1. < Brain & Nervous System

Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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freeassange | @freeassange | Feb 6, 2023
In reply to @redladyjoni "Yes I was told it was anxiety also they put me on gabapentin and Valiums and..." + (show)
@redladyjoni

Yes I was told it was anxiety also they put me on gabapentin and Valiums and I still have them 24/7 this is been going on a little over 3 months well it's hitting the four-month mark almost now no help no diagnosis ugh

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GAbapentin is terrible don't take

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1 reply
cptpierce | @cptpierce | Feb 7, 2023
In reply to @freeassange "I experienced this yesterday after feeling sick and like was going to pass out. As I..." + (show)
@freeassange

I experienced this yesterday after feeling sick and like was going to pass out. As I laid down I started to experience what I call electrical buzzing that I could physically feel with my hand at any point on my body. This was not twitching. It felt like current running through body .
Is that what yall are experiencing?

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Nice username.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 7, 2023
In reply to @freeassange "I experienced this yesterday after feeling sick and like was going to pass out. As I..." + (show)
@freeassange

I experienced this yesterday after feeling sick and like was going to pass out. As I laid down I started to experience what I call electrical buzzing that I could physically feel with my hand at any point on my body. This was not twitching. It felt like current running through body .
Is that what yall are experiencing?

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Hi there @freeassange, welcome. I'm sorry you felt poorly yesterday. How odd it must have been to feel the sensation of an electric current running through your body. I have experienced similar symptoms from neuropathy and central sensitization syndrome.

Was yesterday your first bout with these symptoms?

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Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 7, 2023
In reply to @freeassange "GAbapentin is terrible don't take" + (show)
@freeassange

GAbapentin is terrible don't take

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My father and mother both take gabapentin and receive great benefit. Why do you feel so strongly about advising others to not take it? Have you had a poor experience with this medication?

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rudai | @rudai | Feb 7, 2023
In reply to @luckymspenny1 "I have had these internal fluttering, vibrations, or buzzing for almost 2 and half yrs now...." + (show)
@luckymspenny1

I have had these internal fluttering, vibrations, or buzzing for almost 2 and half yrs now. Started before I had Covid and I have never been vaccinated, that’s my choice for not injecting something into my body that I know nothing about, so please keep all those comments to yourself. I’m here to discuss the symptoms I experience like many others, I too experience them only when lying in my bed, upon waking or falling asleep. Once I’m awake, moving around I don’t experience the vibrational fluttering. I was very scared when they first started, talked with a few drs, heart,spine and general. All said it’s anxiety, I do not believe it because I have no anxiety or stress in my life anymore, yet they are still present. I have had several tests for heart, MRI, and nothing seems to pin point the problem. I believe it has something to do with my central nervous system. All the other drs just want to push drugs on me. I am taking gabapentin and high blood pressure meds. If anyone finds any answers as to what this is or the cause, please share with the rest of us. Thanks

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I,too, am having these symptoms. I was thinking it was connected to Covid until reading your post. Have you heard of Central Nervous System Sensation? It can be found on the Mayo Clinic web site. With so many folks experiencing this, I now think it may be a side effect of WiFi and digital transmission.

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rudai | @rudai | Feb 7, 2023
In reply to @potta54321 "Hey there, my name is Tony. I am ending my second year with internal vibrations uncontrollable..." + (show)
@potta54321

Hey there, my name is Tony. I am ending my second year with internal vibrations uncontrollable sweating and extreme anxiety. I thought it had something to do with the Covid vaccinations. I have been to the emergency room three times and they keep telling me I have a cute anxiety. They put me on Xanax but it does not take the vibration away from my innards. My body shakes all over and especially within my organs and my chest. It’s even hard to communicate with society with this going on. It was my birthday yesterday. We were in a 69° room. My entire family knows about this but saw it firsthand yesterday when I was dripping from my nose and my eyelids as well as my ears. I don’t know what it is and I have seen five doctors for it. I have tested for Lyme disease, Rocky Mountain spotted fever, a bad heart or failing organs. I checked out without problems. When a task at hand comes to mind I start sweating uncontrollably. Even writing this message I have begun to sweat. I’m not sure what it is but I wish somebody would figure it out. I’ve had the Covid vaccinations with the booster. I’m pretty sure that’s when it all started. If anybody has any ideas about what is going on, I begged you to tell me how to fix it. My quality of life is gone. My doctor has given up on it since he can’t figure it out. I live in Richmond Virginia. If anyone has any ideas, I will grasp at them. I’m terribly sorry for anyone else going through this because it is by far the worst thing I have ever been through. And it never ends.
Tony-
I need help. Right before this started I bought an old farmhouse do you live in but it needs an astronomical amount of work to get it there. I started out strong but when this hit me, I am unable some days to even drive out there. What is this? Honestly! We need to find out what this is. Thanks for reading my message. I hope to hear back from somebody. Cheers

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Look up CSS, Mayo Clinic doc does a YouTube video on it.

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1 reply
Mentor
Rachel, Volunteer Mentor | @rwinney | Feb 8, 2023
In reply to @rudai "Look up CSS, Mayo Clinic doc does a YouTube video on it." + (show)
@rudai

Look up CSS, Mayo Clinic doc does a YouTube video on it.

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Good morning @rudai, @potta54321, @freeassange and others -

Periodically I post about Central Sensitization Syndrome (CSS) for newer members experiencing odd, annoying and somewhat unexplained symptoms.
@rudai, thank you for mentioning CSS. Allow me to post Dr. Sletten's video about chronic pain and the science behind central nervous system sensitization.

Mayo Clinic's Dr. Sletten presents on Central Sensitization Syndrome:


I hope this video brings clarity as to how and why our body's CNS can upregulate and cause confusing, disruptive symptoms like internal vibrations. The good news is that there are ways of managing, coping and working through symptoms to help quell them over time.

Here's more on Mayo Clinic's Pain Rehabilitation Center:

Mayo Clinic PRC locations and contact info -

- https://www.mayoclinic.org/about-mayo-clinic/contact

Mayo PRC Comprehensive Program -

- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

I graduated from Florida's Pain Rehab Center 2 years ago and it was a life-changing experience. I'm pleased to share more if anyone is interested.

@rudai, @potta54321, @freeassange and others - do you mind getting back to me after watching the video on CSS, and letting me know if you found the information helpful?

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cez1981 | @cez1981 | Feb 13, 2023

Hello,
Im 40 years old and been living with these issues for several years now becoming worse with time.
Currently is call it a flare up but I get severe internal vibrations through out my entire body. The vibrations do not stop I get severe muscle spasms in legs, feet(feels like toes are going to pry foot apart) and hands that often cause me to drop things or fall. I get muscle jerks which feel very different more like a rubber band snap but my muscle pulling inward ( abdomen, arms and legs). I have joint pain in hips, wrist, elbos and feet. I cant sleep constantly in pain or movement. Im beyond fatigued unsure from sleep loss or pain. My brain is a mess with migraines and liss of attention and retention of memory.
2017 I had Valley Fever pretty bad and it was dormants. My vibrations and pain started in 2018 and infectious disease docs at VA hospital declared not related. It took till 2021 for VA to get me into neurologist that found some brain lesionsin frontal left lobe and labs showing I had internal shingles. I was medicated and felt great for about 6 months then back again while I was pregnant and increased with issues and pain after pregnancy. I currently am waiting to see a diff neurologist but appointments keep getting pushed back. I am on duloxetine60mg for depression and hopes would help pain and vibrations. It seems that i will get about 2 month gaps when feel pretty good then one day it all flares up again for months. It calms as fast as it comes on but been this way for several years. Only thing that mildly help is very and I mean very hot baths. Any insight or valudation Im not crazy and what Im going through would be great!

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3 replies
hope23 | @hope23 | Feb 14, 2023
In reply to @cez1981 "Hello, Im 40 years old and been living with these issues for several years now becoming..." + (show)
@cez1981

Hello,
Im 40 years old and been living with these issues for several years now becoming worse with time.
Currently is call it a flare up but I get severe internal vibrations through out my entire body. The vibrations do not stop I get severe muscle spasms in legs, feet(feels like toes are going to pry foot apart) and hands that often cause me to drop things or fall. I get muscle jerks which feel very different more like a rubber band snap but my muscle pulling inward ( abdomen, arms and legs). I have joint pain in hips, wrist, elbos and feet. I cant sleep constantly in pain or movement. Im beyond fatigued unsure from sleep loss or pain. My brain is a mess with migraines and liss of attention and retention of memory.
2017 I had Valley Fever pretty bad and it was dormants. My vibrations and pain started in 2018 and infectious disease docs at VA hospital declared not related. It took till 2021 for VA to get me into neurologist that found some brain lesionsin frontal left lobe and labs showing I had internal shingles. I was medicated and felt great for about 6 months then back again while I was pregnant and increased with issues and pain after pregnancy. I currently am waiting to see a diff neurologist but appointments keep getting pushed back. I am on duloxetine60mg for depression and hopes would help pain and vibrations. It seems that i will get about 2 month gaps when feel pretty good then one day it all flares up again for months. It calms as fast as it comes on but been this way for several years. Only thing that mildly help is very and I mean very hot baths. Any insight or valudation Im not crazy and what Im going through would be great!

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Hi. I am sorry you are faced with this and no answers to date.
I did find your post interesting. I have had an internal vibration that wakes me from my sleep only since March 2021. I feel mine in my thoracic area. However, I too had INTERNAL shingles in oct of 2020 continued suppression therapy until dec of 2020. I have experience 2 more upticks of internal shingles suspected on my part then confirmed with IGM and IGg testing for shingles. My PC has recommend I see an neuroimmunologist to evaluated the reoccurrence of shingles. Could you be having a reoccurrence of shingles? Are the lesions suspect of MS? This was another diagnosis that my rheumatologist has ruled out autoimmune disease now with blood tests of your ANA tiger which is markers to evaluate inflammation in your body. I do experience hip and groin pain, fatigue, and lots of burning( working with a pelvic physical therapist right now) on left side only as well as left thoracic pain and pulling and nightly vibration. I would be interested to know if shingles is playing a part in this vibration. No muscle relaxer or gabapentin is a help. Valacyclovir to for suppression of shingles. Only antibiotic ciproflaxin and doxcycline has almost eliminated the burning pain in hips, lower back, groin but not the vibration in my thoracic. ( cipro made it worst in my hands at night thrust awake). In the middle of 14 day dose of doxicycline for overgrowth of ureaplasma which can spread beyond the pelvis I just found out. I hope they have checked your magnesium levels with muscle cramping too. Hope you get some answers. My sanity comes from the app “Insight timer” meditations, talks, music for sleep and calming the sympathetic nervous system. It’s got 195000 free mediations to try! Don’t give up!

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1 reply
khali | @khali | Feb 14, 2023
In reply to @cez1981 "Hello, Im 40 years old and been living with these issues for several years now becoming..." + (show)
@cez1981

Hello,
Im 40 years old and been living with these issues for several years now becoming worse with time.
Currently is call it a flare up but I get severe internal vibrations through out my entire body. The vibrations do not stop I get severe muscle spasms in legs, feet(feels like toes are going to pry foot apart) and hands that often cause me to drop things or fall. I get muscle jerks which feel very different more like a rubber band snap but my muscle pulling inward ( abdomen, arms and legs). I have joint pain in hips, wrist, elbos and feet. I cant sleep constantly in pain or movement. Im beyond fatigued unsure from sleep loss or pain. My brain is a mess with migraines and liss of attention and retention of memory.
2017 I had Valley Fever pretty bad and it was dormants. My vibrations and pain started in 2018 and infectious disease docs at VA hospital declared not related. It took till 2021 for VA to get me into neurologist that found some brain lesionsin frontal left lobe and labs showing I had internal shingles. I was medicated and felt great for about 6 months then back again while I was pregnant and increased with issues and pain after pregnancy. I currently am waiting to see a diff neurologist but appointments keep getting pushed back. I am on duloxetine60mg for depression and hopes would help pain and vibrations. It seems that i will get about 2 month gaps when feel pretty good then one day it all flares up again for months. It calms as fast as it comes on but been this way for several years. Only thing that mildly help is very and I mean very hot baths. Any insight or valudation Im not crazy and what Im going through would be great!

Jump to this post

Hi, I have those internal vibrations and it raises my blood pressure. It gives me bad headaches and I am going crazy, neurologist don't know what is but I have white matter brain disease that I found on MRI wish I could find a resolution because it 's very bad.

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