1. < Heart Rhythm Conditions

Heart Rhythm Conditions – Welcome to the group

Posted by Kanaaz Pereira, Connect Moderator @kanaazpereira, Feb 14, 2018

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

hunby2blas | @hunby2blas | Jan 23, 2023
In reply to @cabin92 "Thank you so much for your advice. That is exactly what I will do. So comforting..." + (show)
@cabin92

Thank you so much for your advice. That is exactly what I will do. So comforting to know I am not alone.
How are you dealing with your PACs?

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I have been on metropol and flecainde acetate S needed since I am not the same every day my Dr let's me adjust my meds but keeps in contact closely, I have a inserta le heart monitor under the skin

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hunby2blas | @hunby2blas | Jan 24, 2023
In reply to @elizaolson "I have a slow heart beat. From the beginning of my teenage years, my heart rate..." + (show)
@elizaolson

I have a slow heart beat. From the beginning of my teenage years, my heart rate was 72 and I was comblimented for such a low heart beat. then a few years ago, I would suddenly have difficulty staying awake at meetings and at the computer. Then one Monday morning, I had difficulty staying awake. I decided to contact the 811 for advice. The nurse directed to my doctor immediately. He sent me off to the Emergency Room immediately. A few weeks later I was called in to have a pacemaker put in my chest. I haven't had problems with it. I am wondering if I can have lazar treatment with my acupuncture treatment along with my acupuncture. The lazar treatment is separate from my acupuncture treatment. e.g. no use of acupuncture needles attached to the lazar machine. The other problem I have is spinal stenosis.

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i would not do it find a qualified medical dr , like for example mayo clinic gives you a throrough evaluation before they even thinkof givingyou a treatment.

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1 reply
elizaolson | @elizaolson | Jan 24, 2023
In reply to @hunby2blas "i would not do it find a qualified medical dr , like for example mayo clinic..." + (show)
@hunby2blas

i would not do it find a qualified medical dr , like for example mayo clinic gives you a throrough evaluation before they even thinkof givingyou a treatment.

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I finally contacted my cardiologist today. I hope he gives me a call back. Either way, I am booked to see him Feb. 141th--very appropriate. I will discuss it with him.
Thanks for replying.

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pvctom2021 | @pvctom2021 | Jan 28, 2023
In reply to @brightwood "This is my first post. I’m also 76 and have had palpitations for years, a dry..." + (show)
@brightwood

This is my first post. I’m also 76 and have had palpitations for years, a dry cough for longer, and lightheaded spells/ shortness of breath for the last six months or so.. Long story short, I finally got a diagnosis for silent reflux (while wearing a 30- day event monitor) in mid-December. It reported a 4.5 second electrical silence on January 1st, and I had a two-lead pacemaker implanted on the 5th. I can’t wait for my healing to get to the point where I can ditch the Velcro brace at night and start getting normal sleep on my left side again. It’s nice to tell this to someone who understands.

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Thanks for your reply...I woke up again last night at 4:10 am with this awful thud, pause, thus pause, thus pause, I had to sit up in bed for my rhythm to get back to normal...it shows on the holter report as ventricular trigeminy .... I hope 🤞 this post finds you feeling better..

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pvctom2021 | @pvctom2021 | Jan 28, 2023
In reply to @bettersleep68 "I started heart palpitations a month ago ..horrible and makes you nervous..went to cardio..increased metropol to..." + (show)
@bettersleep68

I started heart palpitations a month ago ..horrible and makes you nervous..went to cardio..increased metropol to 50mg..ekg normal..might be from stress but I wish they would go away..any tips on how to tolerate them...

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I sometimes have to take a Klonopin along with the beta blocker Lopressor...hope this helps

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brightwood | @brightwood | Jan 28, 2023
In reply to @pvctom2021 "Thanks for your reply...I woke up again last night at 4:10 am with this awful thud,..." + (show)
@pvctom2021

Thanks for your reply...I woke up again last night at 4:10 am with this awful thud, pause, thus pause, thus pause, I had to sit up in bed for my rhythm to get back to normal...it shows on the holter report as ventricular trigeminy .... I hope 🤞 this post finds you feeling better..

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Indeed, I found my palpitations (and maybe other rhythm irregularities) to very related to positions like lying in bed or sitting back in my favorite chair, but my pacemaker has all but eliminated those scary moments at night when my heart seemed to be doing the polka.

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jlf2 | @jlf2 | Jan 30, 2023

Hi my name is Jerrilyn
I was recently diagnosed with IVCD don’t know a whole lot about this but
I am learning 2 weeks ago went to the ER with very high Blood pressure and it turned into angina or that’s what the tell me anyway I believe I was on my to a heart attack when they gave me nitro 2 pills one and then one five minutes later it took about 10 minutes but it stopped the pain I stayed in the hospital till the next evening and then they sent me home after more test I’m now on a halter monitor for 14 days
But not knowing much about IVCD has me afraid to sleep some nights if my BP is up anyone have any advice for me

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mcnabbjulie | @mcnabbjulie | Feb 5, 2023
In reply to @hopeful33250 "@kanaazpereira Thank you for starting this discussion group! I too, had my first experience with tachycardia..." + (show)
@hopeful33250

@kanaazpereira

Thank you for starting this discussion group! I too, had my first experience with tachycardia (fast heart beat) when I had a minor outpatient surgery. After that experience I obtained the anesthesiologist's records from that surgery (that showed when my heart rate increased and what meds they used to bring it down) and any time I have surgery at a different hospital I take that record with me and show it to the anesthesiologist. Most anesthesiologists gladly look at it and assure me that they will keep a watch out for tachycardia.

Since that surgery, I've had other times when my heart rate has increased, once during a stress test, and once when I got very busy and tired. I now take a small amount of a beta blocker at noon and that keeps everything under control.

Once when I had the rapid heart rate during a stress test, the cardiac RN suggested coughing, when that didn't work she suggested "bearing down" like you were trying to have a bowel movement. When that didn't work she gave me an injection which brought everything back to normal, but I certainly was tired when all was said and done.

Someone mentioned staying away from caffeine - I have a friend with A-Fib and she told me that caffeine is often in cosmetic products and they affect her A-Fib as well. So we should all read the labels of skin care/hair products before using.

I'm glad to hear of everyone's experience. I learn so much from hearing the experiences of others.

Teresa

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I am about to turn 52 and I have a gas to/ heart issue. I have had anxiety all my life. Started with butterflies in the pit of my stomach and progressed to IBS and esophageal spasms. Just recently PVCs/PACs. I have been told they are related to anxiety. I have kept a diary and I only notice them when I’m aggravated or I am real gassy from my IBS flare or certain foods. They wanted me to take propranolol for it however I really don’t want to take that medication. Any suggestions on how to manage a flare up?

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1 reply
Mentor
Dana, Volunteer Mentor | @danab | Feb 5, 2023
In reply to @mcnabbjulie "I am about to turn 52 and I have a gas to/ heart issue. I have..." + (show)
@mcnabbjulie

I am about to turn 52 and I have a gas to/ heart issue. I have had anxiety all my life. Started with butterflies in the pit of my stomach and progressed to IBS and esophageal spasms. Just recently PVCs/PACs. I have been told they are related to anxiety. I have kept a diary and I only notice them when I’m aggravated or I am real gassy from my IBS flare or certain foods. They wanted me to take propranolol for it however I really don’t want to take that medication. Any suggestions on how to manage a flare up?

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Hi and Welcome to connect, yes I can relate to your issue. I am also someone that can get real anxious when upset or just not knowing why I'm having this strange feeling in my chest. I found that for me it was first to determine if it was my heart or stomach as the symptoms sometimes are almost the same. So when I would feel one I would first check my pulse. I got real good at finding it so it only took a second. If it felt fine I would then tell myself, sometimes if alone I would actually yell at myself , that it was nothing to worry about. But if I noticed some skipped beats then I realized it was just some of those and relax maybe lye down and listen to something to take my mind off of it. I hope that helps and I might note don't feel for a pulse more than a few seconds or you may get anxious just anticipating something is about to happen. Maybe like 10 seconds just to verify it's more likely your stomach and not your heart.
Blessings

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dj5484 | @dj5484 | Feb 7, 2023

Hi, I am new to the group and this is my first post. I am 61 woman. I have had four ablations, the last one was Nov 28,22 I have developed PVC's and PAC's and continue to have some mild SVT's but NO afib, or other arrhythmias I was having. I asked to try verapamil again, and have been on it for two weeks, the SVT's have stopped but not the PVC and PAC's which are very symptomatic. My EP has suggested I go in the hospital and start Tikosyn. I don't want to. There must be another choice....and if PAC and PVC are not dangerous why would he suggest such an aggressive treatment? HELP

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