1. < Neuropathy

COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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gbrodnan1945 | @gbrodnan1945 | Mar 5, 2023
In reply to @madison2023 "I have not, but will see a new neurologist at the end of the month and..." + (show)
@madison2023

I have not, but will see a new neurologist at the end of the month and ask.

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Also ask doctor if low iron or ferritin can cause PN or make it worse. Has anyone heard that Anemia impacts PN

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bettyg81pain | @bettyg81pain | Mar 6, 2023
In reply to @madison2023 "I have varying symptoms daily from the neck down. They change throughout the day. I am..." + (show)
@madison2023

I have varying symptoms daily from the neck down. They change throughout the day. I am still able to go about my normal routine, but the worry about progression is all-consuming. My symptoms are very uncomfortable but not necessarily painful. I have a desk job, but try to move about as much as I can. I force myself to get on the treadmill or walk briskly outdoors for 30-60 minutes 5-6 days per week. I have no loss of strength, which is good. I am not on any medication yet; just B-12, Vitamin D, and magnesium supplements. I tried venlafaxine and did not have a good experience. I am seeing a new neurologist at the end of March who specializes in neuropathy. If I get any new insight, I will share. Take good care and keep me posted.

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Do you have any negative reaction to magnesium? I did. Am taking two Pregabalin 25 mg at night and will increase it. Haven't heard of venlafaxine-not many doctors even deal with neuropathy-post what information you get.
I've tried acupuncture-maybe should have continued longer-low light lazer therapy for 14 sessions-nothing has seemed to be effective other than spending alot of $$.
After your visit with the new neurologist, let us know his/her theory for less pain.

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1 reply
bettyg81pain | @bettyg81pain | Mar 6, 2023

The answer is YES!! I did have it somewhat in my feet; but, when I got COVID from my knees (calves especially)
were screaming with pain!! My internist was trying to help-the only slight help was a compound cream and having my legs on a heating pad

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madison2023 | @madison2023 | Mar 6, 2023
In reply to @bettyg81pain "Do you have any negative reaction to magnesium? I did. Am taking two Pregabalin 25 mg..." + (show)
@bettyg81pain

Do you have any negative reaction to magnesium? I did. Am taking two Pregabalin 25 mg at night and will increase it. Haven't heard of venlafaxine-not many doctors even deal with neuropathy-post what information you get.
I've tried acupuncture-maybe should have continued longer-low light lazer therapy for 14 sessions-nothing has seemed to be effective other than spending alot of $$.
After your visit with the new neurologist, let us know his/her theory for less pain.

Jump to this post

Will do. Magnesium hasn't bothered me. I take it in the evening to help relax before bed. I think Venlafaxine is more for anxiety but can help calm nerves. I felt it increased my anxiety and decreased my appetite, but I was only on it for a week and I have never been on anxiety medication before. My neurologist warned that it can upset your stomach (take with food), but often works well for her patients.

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1 reply
bettyg81pain | @bettyg81pain | Mar 6, 2023
In reply to @madison2023 "Will do. Magnesium hasn't bothered me. I take it in the evening to help relax before..." + (show)
@madison2023

Will do. Magnesium hasn't bothered me. I take it in the evening to help relax before bed. I think Venlafaxine is more for anxiety but can help calm nerves. I felt it increased my anxiety and decreased my appetite, but I was only on it for a week and I have never been on anxiety medication before. My neurologist warned that it can upset your stomach (take with food), but often works well for her patients.

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Thank you - How long have you had it and what do you do when you have really bad pain? Is there a specific drug that you can take for extreme neuropathy leg and foot pain (some days are better than others-
some are worse than others) It has got to be a nerve pain medication - aleve and tylenol just do not help hardly any. Thanks, Betty G.

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1 reply
madison2023 | @madison2023 | Mar 7, 2023

My symptoms started the day before Thanksgiving 2022. My symptoms are everchanging from extreme cold sensations, to pins and needles, and a sunburn feeling. Now I am also feeling a deep tissue ache. I occasionally take advil plus B-12 and magnesium. I have not needed stronger pain medication yet. I am just very uncomfortable and anxious. I know of others that take gabapentin. I hope you can get some relief.

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hotfeet | @hotfeet | Mar 26, 2023

Interesting results with Ivermectin for treating Covid/Vaccination induced PN. Hopefully this will help others.
https://www.scirp.org/journal/paperinformation.aspx?paperid=117112

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hello2 | @hello2 | Apr 5, 2023

HAS ANYONE EXPERIENCED NEUROPATHY AND NERVE PAIN FROM HEAD TO TOE FROM THE VACCINE AND/OR COVID?

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5 replies
madison2023 | @madison2023 | Apr 6, 2023
In reply to @hello2 "HAS ANYONE EXPERIENCED NEUROPATHY AND NERVE PAIN FROM HEAD TO TOE FROM THE VACCINE AND/OR COVID?" + (show)
@hello2

HAS ANYONE EXPERIENCED NEUROPATHY AND NERVE PAIN FROM HEAD TO TOE FROM THE VACCINE AND/OR COVID?

Jump to this post

I have neuropathy like symptoms from my neck down since late November. I believe that 2 covid boosters and having covid within a 6 month period has put my immune system into overdrive. My doctor instructed me to get the 2nd booster in October. I also had low B-12 and am in peri-menopause. I feel like all 3 of these things are contributing to my varying symptoms. I am scheduled for a nerve study later this month.

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hello2 | @hello2 | Apr 6, 2023
In reply to @hello2 "HAS ANYONE EXPERIENCED NEUROPATHY AND NERVE PAIN FROM HEAD TO TOE FROM THE VACCINE AND/OR COVID?" + (show)
@hello2

HAS ANYONE EXPERIENCED NEUROPATHY AND NERVE PAIN FROM HEAD TO TOE FROM THE VACCINE AND/OR COVID?

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Thank you for reaching out. My problems started 12/21 - I got my first booster the month before. My daughter had covid in 12/21. I got a really bad cold with a cough. I didn't go for testing because the wait was 3 to 4 hrs long and it was just before Christmas. I think I had covid. Each month my nerve problem was getting worst. Last month on MSNBC a congressman stated that ever since he had covid, he has had nerve problems from head to toe. I said to my husband OMG it sounds like me. I'm on 200 mg of Lyrica a day. It is helping, but there are days that are really tough. Good luck with your nerve study. Let me know how you make out.

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