Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for vinran @vinran

I can only tell you that yes I got it suddenly after 72 years on this earth
and I never had any such thing (Covid shots?). To this day, almost 75 now, not one Neurologist, doctor nor Surgeon has an answer as to why.
Vince

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Did you have covid prior to getting neuropathy??

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Profile picture for mickey1778 @mickey1778

Did you have covid prior to getting neuropathy??

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No not Covid but all the vaccines

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Profile picture for bustrbrwn22 @bustrbrwn22

@kathleen123 Please keep us posted. We care

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After receiving the first johnson and johnson shot; my neuropathy went wild. Did not get the second shot and will not get any other covid vaccinations.

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Yes. I got SFN after 3rd. modern shot. I also had a pancreatitis attack when I did not have problems with the pancreas. I was sick for 5 days after the shot and was out of it with fever and lost 8 pounds in those 5 days. I'm 68 and no more covid shots for me.

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I got the second covid shot (Moderna) on 4-12-2020 (wed) sweat & chills for 48 hours then on fri started with hot sensation in feet & face & just kept progresing. It took 6 months of all the "rule out" tests blood, A1c, B12, STD's, all tick bourn diseases, 24hr uine test(cancer),MRI's, EMG, LP & Finally the skin biopsy which indicated SFN. Do i think the covid shot caused it? most likely Not. I do believe that the extreme imune response to the morderna shot triggred something that caused my SFN to surface. Ed

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Oct. 22 2021 I had an EMG done. I have light neuropathy in my feet then. Jan. 22 2022 I had my 3rd. Moderna shot. I was deathly ill at home for 5 days in and out with fever. Lost 8 pounds. Then I got a pancreatitis attack and had to go to the ER and I never had a problem with it and I'm not diabetic. Then shortly after my left thumb went numb. Next thing you know both my hands are small fiber neuropathy and now feet are worse then ever. I am now receiving 2 days a month an infusion. I am not happy with where the SFN came from. Before the 3rd. shot I had no problem with the first two vaccines. This is my experience as of today. I wish you the best. I'm 68 now. Denise

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Profile picture for neenee2k @neenee2k

Oct. 22 2021 I had an EMG done. I have light neuropathy in my feet then. Jan. 22 2022 I had my 3rd. Moderna shot. I was deathly ill at home for 5 days in and out with fever. Lost 8 pounds. Then I got a pancreatitis attack and had to go to the ER and I never had a problem with it and I'm not diabetic. Then shortly after my left thumb went numb. Next thing you know both my hands are small fiber neuropathy and now feet are worse then ever. I am now receiving 2 days a month an infusion. I am not happy with where the SFN came from. Before the 3rd. shot I had no problem with the first two vaccines. This is my experience as of today. I wish you the best. I'm 68 now. Denise

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What type of infusions are you receiving ?

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In reply to @neenee2k "IVIG" + (show)
Profile picture for neenee2k @neenee2k

Thank you for your reply. If you are on Medicare, did Medicare approve the IVIG? My doctor has not even suggested this treatment .

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