum for people living with non-Hodgkin's lymphoma. Please meet @lacey @lissa @caretothepeople @bobc @designer @muskegonsid @maisyann @aamarion and @travelgirl.
Vonbaron - we look forward to getting to know more about you. What type of NHL do you have and when were you diagnosed?
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1 ReactionHello everyone. I have follicular lymphoma. I was diagnosed two years ago. I had two radiation treatments. My PET scan 6 months ago did not show any signs of cancer. I have another PET scan scheduled for Sept.. I know my cancer is not curable but can be kept in remission for years. I am optimistic about living with it for many years to come.
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Helpful -
Hug
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