Gina there is a low impact exercise guru that you can access online. It’s free and I enjoy his 30 minute workouts (as much as I ever enjoy exercise)
I do them at my convenience although I am subscribed to the class at my local sr center.
I quite like Curtis! https://vitalityfl.com/
Patty
Have you had eny luck gettng the weight off? I gained 10 lbs the first month I was on Pregabolin, and have not been able to get it off. They reduced my dosage, but that did not happen. I think I am just not active enoujg. If you have found any secrets I would love to hear.
Gina5009
I have not. That is why I am going to see the weight loss doctor. I specifically looked for one who was not going to push me for surgery, but had a more wholistic approach and a nutritionist on staff. It is difficult for me to exercise consistently because of the joint pain, so I just do what I can. I'm looking forward to summer when I can exercise in the pool.
It sounds like you have really thought this out. Several years ago I joined Weight Watchers and los 50 lbs. Unfortunately it has all come back. At that time, I was allowed 3 proteins, 5 starches,, 2 fats, and 2 fruits. All the vegetables I wanted except potatoes. It worked really welll but that was many years ago, and my activity level is much less, so it is not successful now. I also had to drink a lot of water. This is very hard for me, as I do not really crave water and frequently just forget to drink. Good luck, I am sure you will be a great success.
Gina5009
Gina there is a low impact exercise guru that you can access online. It’s free and I enjoy his 30 minute workouts (as much as I ever enjoy exercise)
I do them at my convenience although I am subscribed to the class at my local sr center.
I quite like Curtis! https://vitalityfl.com/
Patty
Curtis is great. And If you like dance, you can join Elizabeth online too. AARP endorses her Zumba Gold classes. They are low impact, but big fun. To find just google "Zumba Gold Elizabeth", or look for her on Youtube.
Curtis is great. And If you like dance, you can join Elizabeth online too. AARP endorses her Zumba Gold classes. They are low impact, but big fun. To find just google "Zumba Gold Elizabeth", or look for her on Youtube.
Curtis is great. And If you like dance, you can join Elizabeth online too. AARP endorses her Zumba Gold classes. They are low impact, but big fun. To find just google "Zumba Gold Elizabeth", or look for her on Youtube.
Re: MGUS and joint pain
Yes, I have both. And in the last year, I've gotten a new twist on the joint pain -- swelling. My knees each swelled up, 3 months apart, with Baker's cysts so huge I couldn't bend my knees and one kneecap was dislocated by the swelling. After 4 months I found a psysiatrist who drained the knees and only about a third of the fluid has returned in the last six months. (They had each swollen up overnight. My ortho doc suggested knee replacements. I declined.) There was a mold issue, unknown until we moved out, in the walls of our condo from a prolonged roof leak. It didn't smell moldy, just made the wall bulge. Didn't show until we moved the bookcases. My urine showed several types of mold, mostly penicilliums and stachybotris. Doctors are silent on how to treat that. But I began to feel much better after moving away, but it's taken several months to get off the walker and crutches and mostly manage with just a cane. The rest of my joints have hurt for the last 20+ years, and 3 rheumatologist have either quit or been fired after giving me wrong diagnoses or non-viable treatment options. I'm on my own with that, too. I have the H63D form of hereditary hemachromatosis, so that adds to the picture. H63D Syndrome is a recent discovery and it's a lot to put together. I just avoid the many foods I am allergic to. The only times my joints DON'T hurt is 1) for the 6 weeks following phlebotomy or 2) after receiving monoclonal antibodies to handle Covid. Ferritin low, so phlebotomy not warranted, and more experiments with Covid treatments is not likely indicated. Just wanted to dance again, or maybe stand up without needing to use my arms. I'm 71, and going to order genetic tests just to see what I can learn, and maybe help my children. Parents and brother are gone now, dying from "weird stuff" that country doctors couldn't diagnose or treat. Every joint in hands, feet, arms and legs, hips, spine, back and neck hurts to some degrees every day, and all night. I don't take drugs if I can help it. They don't do what they're supposed to with me.
Re: MGUS and joint pain
Yes, I have both. And in the last year, I've gotten a new twist on the joint pain -- swelling. My knees each swelled up, 3 months apart, with Baker's cysts so huge I couldn't bend my knees and one kneecap was dislocated by the swelling. After 4 months I found a psysiatrist who drained the knees and only about a third of the fluid has returned in the last six months. (They had each swollen up overnight. My ortho doc suggested knee replacements. I declined.) There was a mold issue, unknown until we moved out, in the walls of our condo from a prolonged roof leak. It didn't smell moldy, just made the wall bulge. Didn't show until we moved the bookcases. My urine showed several types of mold, mostly penicilliums and stachybotris. Doctors are silent on how to treat that. But I began to feel much better after moving away, but it's taken several months to get off the walker and crutches and mostly manage with just a cane. The rest of my joints have hurt for the last 20+ years, and 3 rheumatologist have either quit or been fired after giving me wrong diagnoses or non-viable treatment options. I'm on my own with that, too. I have the H63D form of hereditary hemachromatosis, so that adds to the picture. H63D Syndrome is a recent discovery and it's a lot to put together. I just avoid the many foods I am allergic to. The only times my joints DON'T hurt is 1) for the 6 weeks following phlebotomy or 2) after receiving monoclonal antibodies to handle Covid. Ferritin low, so phlebotomy not warranted, and more experiments with Covid treatments is not likely indicated. Just wanted to dance again, or maybe stand up without needing to use my arms. I'm 71, and going to order genetic tests just to see what I can learn, and maybe help my children. Parents and brother are gone now, dying from "weird stuff" that country doctors couldn't diagnose or treat. Every joint in hands, feet, arms and legs, hips, spine, back and neck hurts to some degrees every day, and all night. I don't take drugs if I can help it. They don't do what they're supposed to with me.
@fayeraye Yes, often we patients have more than one health issue going on at the same time. It is difficult to figure out which symptom correlates with which malady. Like you, I live with fibromyalgia, also. Gentle movement, walking, all seem to help.
Ginger
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Gina there is a low impact exercise guru that you can access online. It’s free and I enjoy his 30 minute workouts (as much as I ever enjoy exercise)
I do them at my convenience although I am subscribed to the class at my local sr center.
I quite like Curtis!
https://vitalityfl.com/
Patty
I have not. That is why I am going to see the weight loss doctor. I specifically looked for one who was not going to push me for surgery, but had a more wholistic approach and a nutritionist on staff. It is difficult for me to exercise consistently because of the joint pain, so I just do what I can. I'm looking forward to summer when I can exercise in the pool.
It sounds like you have really thought this out. Several years ago I joined Weight Watchers and los 50 lbs. Unfortunately it has all come back. At that time, I was allowed 3 proteins, 5 starches,, 2 fats, and 2 fruits. All the vegetables I wanted except potatoes. It worked really welll but that was many years ago, and my activity level is much less, so it is not successful now. I also had to drink a lot of water. This is very hard for me, as I do not really crave water and frequently just forget to drink. Good luck, I am sure you will be a great success.
Gina5009
Curtis is great. And If you like dance, you can join Elizabeth online too. AARP endorses her Zumba Gold classes. They are low impact, but big fun. To find just google "Zumba Gold Elizabeth", or look for her on Youtube.
David
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5 ReactionsThanks, David! I will check that out.
Patty
Heres a link to the fun: https://www.youtube.com/watch?v=Miu8IzdT4Mc&t=0s
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3 ReactionsElizabeth has me gently dancing at 6 am! She is great fun! Thank you for posting.
Much love and hugs to everyone!
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1 ReactionRe: MGUS and joint pain
Yes, I have both. And in the last year, I've gotten a new twist on the joint pain -- swelling. My knees each swelled up, 3 months apart, with Baker's cysts so huge I couldn't bend my knees and one kneecap was dislocated by the swelling. After 4 months I found a psysiatrist who drained the knees and only about a third of the fluid has returned in the last six months. (They had each swollen up overnight. My ortho doc suggested knee replacements. I declined.) There was a mold issue, unknown until we moved out, in the walls of our condo from a prolonged roof leak. It didn't smell moldy, just made the wall bulge. Didn't show until we moved the bookcases. My urine showed several types of mold, mostly penicilliums and stachybotris. Doctors are silent on how to treat that. But I began to feel much better after moving away, but it's taken several months to get off the walker and crutches and mostly manage with just a cane. The rest of my joints have hurt for the last 20+ years, and 3 rheumatologist have either quit or been fired after giving me wrong diagnoses or non-viable treatment options. I'm on my own with that, too. I have the H63D form of hereditary hemachromatosis, so that adds to the picture. H63D Syndrome is a recent discovery and it's a lot to put together. I just avoid the many foods I am allergic to. The only times my joints DON'T hurt is 1) for the 6 weeks following phlebotomy or 2) after receiving monoclonal antibodies to handle Covid. Ferritin low, so phlebotomy not warranted, and more experiments with Covid treatments is not likely indicated. Just wanted to dance again, or maybe stand up without needing to use my arms. I'm 71, and going to order genetic tests just to see what I can learn, and maybe help my children. Parents and brother are gone now, dying from "weird stuff" that country doctors couldn't diagnose or treat. Every joint in hands, feet, arms and legs, hips, spine, back and neck hurts to some degrees every day, and all night. I don't take drugs if I can help it. They don't do what they're supposed to with me.
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3 ReactionsI have both MGUS and so much joint pain I could share it with 10 people. My whole body hurts. I have osteoarthritis, fibro, and osteopenia.
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2 Reactions@fayeraye Yes, often we patients have more than one health issue going on at the same time. It is difficult to figure out which symptom correlates with which malady. Like you, I live with fibromyalgia, also. Gentle movement, walking, all seem to help.
Ginger
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