Chronic Pain members - Welcome, please introduce yourself

Hi Rachel and everyone. My CRPS is continuing to progress. It started on left upper body and in last week continued now to right upper body and in last 48 hours into my left toe.
I saw on this sight a treatment called Ketamine Pain Treatments. I've followed up and found that the head doctor at UPMC Pittsburgh, Pa. pain manag ,Where I live, does these and called his office this morning. His nurse told me that he was booked until late January. I explained my situation. I recieved a call back an hour later that they had a cancellation. on 1/9/23. I jumped at it. I understand that the Ketamine treatment is not covered buy any insurance.
Any idea how much each treatment will cost me? Depending on haw much I may have to do a reverse mortgage on my home.Pleae respond from anyone as how much this will cost me. Please advise. Thank's Darryl

Hello I’m Susan. I have fibromyalgia, osteoarthritis, occipital neuralgia, and peripheral neuropathy.
Unfortunately, my body is extremely sensitive to drugs like Lyrica, gabapentin, and even Tylenol. I take a blood thinner because I have A-fib so I can’t take ibuprofen.
For me topical creams like Aspercreme, magnesium lotion or oil work well. A heating pad, and ice also help.
The occipital neuralgia is new for me, and I find it to be a huge challenge. The pain on my head and around my face is horrible at times.
I’m blessed to receive grace from my Lord Jesus Christ. He keeps me focused on what is really important.

I did try a spinal cord stimulator trial made by Abboit,sp?, in mid November but it did not work. Of course the doctor, whom is supposed to be the best around here, want's me to come and try another manufacturer, but my attitude is that if he felt another manufacturer would help , he would of used it the first time. Just trying to make money!
I also heard from a close friend of my sisters today, That she see's the same doctor I am supposed to see on 1/9/23 that she see's him for knee pain and doubt's if he will know anything about CRPS. Another road block but I'll keep the appointment unles I can find anyone else.
I know that I should be going to a Mayo facility but my financesses will not permit. Thank's for listening. Darryl

Good morning, Susan - have you tried meditation and deep breathing during your occipital neuralgia flares?

Hi Rachel and everyone. My CRPS is continuing to progress. It started on left upper body and in last week continued now to right upper body and in last 48 hours into my left toe.
I saw on this sight a treatment called Ketamine Pain Treatments. I've followed up and found that the head doctor at UPMC Pittsburgh, Pa. pain manag ,Where I live, does these and called his office this morning. His nurse told me that he was booked until late January. I explained my situation. I recieved a call back an hour later that they had a cancellation. on 1/9/23. I jumped at it. I understand that the Ketamine treatment is not covered buy any insurance.
Any idea how much each treatment will cost me? Depending on haw much I may have to do a reverse mortgage on my home.Pleae respond from anyone as how much this will cost me. Please advise. Thank's Darryl

Hi I'm Victoria. I had GERD and ended up having a Toupett Fundoplication. Had severe upper abdominal chest pains beginning 1st week.
Had complete heart work up. The surgeon said nothing he had done and would noot reverse
I went for many test, mri's cat scans and x-rays bc I was in so much pain Nothing.
I found another surgeon that was willing to do the reversal and repair a hernia on by belly button 9 months later.
I had the reversal done and surgeon said looked properly done.
Chest pain in upper abdominal region never went away. I can only get up for 15-25 minutes and I feel like I'm having a heart attack. Labored breathing, break out in a sweat and the pain is so severe I'm bent over until I can sit or lay down
I always have pain..movement makes it worse.
I've had every GI test imaginable, egd's, scans ..at the University of Tampa GI
Can't find anything.
Oh, and I got gastroparesis and had a G-Poem also. This all has been going on for 3 years this coming February.
I just got a referral from one of my surgeon's for Mayo Clinic, Jacksonville.
Has anyone ever expected anything like this from a Fundoplication?
Please let me know.
Thank you,
Victoria

No I haven’t. I’m putting a heating pad on the back of my neck and I find that really helps.