COVID vaccines and neuropathy

What type of infusions are you receiving ?

IVIG

Thank you for your reply. If you are on Medicare, did Medicare approve the IVIG? My doctor has not even suggested this treatment .

Hello,

I have SFN. I did okay with the first two Pfizer shots. I got the booster- did not affect neuropathy but had other issues like swollen lymph nodes, etc that did resolve a couple weeks after. I got COVID last May. I had a lot of edema throughout my body which worsened the neuropathy. It was reducing months later but not gone. I now have long covid. I got another booster two months ago and did notice increased numbness (I think from swelling), and I had flue like symptoms, lymph node swelling , etc.. I think the neuropathy went back to its “normal” level of numbness and nerve pain. Just in case this info helps anyone. I am 37, and was diagnosed 9 years ago when the nerve pain got debilitating

I am on Medicare and secondary insurance. Medicare pays on my Medicare B and the other picks up the rest. It is very expensive medicine. I get it 2 days together a month. The infusion takes 4-5 hours each day. I usually sleep through it. I'm a beginner on this med.

Not after the vaccine, but mine came back (after being alleviated with infrared the year before) with a vengeance after I had Covid. Still bad and now it’s in my hands.

Is anyone watching this? It is AMAZING and full of info....
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For anyone who has been diagnosed with Covid or Covid-vaccine autoimmune-driven neuropathy, can you share how the diagnosis was made? My MD is looking for specific antibodies for non-Covid autoimmune confirmation, but I assume that anyone who had Covid or the vax will have the expected antibodies, so there must be something else they look at. Thank you.

I developed sensory and motor polyneuropathy after the Pfizer vaccine x 2. My neurological symptoms began within 2 weeks of the first vaccine but peaked 7 months later. That delay is consistent with autoimmune-mediated nerve damage. At the same time that my neurological symptoms were peaking, my ANA titer increased 4-fold. I had never had autoimmune issues before. I also repeatedly tested positive for Sjogren's B autoantibody, but not Sjogren's A, which is unusual. Extensive testing ruled out Sjogren's Disease. Since the peak of my vaccine reaction, I have been slowly improving. Based on my prior excellent health, relatively acute timeline for the nerve damage, autoimmune titer, and gradual improvement once I stopped the vaccines, my outstanding neurologist agreed the likely cause of my neuropathy was the vaccine. There may be more specialized autoantibody testing available from research labs, but I haven't resorted to that because my symptoms are improving.

I had peripheral neuropathy I believe as a result of having COVID in 2019 before anyone here knew of it. A few months later, I got tremors first in the leg/hip where the neuropathy was. Then I got Omicron and then in my hand and neck where I had many issues over the course of the last decade or so, and that also left me with a tremor. I have been diagnosed with Parkinsons in May of this year. I think the tremors are a result of the COVID. So sad to read here how many people have suffered from the shots. I'm glad I didn't get those. The COVID is detrimental enough on it's own. https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd202211