Share this:
SJG
@SJG

Posts: 5
Joined: Oct 09, 2015

I have just been diagnosed with pancreatic cancer

Posted by @SJG, Oct 8, 2015

I have just been diagnosed with pancreatic cancer (1 1/2 inch mass in tail) which has mets to liver (multiple adenocarcenoma masses about the same size) was told today that surgical interventional not possible at this point. Next week I will probably start chemo with Folfirinox which is powerful combo medication. Any other people out there facing similar circumstances? Any one willing to share your experience with me? FYI I AM 54 male in excellent physical condition-health.

REPLY

Hi @SJG Welcome to Connect.
It’s always tough to find out that surgery is not possible. Folfirinox is a powerful drug combo, so hearing that you are in good physical condition is great. Will you be getting chemo every 2 weeks? Do you have good support around you at home?

@colleenyoung

Hi @SJG Welcome to Connect.
It’s always tough to find out that surgery is not possible. Folfirinox is a powerful drug combo, so hearing that you are in good physical condition is great. Will you be getting chemo every 2 weeks? Do you have good support around you at home?

Jump to this post

Meeting with oncologist on Monday to discuss chemo and get schedule. Fortunately I have a great support system. Trying to add a few lbs before this starts.

@SJG Great to hear back from you so quickly. Maybe the recipes here will help inspire meals to put on a few pounds https://www.ellicsr.ca/en/clinics_programs/ellicsr_kitchen/Pages/recipe_archive.aspx They are recipes from the wellness program at a cancer center in Toronto.

It sure helps to have a great support system at home, but I understand the wish to connect with others who have been there. I hope someone will post here about their experience with Folfirinox.

Good luck with your meeting with the oncologist on Monday. Have you made a list of questions to ask?

Hi @SJG What did you learn at your appointment with the oncologist on Monday?

I start chemo on Tuesday (Folfirinox). Dr. Redman said the liver cancer is the biggest concern right now since there are 4/5 tumors in my liver. She is also going to send out my tumor sample to be genetically coded. Who are you Colleen?

Hi @SJG, I’m the new Community Director for Mayo Clinic Connect. My first objective is to get to know the people on the community, ignite and reanimate conversations and connections, and to grow a supportive, welcoming community that I hope you and many others will benefit from.

Hi @SJG Just thought I’d check in. How are you doing?

@colleenyoung

Hi @SJG Just thought I’d check in. How are you doing?

Jump to this post

Hi Colleen
I'm generally doing ok. I have had some tough side effects from the chemotherapy. But I am starting Round 2 of Folfirinox on Monday.
Scott

SJG, the chemo is rough, take it from someone who just finished treatment number 21. It has been 17 months since they found mine and since it had spread surgery is not an option. Expect to loose weight, be sensitive to cold, and want lots of sleep. Gas has been a problem for me…extremely painful! OTC gas relief helps. Good luck on your treatments and don’t forget to thank someone for another day of life.

Hi @SJG and @Ronmac. I thought I would check in and see how you’re both doing. Thinking of you.

@colleenyoung

Hi @SJG and @Ronmac. I thought I would check in and see how you’re both doing. Thinking of you.

Jump to this post

Still hanging in there. Will switch to another Chemo next week since, after a two-month delay in treatment due to medical reasons I have several new lesions along the colon which is causing some digestive issues.

AND SJG, your good health will see you a long way. Be ready for diet issues, low energy, and weght loss.

Ron

@colleenyoung

Hi @SJG and @Ronmac. I thought I would check in and see how you’re both doing. Thinking of you.

Jump to this post

All three are a constant challenge for me,my boss is letting me work from home most days  which is a lifesaver, I will get the results of my latest ct scan on Monday praying for a good report since my tumor markers are down about 30%.

Glad to hear you are doing well SJG! Remember, just one day at a time 😉

Checking in. How are you doing @Ronmac and @SJG?

I am still hanging in there. They switched my chemo, now have treatment once a week for three weeks then a week off. Can’t tell you what it is, they said I would loose my hair but it has only stunted it growth. Minimal side effects on this one so we shall see this week when I get CT. Insurance denied petscan saying I have already had three…but that’s in almost two-years of treatment. Gotta’ love those number crunchers!

Please login or register to post a reply.