Body vibrations when falling asleep or waking?

I have had 2 COVID vaccine plus a booster. Also had COVID in June of 22. It’s now December 22 and I’m having this feeling of internal shaking multiple times a week. It happens when I wake up and also when going to sleep. Happens more often when waking though. I’ve been having this feeling for about 12 years. It was sporadic at first and then it basically went away for a few years and now it’s back and happening much more frequently. I had breast cancer 6 years ago and also had a hysterectomy. In addition to shaking upon waking up I also have severe hot flashes when I wake up.

@rubyinparadise, I had a hysterectomy and both ovaries removed. Also due to breast cancer, I take anastrozole (eliminates estrogen production). I do use estradiol though. I was thinking my internal vibrations may be due to lack of hormones.

I am also a vegetarian and I get vibrations throughout my body…. Interesting.

It could be. My other theories are sleep deprivation and post-COVID syndrome. My vibrations mostly stopped when i started estradiol, but maybe you need to up your dosage? I still twich and jerk a lot when sleep-deprived. Especially in that zone when I'm finally relaxing and drifting off to sleep. I hope you find answers.

I was taking vaginal estradiol very low dose because I too had breast cancer, double mastectomy, ovaries out and hysterectomy. I was on tamoxifen first 10 years. I guessed the estradiol caused insomnia and stopped taking it to see if that would help w insomnia and anxiety. Then I was given several pharmaceuticals that I think clouded the issues. After coming off of the meds, im experiencing the vibrations more and using some natural sleep/relaxation aids— melatonin and herbal supps.
Wondering if all of these symptoms could be covid related or covid vaccine related. Thanks for your input.

I also had breast cancer and had an implant. Was on chemo and tamoxifen. Not taking any estrogen. Interesting that most people having the vibrations are women so the possibility of a hormone imbalance cannot be discounted. I haven't eliminated my implant from causing the vibrations either since they are across my thorax.

Great explanation! The same exact thing happens to me. It's definitely a tingling but it's not an unpleasant feeling. It's relaxing.

My sleeping pattern has been off for many years, but once 4-5 a.m. hits, my body begins to "vibe" and "buzz," and it can last for several hours. I haven't found any information on it. The only conclusions I've come to is hormonal changes, which occur throughout the night, anemia or some other vitamin deficiencies, or the lack of sleep causing some type of reaction.

I have a few disorders, and some of them could possibly be nerve issues, but nothing has been substantiated yet. Tests and radiologic and physical has been inconclusive.

Do you have any nerve disorders or vitamin deficiencies?

I am so glad to come across this answer. It absolutely fits my same symptoms and a very stressful last couple of years, but only recently I have developed this strange body/brain buzzing while falling asleep. This answer makes total sense.
Thank you.

I occasionally have these vibrations when waking. I have described as feeling like an electric current is running through me. I actually shake slightly from my head to my toes. I am glad to hear it has a name and is normal!

For all those wondering if this could be related to COVID and/or the COVID vaccines/boosters - the answer is a resounding YES. There are other causes of course, that need to be ruled out. However, I got COVID very early and researched these vibrations and tremors, and at the time absolutely nothing explained the specific pattern I was getting. Now, you can find it all over the place as an acknowledged long-COVID issue.

For me too, I had a rather severe onset, felt like I was being shaken out of bed, every surface felt like it was vibrating. In the absence of any reasonable explanation or access to hospitals (we were in lock-down at the time) I believed it was environmental. After a few months I realized it was systemic and I had almost 6 months of not sleeping except short crashes due to the severity of my physical responses during "sleep". Eventually i did learn to fall asleep into it for a few hours at a time, and my pattern since then has been internal buzzing and vibrations beginning while falling asleep and worsening the longer I sleep - so I wake up feeling terrible and disoriented, with a variety of sensory issues as well (tinnitus, strange smells, blurry vision, tongue and jaw vibrations). The vibrations can continue to a lesser extent during the day but seem to lessen with physical movement and mental focusing on something (anything) - work, games, movies, conversation.

Lots of neuro consults with little to show for it, from long-COVID clinics as well. Diagnosis with autonomia (not POTS), short-fiber neuropathy, probably glial cell activation. The good news (and there isn't much) is that all the sensory issues and peripheral neuropathy that come with this are reversible - they come and go as the CNS symptoms improve or worsen. So that's one worry off the plate. It is not ALS or MS or Parkinson's. More good news. Still, it's been three years. Lots and lots and lots of long-COVID people have this, and it is exacerbated by boosters. The consensus seems to be brain inflammation as well as general body inflammation causing CNS over-activation of the sympathetic (fight-or-flight) system. Given that it has recently been demonstrated that we have COVID reservoirs in various parts of our bodies (including nasal cavities, brain, gut, heart/lungs) it is not that surprising I guess that our bodies are still "fighting".

About the only thing that helps is anything to reduce inflammation, including a wide variety of supplements and some foods, anything that helps nerve and brain health and regeneration, avoiding alcohol and sugar, a keto or high-fat diet for nerve health, paradoxically getting more sleep which is very hard to do, and dealing with the inevitable mental health issues caused by the despair and lack of sleep. Our best hopes long-term rely on eradication of viral reservoirs, reduction of resulting inflammation, nerve regeneration after that. No-one knows if there will be irreversible damage that causes the vibrations to continue since we've never gotten to the point where these other covid-related factors have been addressed.