Anyone diagnosed with PMR after the Covid vaccine?
I received the Pfizer covid vaccine and had horrible joint pain 8/10 as a side effect. I reported it online. 7 months later I developed horrific joint pain in my shoulders, hips and knees(same pain after the vaccine, but worse). I was ultimately diagnosed with Polymyalgia Rheumatica. I wish there was a site to go to and report these things.
I am only 57 and was a runner most of my life up to the age of 51, so I am not in horrible shape for my age. The pain from that PMR was very disabling. I am now on Hydroxychloroquine 200 mg BID and Prednisone 10 mg a day. Not happy about having to take more medications.
Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
I am so sorry for what you experienced. I would love answers too. They took me off all prednisone for 3 weeks to run lab tests and get accurate results when I went to the Rheumatologist. It was the worst 3 weeks of my life! Like you, I could barely dress and shower myself. I live alone and I just cried every morning getting ready for work. I could barely get in my jeep. I hate it!!!
Prayers for everyone dealing with this mess!!!
Did you have any of this prior to your jabs? Do you know if you had Covid before the jabs? I had shingles in Nov of 2019, and two months later I had covid - that lasted about 3-4 weeks of a dry cough. I was again sick in late Feb of 2020. It is just so sad this has happened to so many people! Thank you for your reply...
Very healthy. I was full of energy - out in the yard everyday. Life is different now. Thankful for prednisone but anxious to taper off of it. Trying to stay active & some light exercise.
I had a similar experience after Moderna. I’m down to 8 mg’s of prednisone.
Yes, I was.
Exactly what I went through as well. Doctors won’t tell you it occurs very frequently after the booster or Covid shot, especially at age 70 and older. I have had Rheumatologists nod and say it does occur but then avoid further details. It’s all out there documented, just takes the time to delve into the data.
I started on Prednisone after I could hardly move 2 months after Booster and within 3 days I was 75% bacteria to normal. Then then after 3 months I was weened off as my Primary care and 1st Rheumatologist said it wasn’t safe. So off I went and it came back full force. Saw my new Rheumatologist who said treatment with Prednisone is a minimum of 18 months for PMR
And sometimes requires a lifetime. So waiting for labs again then starting back on Prednisone at 15 mg. Finally found a DR who understands this disease.
See my new update below. After going off Prednisone mine came back full force. Hope this helps😄
Sorry see above first comment.
No I had none of this prior. I have always been super healthy and the only medicine I was on was Protonix for GERD. I worked as an RN in a COVID unit for 10 months and never got COVID. 4 weeks after getting my second vaccine I got COVID in February of 2022.
Similar experience after Covid booster. 7 months of Prednisone taper with symptoms improved, but creeped back up with CRP rising. Changed to Medrol - worked great at first, but as taper continued symptoms again returned. Getting 2nd opinion from another rheumatologist to discover next steps. Ice packs help along w Tylenol and minimal amounts of NSAIDS. I’m 70 and in great health prior to this. Searching for the correct regimen to reduce pain. What are other medications out there you’ve found success with?