Grover's Disease: What works to help find relief?

Has anyone experienced an itchy scalp from Grovers? If so, have you had good experiences with a shampoo/ conditioner that relieves the itching? Thanks!

Got GD around New Years 2023. Broke out virtually overnight. Suffered for about 6 weeks with red spots & ITCH! No topicals, Rx or OTC cremes/lotions/ointments did any good. Finally derm says decreasing dose of Prednisone should, in his words "Knock it down". It did! It did not return after 6 day descending dosage was complete. It's now been about 3weeks, and it has NOT returned w/a vengeance as some have said it may/would. My question is now this: while spots have faded, you can still clearly see where they were. #1) Will they fade away completely? #2) If GD does return, will these same spots again redden & become itchy. or will completely new spots appear in other locations? FYI, I had GD on upper outer thighs, sides of torso, lower back, rash on arms & elbows, some lower leg spots & even on my left foot. Currently taking Fish oil, Vit. D3, and L Lysine that I had. Also consuming one Cilantro smoothie/day, as I kind of like them. Thank you for any response/info regarding my two questions. Good luck to all with this horrendous affliction. Hoping my case stays in remission!

Have never heard anything good about Prednizone as a permanent treatment. Get on the Facebook Grover's Disease page and read about it. Steroids can be dangerous long term. I've never used it. I hope it worked for you. I have had GD for a very long time and the only thing that worked for a long time was Gabapentin, which worked for 13 years and then, just quit working.

I had a similar experience except that my GD began in August 2022. I began thinking it was an allergy and consulted an allergist, who prescribed a quadruple dose of Zyrtec. It did absolutely nothing, couldn't even tell that I was taking it. I saw a dermatologist who diagnosed Grover's and prescribed Triamcinolone Acetonide Ointment which at first helped with the itching but became less and less effective. I suffered for over five months using various OTC meds for the unrelenting itch: Biofreeze, Sarna, Witch Hazel, aloe/menthol/camphor concoctions, etc. Finally, I saw a second dermatologist. He prescribed the two-week diminishing dose of Prednisone as well as a double dose of Zyrtec. He explained that the Prednisone should "reset" my immune response and that the Zyrtec might take over after two weeks. The itching stopped almost immediately. My two weeks on Prednisone ended a week ago, and the itch has not returned. (I experienced some unpleasant side effects from the Zyrtec, however, and had to replace it with Allegra.) So far so good. Note that this does NOT involve long-term use of Prednisone which is, indeed, dangerous.

I am seeing lots of comments about cilantro. Can someone tell me about it? How to take it..how much?

I'm glad steroids worked for you; they did nothing for me.
Give your papule scars time, yes, they will go away. In my case it took over a year for them to completely heal. It took longer than that to not have pressure hurt my back and a massage would feel good today.
Cilantro did the trick for me, not one other treatment worked. After two years in remission, I started getting a few itchy, stinging papules starting to appear on front torso and then the back torso. I've been back to my blended cilantro. I did it daily for 2 weeks and now several times a week and have healed with no new erupted papules, however if I press hard on my skin on my upper back, I can feel a few little bumps under the skin. Previously all my breakouts had thousands of these little under the skin bumps. After my 2 years in remission my skin felt normal again. I was thinking I was cured, but now face the reality that this is a chronic disease and am vigilant and appreciate my good health today and take advantage of every blessed day without this debilitating disease.

I had a similar experience except that my GD began in August 2022. I began thinking it was an allergy and consulted an allergist, who prescribed a quadruple dose of Zyrtec. It did absolutely nothing, couldn't even tell that I was taking it. I saw a dermatologist who diagnosed Grover's and prescribed Triamcinolone Acetonide Ointment which at first helped with the itching but became less and less effective. I suffered for over five months using various OTC meds for the unrelenting itch: Biofreeze, Sarna, Witch Hazel, aloe/menthol/camphor concoctions, etc. Finally, I saw a second dermatologist. He prescribed the two-week diminishing dose of Prednisone as well as a double dose of Zyrtec. He explained that the Prednisone should "reset" my immune response and that the Zyrtec might take over after two weeks. The itching stopped almost immediately. My two weeks on Prednisone ended a week ago, and the itch has not returned. (I experienced some unpleasant side effects from the Zyrtec, however, and had to replace it with Allegra.) So far so good. Note that this does NOT involve long-term use of Prednisone which is, indeed, dangerous.