Chronic Pain members - Welcome, please introduce yourself

Hi my name is Liz. I have had chronic pelvic pain since 2003, back pain (had one fusion in 2009) and have chronic undiagnosed stomach pain. Do like exchanging ideas and stories.

Hi. My name is Darryl and I am in need of some help. I've had CRPS for abot 2 yeas from a fall that shattered my elbow. The crps first went from my left elbow to my finger tips. In June it went from left elbow to the left side of my face. Two weeks ago it travelled to my right jaw. A week ago it moved up to right eye. Today it has moved down to my right finger tips. I have an appointment on 1/9/23 with a head pain mamagement doctor from UPMC. here in Pittsburgh, Pa. I'm becoming frightened. I turn to you, Rachele and anyone that can give me advice. Thank's, Darryl

Hi Rachel. It's good to here back from you. Right now I'm still trying to handle shopping on my own but with the crps now having moved to the other side of face and finger tip's I don't know how much longer I'll be able to drive. Yes, I have my sister, who I'm very close to, that would help me with anything but I don't want to be a burden to anyone. I've been hospitalized twice in the last 30 days for abdonimal blockages. I'm also so weak that I can't even walk my dog any more. My phychyocrist keep's trying to adjust med's for anxiety and depression.
I had hoped that the crps had stopped progressing and just stayed with my upper left side, but knew the progression to upper right side now was a possibility.
I recieved a newsletter from that from the rsda site I belong to, stating that the Cleveland Cinic has been making great strides with stem cell research for crps. I assume Mayo is doing the same but would like to know more about this. Please advise. Thank's Darryl

I have had similar reactions to the gabapentin.. Dizziness, uneven walking ina wavy pattern. I stopped taking I when I had trouble getting out of bed one morning. Told doc and he looked at me and flipped up his eyebrows. Doubt if he took me seriously. Oh well.Do not be discouraged. Keep looking for a way to feel better My problem is that many of the meds for chronic pain work for awhile, then pain returns Good luck to you.

Regards Colonial1, a fellow warrior that too sees any barrier as an intellectual challenge. Pain I have taken on no differently. With having more side effects, allergic reactions to all such medications, even anesthesiologist have become worried how to put me under when absolutely warrantied. I will admit I have it a bit amusing to hear them admit their fear. I reply, if you are this concerned, how do you think I feel? (smiling) A sense of humor is one of two ways I combat pain. The other is straight on attack by logic. I remind myself it will eventually give up before I do. Besides, there are only two ways it has to end. It gives up, or my time here has reached its conclusion. Either way, I win. I address any barrier with the same mindset. Pros & cons, then how to create another way of achieving my goal. No only means Not yet, to me. I may not be able to climb the mountain or swim the ocean, but that's what a CH-47 & a ship are for. Work smarter, not harder as the ARMY ingrains. Always learn from every battle to be more ready for the next, stronger in heart & mind even if the body needs down time. Look at down time merely as the opportunity to strategize. Turn your mind to other things draw you in. For me, that means music, reading, military history, snail walk with my pup on Base is still walking, marvelling at aircraft, the soft sound of wind chimes stirred by a fan, & many other things. Immersing myself in another, as I am with your reply Colonel1, appreciating that one took the time to speak to just me, can be the lifeline that someone may need at just that moment. So I hope we each here will be another's lifeline as someone has been theirs, & never stop reaching out. For as you do, your thoughts turn from your moment, to focus on theirs. & in doing so, for a time pain does not exist.
Thank you, sir, for giving me a time of painless being. Moí

Hello, I am Lucy. I have chronic pain for several years. My pain is now more acute at times than chronic. I am not used to all these narcotics and do not like it. My doctor is quite good and can explain the brain pathways for depression and pain. I am 71 and still a licensed nurse practicing legal nurse consulting. If I did not have this, I would go crazy.

Hi, sorry it's taken me a couple days to get back to you. I'm not sure about advancements Mayo Clinic has made on stem cell research for CRPS but I will do a little research and see if I can find you information. I'm sorry to hear the CRPS is advancing but I'm super glad that you are working with a psychologist. Have you ever considered a spinal cord stimulator which is implanted for chronic pain?

I did try a spinal cord stimulator trial made by Abboit,sp?, in mid November but it did not work. Of course the doctor, whom is supposed to be the best around here, want's me to come and try another manufacturer, but my attitude is that if he felt another manufacturer would help , he would of used it the first time. Just trying to make money!
I also heard from a close friend of my sisters today, That she see's the same doctor I am supposed to see on 1/9/23 that she see's him for knee pain and doubt's if he will know anything about CRPS. Another road block but I'll keep the appointment unles I can find anyone else.
I know that I should be going to a Mayo facility but my financesses will not permit. Thank's for listening. Darryl

Hello, I am a new member to this group. For many years, I've had mild-moderate fibromylagia, exercised for it and kept myself in motion. As with sciatica. Of late, GERD has been another source of pain below the ribs. It looks as if my damage control is not working well anymore and I am looking to connect for information and support. Thank you.

Hello. I'm 62 I've been suffering with chronic back pain from scoliosis for 12 years. I also have chronic costochondritis and drs can't help me. I'm at the pain clinic monthly for trigger point injections of sarapin or steroids. No narcotics for me. The struggle is real.