COVID vaccines and neuropathy

I am a healthy 51 year old and suspect the same. All of my shots were Moderna until the last one which was Pfizer. I feel that my immune system is in overdrive. I got a booster 4/28/22, had Covid in mid June, and another booster 10/9/22 (plus the flu shot). I asked my PCP if I should get the bivalent booster in October sine I would be traveling and attending crowded events at my son's university. She said yes. In early November, my symptoms began with chest squeezes (everything checked out ok by cardiologist), and the day before Thanksgiving I got extreme cold sensations that spread down my neck into my arms. Since then I have had numerous symptoms on almost a daily basis to include cold sensations, sunburn feeling, pins and needles tingling, numbness, and aches from my neck down. Each day the symptoms can be different and in random areas of my body. Sometimes I also feel a heaviness throughout my body, which may be anxiety. I feel best when exercising or moving around. An MRI, tests for lupus, RA, lymes, and sjogrens were all negative. Thyroid and Vitamin D levels are fine. My B-12 was low, but after taking supplements has vastly improved. I obviously have some form of neuropathy. The low B-12 may have contributed, but this came on so suddenly that I feel something else is in play. My neurologist is moving so I need to move forward with a new one.

I am a healthy 51 year old and suspect the same. All of my shots were Moderna until the last one which was Pfizer. I feel that my immune system is in overdrive. I got a booster 4/28/22, had Covid in mid June, and another booster 10/9/22 (plus the flu shot). I asked my PCP if I should get the bivalent booster in October sine I would be traveling and attending crowded events at my son's university. She said yes. In early November, my symptoms began with chest squeezes (everything checked out ok by cardiologist), and the day before Thanksgiving I got extreme cold sensations that spread down my neck into my arms. Since then I have had numerous symptoms on almost a daily basis to include cold sensations, sunburn feeling, pins and needles tingling, numbness, and aches from my neck down. Each day the symptoms can be different and in random areas of my body. Sometimes I also feel a heaviness throughout my body, which may be anxiety. I feel best when exercising or moving around. An MRI, tests for lupus, RA, lymes, and sjogrens were all negative. Thyroid and Vitamin D levels are fine. My B-12 was low, but after taking supplements has vastly improved. I obviously have some form of neuropathy. The low B-12 may have contributed, but this came on so suddenly that I feel something else is in play. My neurologist is moving so I need to move forward with a new one.

This sound similar to what happened to me 18 month ago. It has slowly gotten better (almost gone). I take 30mg zymbalta. I don’t dare to stop it for fear it will come back.

I have varying symptoms daily from the neck down. They change throughout the day. I am still able to go about my normal routine, but the worry about progression is all-consuming. My symptoms are very uncomfortable but not necessarily painful. I have a desk job, but try to move about as much as I can. I force myself to get on the treadmill or walk briskly outdoors for 30-60 minutes 5-6 days per week. I have no loss of strength, which is good. I am not on any medication yet; just B-12, Vitamin D, and magnesium supplements. I tried venlafaxine and did not have a good experience. I am seeing a new neurologist at the end of March who specializes in neuropathy. If I get any new insight, I will share. Take good care and keep me posted.

This sound similar to what happened to me 18 month ago. It has slowly gotten better (almost gone). I take 30mg zymbalta. I don’t dare to stop it for fear it will come back.

Wow, 18 months ago? can you share what some of your symptoms were? was it nerve, muscle, pain tingling, or anything else? Do you have any neuropathy symptoms? I seem to be in the beginning of all being I was fine 6 months ago then this stupid stuff came on like gang busters

I have varying symptoms daily from the neck down. They change throughout the day. I am still able to go about my normal routine, but the worry about progression is all-consuming. My symptoms are very uncomfortable but not necessarily painful. I have a desk job, but try to move about as much as I can. I force myself to get on the treadmill or walk briskly outdoors for 30-60 minutes 5-6 days per week. I have no loss of strength, which is good. I am not on any medication yet; just B-12, Vitamin D, and magnesium supplements. I tried venlafaxine and did not have a good experience. I am seeing a new neurologist at the end of March who specializes in neuropathy. If I get any new insight, I will share. Take good care and keep me posted.

My Neuroligist told me if peripheral neuropathy starts mild it generally stays mild. If starts aggressively, it usually progresses rapidly. Have you heard that.