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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

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suzig | @suzig | Jan 14, 2023
In reply to @johnbishop "Hello @suzig, Welcome to Connect. I'm so sorry you have pain with your lymphedema. I have..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Hello @suzig, Welcome to Connect. I'm so sorry you have pain with your lymphedema. I have lymphedema in my legs and have to wear compression socks daily as the treatment. They help control the swelling and even though they are not painful, I always feel the squeezing on my legs and it's a relief to take them off at bedtime. Another thing I do is elevate my legs slightly on the bed at night which helps the lymph system get the fluids out of the system. Exercise along with drinking a lot of water also helps the system from what I've read.

There is an older discussion that has a few members still active that you might want to view to learn what others have shared here:
-- Lower limb lymphedema: https://connect.mayoclinic.org/discussion/lypmhedema/

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John,
Thanks for your understanding and support. I wonder if some of the pain is not from the lymphedema because I get sharp pain all the way to my ankle. The trobbing and needles never really go away. The sharp pain is in different places and for no reason that I can identify. I elevate my leggs as much as possible. I am a "couch puddle" instead of just a couch potatoe. May try to get another appointment to see what's going on. Thanks again.
Suzi

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shannongail | @shannongail | Jan 15, 2023
In reply to @johnbishop "Hi Suzi, It's easy to find your previous posts. Just click on you profile icon at..." + (show)
Profile picture for John, Volunteer Mentor @johnbishop

Hi Suzi, It's easy to find your previous posts. Just click on you profile icon at the top of any Connect screen and select Profile & settings which takes you to your profile description. On the left side of the screen click on Comments and you can view any of your previous comments.

There are quite a few discussions on lymphedema. If you go to the Connect home page by clicking on Connect at the top left side of any page on Connect it will take you to the home page. Here's the direct link to the home page - https://connect.mayoclinic.org/. Once on the home page, type lymphedema in the search box directly above the list of discussions and press Enter. Then you will see the list of discussions for lymphedema. See the attached screen example.

Here's a discussion one on legs:
-- Lymphedema in legs: https://connect.mayoclinic.org/discussion/lymphedema-in-legs/

Hope this helps.

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Dr Ho's circulation disc tens machine is helping my ankle and foot lymphedema a lot. Huge difference in swelling and pain.
https://drhonow.com/en_us/

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cookieyoder | @cookieyoder | Jan 15, 2023

Hello! I’m Cookie and in pain 24/7. I had one back surgery and a stimulator. I have arthritis in my back and on steroids but their not helping.

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manuelmagalhaes | @manuelmagalhaes | Jan 15, 2023

Hello, I am in Portugal and I suffer for many years of back pain. Recently I had a diagnostic of Bertolotti syndrome. I made an radio frequency treatment but with no success. Do you have any specialist on this disease? Is it possible to make an online appointment with the doctor? I have terrible pain, increasing everyday. Thank you very much, best Regards.
Manuel Magalhaes

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titi2 | @titi2 | Jan 16, 2023

Hi. My name is Ana i have had 2 back surgeries i get pain but it is not that bad. But for the last year i have sacroilitis that pain is so bad.pain runs down my thighs buttocks can't sit to long or stand to long getting steroids injection it helps a little. Am i going to have to live like this? I am 74 yrs old

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drg24242 | @drg24242 | Jan 16, 2023
In reply to @rwinney "Hi Darryl. This is good news. I have heard of ketamine infusions and how some people..." + (show)
Profile picture for Rachel, Volunteer Mentor @rwinney

Hi Darryl. This is good news. I have heard of ketamine infusions and how some people get relief. I looked into ketamine once but like you say, it's not covered by insurance. I think your best bet is to contact the office that is scheduling you and ask them how much it is out of pocket. I'm sure prices vary.

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I need mayo clinic connect help! I plan on moving to Tampa Bay or Tampa Bay beach area in next 30 day's. My crps is out of controll. Please advise as to where I can purchase between 60K-100K condo in safe area. Iwould prefer closer to beach but would settle on what meet's price range. May need help approx. 12 hour's a week to do setting up of med's and transportation to store. Will have 14lb. dog in trainining with to move.

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Mentor
Rachel, Volunteer Mentor | @rwinney | Jan 18, 2023
In reply to @drg24242 "I need mayo clinic connect help! I plan on moving to Tampa Bay or Tampa Bay..." + (show)
Profile picture for drg24242 @drg24242

I need mayo clinic connect help! I plan on moving to Tampa Bay or Tampa Bay beach area in next 30 day's. My crps is out of controll. Please advise as to where I can purchase between 60K-100K condo in safe area. Iwould prefer closer to beach but would settle on what meet's price range. May need help approx. 12 hour's a week to do setting up of med's and transportation to store. Will have 14lb. dog in trainining with to move.

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Darryl - how great that you will have a furry companion to keep you company! Best of luck with your move to Tampa Bay. I hope the warm weather helps your CRPS. Is that why you are moving?

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dustycat52 | @dustycat52 | Jan 19, 2023

Hi, I’m Natalie. I’ve had Burning Mouth Syndrome for nearly 17 years now. It’s like hot charcoal sitting on my tongue.

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razzydeb58 | @razzydeb58 | Jan 19, 2023

Hi, I'm Debbie, a retired special ed teacher. I had back surgery in 2011 and still have chronic pain daily, even tho I'm on morphine, which is no longer helping. My pain dr refuses to speak to me about relief thru CBD or THC even tho I live in a legal state. Nothing helps and I need to know is it safe to try something like this because I also have diabetes adult onset , chronic kidney disease, hashimotos thyroid disease , and now there worried about me being extremely anemic, not iron related and my blood pressure is up. If anyone could let me know if they have a similiar situation I would like to connect please and thank you, to all who can help or have advice . Be safe and enjoy life, Debbie

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