Anyone had a problem with neuropathy after receiving the vaccine?

Hello,

I have SFN. I did okay with the first two Pfizer shots. I got the booster- did not affect neuropathy but had other issues like swollen lymph nodes, etc that did resolve a couple weeks after. I got COVID last May. I had a lot of edema throughout my body which worsened the neuropathy. It was reducing months later but not gone. I now have long covid. I got another booster two months ago and did notice increased numbness (I think from swelling), and I had flue like symptoms, lymph node swelling , etc.. I think the neuropathy went back to its “normal” level of numbness and nerve pain. Just in case this info helps anyone. I am 37, and was diagnosed 9 years ago when the nerve pain got debilitating

I am on Medicare and secondary insurance. Medicare pays on my Medicare B and the other picks up the rest. It is very expensive medicine. I get it 2 days together a month. The infusion takes 4-5 hours each day. I usually sleep through it. I'm a beginner on this med.

Not after the vaccine, but mine came back (after being alleviated with infrared the year before) with a vengeance after I had Covid. Still bad and now it’s in my hands.

Is anyone watching this? It is AMAZING and full of info....
https://event.drtalks.com/long-haul-syndrome-summit/free-access-day-2/

For anyone who has been diagnosed with Covid or Covid-vaccine autoimmune-driven neuropathy, can you share how the diagnosis was made? My MD is looking for specific antibodies for non-Covid autoimmune confirmation, but I assume that anyone who had Covid or the vax will have the expected antibodies, so there must be something else they look at. Thank you.

I developed sensory and motor polyneuropathy after the Pfizer vaccine x 2. My neurological symptoms began within 2 weeks of the first vaccine but peaked 7 months later. That delay is consistent with autoimmune-mediated nerve damage. At the same time that my neurological symptoms were peaking, my ANA titer increased 4-fold. I had never had autoimmune issues before. I also repeatedly tested positive for Sjogren's B autoantibody, but not Sjogren's A, which is unusual. Extensive testing ruled out Sjogren's Disease. Since the peak of my vaccine reaction, I have been slowly improving. Based on my prior excellent health, relatively acute timeline for the nerve damage, autoimmune titer, and gradual improvement once I stopped the vaccines, my outstanding neurologist agreed the likely cause of my neuropathy was the vaccine. There may be more specialized autoantibody testing available from research labs, but I haven't resorted to that because my symptoms are improving.

I had peripheral neuropathy I believe as a result of having COVID in 2019 before anyone here knew of it. A few months later, I got tremors first in the leg/hip where the neuropathy was. Then I got Omicron and then in my hand and neck where I had many issues over the course of the last decade or so, and that also left me with a tremor. I have been diagnosed with Parkinsons in May of this year. I think the tremors are a result of the COVID. So sad to read here how many people have suffered from the shots. I'm glad I didn't get those. The COVID is detrimental enough on it's own. https://content.iospress.com/articles/journal-of-parkinsons-disease/jpd202211

I have not been diagnosed but my experience may help:

I am in Melbourne, Australia and have had zero professionals tell me this could be related to the Covid vaccine/Covid 19. Yesterday I had a brain MRI to see if I have MS.

I am not an anti-vaccine person. I had two AstraZeneca vaccines and absolutely no reaction (May and July 2021). Then in January 2022 I had the Pfizer Comirnaty vaccine. An hour after having the vaccine I started feeling like "when you go to the dentist and the anaesthetic starts wearing off and everything is numb and tingly". This started in my face and hands and progressed to my whole body.

In July 2022 I had what I would call a fairly mild case of Covid 19 (Omicron BA.4 or BA.5).

Now, a year on the symptoms are returning much stronger where I have the pins and needles almost constantly somewhere in my body.

Before the Pfizer vaccine/Covid 19, I would say I was a fit and healthy woman in her early 50s. I have suffered from menstrual migraines and have ADHD but manage both of these conditions really well.

Yes, vaccines can cause neuropathy.
I've researched vaccines side effects prior to not getting covid vaccines.
My neuropathy probably started after some unnecessary flu or hepatitis vaccines.
But doctors won't tell you that before suggesting one, or two.....

Thank you so much for sharing your experience. There are so many unanswered questions surrounding Covid vaccines and Covid itself. I’m sorry to hear about your situation. I wish you well.