1. < Skin Health

Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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mgi23 | @mgi23 | Apr 3, 2023
In reply to @pwhitney801 "Thanks for your comment. It seems the more I have read and researched there are many..." + (show)
@pwhitney801

Thanks for your comment. It seems the more I have read and researched there are many things people have tried to add or eliminate to see what works for them. Lots of trial and error. I now use cilantro drops in orange juice for a quicker and cost effective way to get that in vs making a smoothie. I'm 100% certain for myself that high levels of alcohol consumption causes flareups just about every time for me.

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Would you mind sharing how many drops of cilantro in how many ounces of liquid?

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pwhitney801 | @pwhitney801 | Apr 3, 2023

Sure. I do this 2 times a day. Morning and night. I use the brand Herb Pharm Certified Organic Cilantro Extract 1 Oz (pack of 2) on amazon. I do one full vile into about 2-3 oz of orange juice and drink it like a shot. You won't taste the cilantro.

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1 reply
bjv8080 | @bjv8080 | Apr 4, 2023
In reply to @pwhitney801 "Sure. I do this 2 times a day. Morning and night. I use the brand Herb..." + (show)
@pwhitney801

Sure. I do this 2 times a day. Morning and night. I use the brand Herb Pharm Certified Organic Cilantro Extract 1 Oz (pack of 2) on amazon. I do one full vile into about 2-3 oz of orange juice and drink it like a shot. You won't taste the cilantro.

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My problem with cilantro was a soapy aftertaste several hours later. Sickening!

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1 reply
griffin1120 | @griffin1120 | Apr 4, 2023

Gabapentin until the itch subsides. Then alternate between steroid cream & OTC cream. Lessening the steroid cream as much as possible.

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griffin1120 | @griffin1120 | Apr 6, 2023

It helped me a lot, so I could sleep. I weaned myself off of it & have only used 2Xs in 3 months when I wasn’t sleeping well.

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ib66 | @ib66 | Apr 7, 2023

Gabapentin has helped me. I’m on a high dosage until I can see a neurologist. 900mg
Also use hydroxyzine to sleep at night.
Still itchy though
Has anyone experienced “purpura “. Flat purple blotches from scratching.
Any cures known for them?
I have used a mixture of clobesitol (steroid solution) with cerave but am trying to wean myself since I think it is the culprit for the blotches. Thanks for any advice.

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1 reply
gardeningjunkie | @gardeningjunkie | Apr 7, 2023
In reply to @olddog "Like many of you I rely on antihistamines (Allegra and Benadryl currently). The only side effect..." + (show)
@olddog

Like many of you I rely on antihistamines (Allegra and Benadryl currently). The only side effect I've noticed is frequent nosebleeds which I attribute to dry sinuses. I've been taking antihistamines twice daily for over a year. Does anyone know of any longterm problems with regular use of antihistamines? Thanks.

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Old school anti-histamines like benadryl or hydroxyzine are tied to a higher frequency of dementia. Google it. The newer anti-histamines are not, yet I find them ineffective for itch control and the newer ones don't help you sleep.

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olddog | @olddog | Apr 8, 2023
In reply to @ib66 "Gabapentin has helped me. I’m on a high dosage until I can see a neurologist. 900mg..." + (show)
@ib66

Gabapentin has helped me. I’m on a high dosage until I can see a neurologist. 900mg
Also use hydroxyzine to sleep at night.
Still itchy though
Has anyone experienced “purpura “. Flat purple blotches from scratching.
Any cures known for them?
I have used a mixture of clobesitol (steroid solution) with cerave but am trying to wean myself since I think it is the culprit for the blotches. Thanks for any advice.

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Yes, sizable purpura areas mostly on my forearms and hands, small ones on my face. Know of no cure. Mine went away in a couple weeks. I'm 73 so suspect my forearms and hands are susceptible from sun damage in addition to the weakening of the skin from GD. Dermo said it was a bruise but I did nothing to cause bruising.

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1 reply
griffin1120 | @griffin1120 | Apr 8, 2023

I agree & think it’s definitely from the steroid creams.
My dermatologist said the same thing as yours.

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bjwilliams | @bjwilliams | Apr 10, 2023
In reply to @bjv8080 "My problem with cilantro was a soapy aftertaste several hours later. Sickening!" + (show)
@bjv8080

My problem with cilantro was a soapy aftertaste several hours later. Sickening!

Jump to this post

If you can't stand fresh cilantro or cilantro oil, you could try cilantro capsules, which are taste free.

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