1. < Neuropathy
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Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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madison2023 | @madison2023 | Mar 3, 2023
In reply to @pitepalten "This sound similar to what happened to me 18 month ago. It has slowly gotten better..." + (show)
Profile picture for pitepalten @pitepalten

This sound similar to what happened to me 18 month ago. It has slowly gotten better (almost gone). I take 30mg zymbalta. I don’t dare to stop it for fear it will come back.

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I am so happy to hear that your symptoms are subsiding. I pray the same happens for me and others. Take good care.

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ccstahl | @ccstahl | Mar 3, 2023
In reply to @madison2023 "I have varying symptoms daily from the neck down. They change throughout the day. I am..." + (show)
Profile picture for madison2023 @madison2023

I have varying symptoms daily from the neck down. They change throughout the day. I am still able to go about my normal routine, but the worry about progression is all-consuming. My symptoms are very uncomfortable but not necessarily painful. I have a desk job, but try to move about as much as I can. I force myself to get on the treadmill or walk briskly outdoors for 30-60 minutes 5-6 days per week. I have no loss of strength, which is good. I am not on any medication yet; just B-12, Vitamin D, and magnesium supplements. I tried venlafaxine and did not have a good experience. I am seeing a new neurologist at the end of March who specializes in neuropathy. If I get any new insight, I will share. Take good care and keep me posted.

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I have has all the nerve conductivity and muscle tests with Nero and all are fine so he believes we have eliminated the bad scary things. But like you I have lots of odd symptoms daily that seem to eb and flow depending on day, the most annoying is the tingling everywhere some days and less others…it has decided to affect my cheeks with tingling and burning…I have to take gabapentin at bed time for RLS I believe…another annoying aspect to this…I continue with my PCP and neuro but they seem to be working to a slower pace than myself…would love some answers so I know what I am dealing with and get in a good treatment plan…take care and thanks for responding. It always helps to talk these things with people dealing with similar symptoms

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madison2023 | @madison2023 | Mar 3, 2023

I agree. Best wishes to you and please keep me posted.

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ccstahl | @ccstahl | Mar 3, 2023
In reply to @pitepalten "This sound similar to what happened to me 18 month ago. It has slowly gotten better..." + (show)
Profile picture for pitepalten @pitepalten

This sound similar to what happened to me 18 month ago. It has slowly gotten better (almost gone). I take 30mg zymbalta. I don’t dare to stop it for fear it will come back.

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Wow, 18 months ago? can you share what some of your symptoms were? was it nerve, muscle, pain tingling, or anything else? Do you have any neuropathy symptoms? I seem to be in the beginning of all being I was fine 6 months ago then this stupid stuff came on like gang busters

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pitepalten | @pitepalten | Mar 4, 2023
In reply to @ccstahl "Wow, 18 months ago? can you share what some of your symptoms were? was it nerve,..." + (show)
Profile picture for ccstahl @ccstahl

Wow, 18 months ago? can you share what some of your symptoms were? was it nerve, muscle, pain tingling, or anything else? Do you have any neuropathy symptoms? I seem to be in the beginning of all being I was fine 6 months ago then this stupid stuff came on like gang busters

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It was hard to explain. Like a sun burn almost everywhere. I could not sleep. I stood up most of the day. I had test done and no one could tell me what caused it. I had a dropped foot as well for about a month. That fixed itself too. I’m so happy it is almost gone after 1.5 years.

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gbrodnan1945 | @gbrodnan1945 | Mar 4, 2023
In reply to @madison2023 "I have varying symptoms daily from the neck down. They change throughout the day. I am..." + (show)
Profile picture for madison2023 @madison2023

I have varying symptoms daily from the neck down. They change throughout the day. I am still able to go about my normal routine, but the worry about progression is all-consuming. My symptoms are very uncomfortable but not necessarily painful. I have a desk job, but try to move about as much as I can. I force myself to get on the treadmill or walk briskly outdoors for 30-60 minutes 5-6 days per week. I have no loss of strength, which is good. I am not on any medication yet; just B-12, Vitamin D, and magnesium supplements. I tried venlafaxine and did not have a good experience. I am seeing a new neurologist at the end of March who specializes in neuropathy. If I get any new insight, I will share. Take good care and keep me posted.

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My Neuroligist told me if peripheral neuropathy starts mild it generally stays mild. If starts aggressively, it usually progresses rapidly. Have you heard that.

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madison2023 | @madison2023 | Mar 5, 2023
In reply to @gbrodnan1945 "My Neuroligist told me if peripheral neuropathy starts mild it generally stays mild. If starts aggressively,..." + (show)
Profile picture for gbrodnan1945 @gbrodnan1945

My Neuroligist told me if peripheral neuropathy starts mild it generally stays mild. If starts aggressively, it usually progresses rapidly. Have you heard that.

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I have not, but will see a new neurologist at the end of the month and ask.

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gbrodnan1945 | @gbrodnan1945 | Mar 5, 2023
In reply to @madison2023 "I have not, but will see a new neurologist at the end of the month and..." + (show)
Profile picture for madison2023 @madison2023

I have not, but will see a new neurologist at the end of the month and ask.

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Also ask doctor if low iron or ferritin can cause PN or make it worse. Has anyone heard that Anemia impacts PN

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bettyg81pain | @bettyg81pain | Mar 6, 2023
In reply to @madison2023 "I have varying symptoms daily from the neck down. They change throughout the day. I am..." + (show)
Profile picture for madison2023 @madison2023

I have varying symptoms daily from the neck down. They change throughout the day. I am still able to go about my normal routine, but the worry about progression is all-consuming. My symptoms are very uncomfortable but not necessarily painful. I have a desk job, but try to move about as much as I can. I force myself to get on the treadmill or walk briskly outdoors for 30-60 minutes 5-6 days per week. I have no loss of strength, which is good. I am not on any medication yet; just B-12, Vitamin D, and magnesium supplements. I tried venlafaxine and did not have a good experience. I am seeing a new neurologist at the end of March who specializes in neuropathy. If I get any new insight, I will share. Take good care and keep me posted.

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Do you have any negative reaction to magnesium? I did. Am taking two Pregabalin 25 mg at night and will increase it. Haven't heard of venlafaxine-not many doctors even deal with neuropathy-post what information you get.
I've tried acupuncture-maybe should have continued longer-low light lazer therapy for 14 sessions-nothing has seemed to be effective other than spending alot of $$.
After your visit with the new neurologist, let us know his/her theory for less pain.

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bettyg81pain | @bettyg81pain | Mar 6, 2023

The answer is YES!! I did have it somewhat in my feet; but, when I got COVID from my knees (calves especially)
were screaming with pain!! My internist was trying to help-the only slight help was a compound cream and having my legs on a heating pad

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