Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Hi, I'm new here. I developed fibro while taking Boniva about 12 years ago. I practically crawled into the dr's office, they sent me to a rheumatologist. My ANA was very high and remains high, but no immuno diseases. I was the one who read the fine print and side effects said "may cause bone and muscle pain." As soon as I stopped, my pain improved drastically but has never gone completely away. I do all kinds of things to help myself - massages, meditation, yoga, just started taking curcumin and black pepper, and tart cherry juice. I'm 68 and am determined to improve my health so I can really enjoy my golden years. My fibro is a constant pain all over my body. It really never prevents me from doing things, it mostly just makes it hard. So happy to have found this group, and looking for any tips that might help!

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@mikayla68

Hi, I'm new here. I developed fibro while taking Boniva about 12 years ago. I practically crawled into the dr's office, they sent me to a rheumatologist. My ANA was very high and remains high, but no immuno diseases. I was the one who read the fine print and side effects said "may cause bone and muscle pain." As soon as I stopped, my pain improved drastically but has never gone completely away. I do all kinds of things to help myself - massages, meditation, yoga, just started taking curcumin and black pepper, and tart cherry juice. I'm 68 and am determined to improve my health so I can really enjoy my golden years. My fibro is a constant pain all over my body. It really never prevents me from doing things, it mostly just makes it hard. So happy to have found this group, and looking for any tips that might help!

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Hi @mikayla68 - I'm wondering if you might find the following discussion helpful since you mentioned fibromyalgia pain.

-- Have you found anything to successfully treat fibromyalgia pain?
https://connect.mayoclinic.org/discussion/dealing-with-fibromyalgia-pain/

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@johnbishop

Hi @mikayla68 - I'm wondering if you might find the following discussion helpful since you mentioned fibromyalgia pain.

-- Have you found anything to successfully treat fibromyalgia pain?
https://connect.mayoclinic.org/discussion/dealing-with-fibromyalgia-pain/

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Thanks I'll check out your link.
Thanks for asking about how I'm treating it. Since the Boniva, it's been a constant low level pain. I do deep breathing on my daily walks, I do gentle yoga at home ... I had been taking advil 3-4 times per day and just quit taking that, so I'm challenged right now. I just started tart cherry juice and curcumin with black pepper. And I have medical marijuana, I use gummies to ease the pain and help myself sleep. I can't use Cymbalta because I have severe restless leg syndrome and it's a trigger.

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@lynnannrose

Good morning my name is LynnAnnRose, Mary, Huntington. Oh, I have severe neck arthritis. Sometimes it gets so painful when it’s combined with migraines I think I should go to the emergency room but I can’t because my wife has a lung disorder and if she got Covid, it would kill her so I can’t really go find medical help right now sometimes the pain gets to be so bad that I fantasize about going to Canada and using their medical aid in dying program

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Do you have access to medical marijuana? I really think it would help you! I'm sorry you're suffering.

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Hello! My name is Lise (pronounced like Lisa) and I live in Oregon. I have had chronic pain for quite some time. Pain in my lower back and hip, shoulders and feet. Been to a pain management specialist who di nerve blocks and nerve ablations in my back, but I still have the pain. I am hoping to get support and give support to members of this group and am glad to be here.

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I have a deteriorating of my spine. I have had one surgery for that and it was the worst pain of my life. I don't want to go through that again. They were able to replace some from the local bone bank. As a result, I have chronic pain in my back. I wear a big brace. It does not stop the pain but it gives me the support I need so that I can tolerate it. I am 84 years old and hope that this will get me through the rest of my life. also, I depend on a light pain med when it becomes intolerable

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@mariajean03

I have chronic pain in both feet which is unbearable! Too many surgeries and cortizone shots which have left me with fat pad loss. I've tried everything to no avail. My Dr. says Tramadol will make me too dizzy with my other meds. Any ideas @ all? Thanks. Maria.

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Have ypu tried Gabapentin

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Yes. It makes me really dizzy with my other meds for OCD and depression.

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Hello I’m skillins1,. I’ve had chronic pain now for the past five years. I’ve had deep tissue massages, I’ve used voltaren gel, taken Lyrica, hydocodone and oxycodone . I see a pain specialist to get injections in my spine but that only last for a little while. I have chronic migraine for years. I take firocet, Ubrelvy and Botox injections. Nothing seems to work. Please help!!!!!!!

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@pleethatsme

Have ypu tried Gabapentin

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@pleethatsmee
Yes, but I can’t take anymore with some medications I take. Thank you

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