Prolia for Osteoporosis

I am wondering the same thing. My endocrinologist has recommended it after Forteo. Does everyone have major side effects?

Thanks dma053 for starting the discussion.

I have been on Prolia for 8 years. My right hip went from Osteoporosis to Osteopenia which was good news. I have a Bone Density every 2 years and in January 2023 it had declined by -2 which was still Osteopenia but a little disappointing. I have never had any side effects and have had dental work done (with no issues) but definitely planned it months after an injection.

That is disappointing that you lost bone density. Did you have your bone density test on the same machine?

I have had good improvement. I have taken Prolia for many years, since 2011. I had taken Fosamax and Aclasta before that, with no improvement. The improvement on Prolia was very good in the beginning, but now seems to just be holding. I have had to use different machines lately and of course that isn’t good and also makes it hard to be sure where things are.
In 2019, I had a BMD test that included TBS, and the TBS score was 1.277, which is pretty close to the 1.3 score that is considered the bottom of ‘normal’ as I understand it. I had one test after that on a different machine that did not have TBS software. I have moved so now need to get a test on another different machine in the next couple of months, so I’ll see how that goes.
I should mention I have not practised the diligent exercise routine I used to, and I had watched my diet better before as well. I am hoping to get back on track with both. That likely has played a role.
When I started, there was no indication that Prolia was such a problem to stop using. I would like to stop using it but continue to get warned I need to stay on. I am rather angry that this wasn’t known when I started. I will be interested to hear if they can come up with a decent plan to quit taking Prolia.
I have not had any other tests, such as bone turnover markers or used bioidentical hormones, and I am not aware of any echolight scans available near me. It sounds like these would be better testing tools!

I have just started Prolio with a new M.D. I was without any medication for at least 5 years. At that time, I was Osteopenia for the hips and neck which had remained the same for five years without any medication.
The T and Z scores for my spine dropped from Ostopenia to Osteoperosis. So, I was upset.
When, I was on Fosamax, I simply did not have a decrease in the score. But, the M.D. Family Medicine doctor simply stopped the use of Fosamax. Then, I saw the decline and switched doctors.
The Bone Density exam is like a radiology exam. I follow the scores as well.
Probably any maintenance of bone density for me has been rigorous weight lifting, group exercise classes, swimming, and, outdoor bicycling. I am at the gym almost daily. If I am too tired for the gym, I do the 3 miles walk as a weight bearing exercise.
So far no injuries. I take preventive classes on how to avoid trips, slips, and, falls. Those are on You Tube as well. This is what I do for improving bone health, physical strength, coordination, and, aerobic capacity.

Do I understand you to say you have been taking Prolia for 8 years based on a DX of osteropenia?

When you say that your most recent bone density scan "declined by -2," could you please share the actual reading?

I agree with you. I'd like to know why she's been on Prolia for 8 years. My rheumatologist wants to start me on Prolia for only one year.

I started Prolia because I had Osteoporosis in my hip not Osteopenia. I don't have the actual reading from my last Bone Density Scan but the Dr. will do another Bone Density in a year (I will continue with Prolia until then). If no improvement or more decline he will try something else. Prolia has helped me go from Osteoporosis to Osteopenia in the past but then I had this bump in the road.

Sorry to hear about your bump in the road. Hope the next scan will show improvement and that the last scan was merely a blip.