Re: MGUS and joint pain
Yes, I have both. And in the last year, I've gotten a new twist on the joint pain -- swelling. My knees each swelled up, 3 months apart, with Baker's cysts so huge I couldn't bend my knees and one kneecap was dislocated by the swelling. After 4 months I found a psysiatrist who drained the knees and only about a third of the fluid has returned in the last six months. (They had each swollen up overnight. My ortho doc suggested knee replacements. I declined.) There was a mold issue, unknown until we moved out, in the walls of our condo from a prolonged roof leak. It didn't smell moldy, just made the wall bulge. Didn't show until we moved the bookcases. My urine showed several types of mold, mostly penicilliums and stachybotris. Doctors are silent on how to treat that. But I began to feel much better after moving away, but it's taken several months to get off the walker and crutches and mostly manage with just a cane. The rest of my joints have hurt for the last 20+ years, and 3 rheumatologist have either quit or been fired after giving me wrong diagnoses or non-viable treatment options. I'm on my own with that, too. I have the H63D form of hereditary hemachromatosis, so that adds to the picture. H63D Syndrome is a recent discovery and it's a lot to put together. I just avoid the many foods I am allergic to. The only times my joints DON'T hurt is 1) for the 6 weeks following phlebotomy or 2) after receiving monoclonal antibodies to handle Covid. Ferritin low, so phlebotomy not warranted, and more experiments with Covid treatments is not likely indicated. Just wanted to dance again, or maybe stand up without needing to use my arms. I'm 71, and going to order genetic tests just to see what I can learn, and maybe help my children. Parents and brother are gone now, dying from "weird stuff" that country doctors couldn't diagnose or treat. Every joint in hands, feet, arms and legs, hips, spine, back and neck hurts to some degrees every day, and all night. I don't take drugs if I can help it. They don't do what they're supposed to with me.

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