Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for John, Volunteer Mentor @johnbishop

Hi @mikayla68 - I'm wondering if you might find the following discussion helpful since you mentioned fibromyalgia pain.

-- Have you found anything to successfully treat fibromyalgia pain?
https://connect.mayoclinic.org/discussion/dealing-with-fibromyalgia-pain/

Jump to this post

Thanks I'll check out your link.
Thanks for asking about how I'm treating it. Since the Boniva, it's been a constant low level pain. I do deep breathing on my daily walks, I do gentle yoga at home ... I had been taking advil 3-4 times per day and just quit taking that, so I'm challenged right now. I just started tart cherry juice and curcumin with black pepper. And I have medical marijuana, I use gummies to ease the pain and help myself sleep. I can't use Cymbalta because I have severe restless leg syndrome and it's a trigger.

REPLY
Profile picture for LynnAnnRose @lynnannrose

Good morning my name is LynnAnnRose, Mary, Huntington. Oh, I have severe neck arthritis. Sometimes it gets so painful when it’s combined with migraines I think I should go to the emergency room but I can’t because my wife has a lung disorder and if she got Covid, it would kill her so I can’t really go find medical help right now sometimes the pain gets to be so bad that I fantasize about going to Canada and using their medical aid in dying program

Jump to this post

Do you have access to medical marijuana? I really think it would help you! I'm sorry you're suffering.

REPLY

Hello! My name is Lise (pronounced like Lisa) and I live in Oregon. I have had chronic pain for quite some time. Pain in my lower back and hip, shoulders and feet. Been to a pain management specialist who di nerve blocks and nerve ablations in my back, but I still have the pain. I am hoping to get support and give support to members of this group and am glad to be here.

REPLY

I have a deteriorating of my spine. I have had one surgery for that and it was the worst pain of my life. I don't want to go through that again. They were able to replace some from the local bone bank. As a result, I have chronic pain in my back. I wear a big brace. It does not stop the pain but it gives me the support I need so that I can tolerate it. I am 84 years old and hope that this will get me through the rest of my life. also, I depend on a light pain med when it becomes intolerable

REPLY
Profile picture for mariajean03 @mariajean03

I have chronic pain in both feet which is unbearable! Too many surgeries and cortizone shots which have left me with fat pad loss. I've tried everything to no avail. My Dr. says Tramadol will make me too dizzy with my other meds. Any ideas @ all? Thanks. Maria.

Jump to this post

Have ypu tried Gabapentin

REPLY

Yes. It makes me really dizzy with my other meds for OCD and depression.

REPLY

Hello I’m skillins1,. I’ve had chronic pain now for the past five years. I’ve had deep tissue massages, I’ve used voltaren gel, taken Lyrica, hydocodone and oxycodone . I see a pain specialist to get injections in my spine but that only last for a little while. I have chronic migraine for years. I take firocet, Ubrelvy and Botox injections. Nothing seems to work. Please help!!!!!!!

REPLY
Profile picture for pleethatsme @pleethatsme

Have ypu tried Gabapentin

Jump to this post

@pleethatsmee
Yes, but I can’t take anymore with some medications I take. Thank you

REPLY
Profile picture for pleethatsme @pleethatsme

Have ypu tried Gabapentin

Jump to this post

I have a weird system. I take gabapentin at nite, but will have what I call left over effects all through the day. I get dizzy hours into the day. Have lost balance a few times. No worries, the wall always catches me😁. GP said it called the hangover effect. Call it what you want, but I don't need it happening when I'm driving, walking my dog or in a store. I had to hold onto the shelving until the dizziness passed. That was frightening, & happened hours later in the afternoon. Never had it do that to me before. I'm not giving up driving & walking my pup because of it. If it means I don't use it, I won't. Anyone else have hangover hours later from it? Thank you

REPLY

My name is Moí. I live in WA state. Anyone out this way? I live with my service pup GA/Georgia. We are independent, but I've had to accept that I need help in the apt with things my body can't do anymore. Vacuuming & my nerve damaged spine don't get along. I can make myself do it, but I'll be down for days afterwards. I can fold my clothes, but not hang shirts due to right rotator cuff. So far I can still take the trash out. I live on the 2nd floor. That's 15 steps to carry groceries up. I do it smart. Frig & freezer things up first. The rest can wait it's turn. The hardest thing for me is having to accept a care helper to help with things I can't do it have a hard time doing. The thing is, if I get tired or something like gabapentin causes dizziness, they think I need extra care & want to take some of my freedoms away. I won't stand for it. I don't like being judged like I'm senile. I have some physical limitations only. My brain is sharp. Why do they do that to us? They start treating us as if we can't budget out finances or can take care of our medications, or cook my own food. It makes me fearful I'll be put away in some home if I can't find my glasses. We shouldn't have to live in fear & hide how we are feeling out of stress for some person thinking we are needing more care than we do. It angers me when I'm asked if the person can see my monthly budget or if I have a medication log they can see. I don't need help with those things. I don't need help getting dressed or taking a shower. I have to fix my meals as my body is able to tolerate what foods that day. I have an exercise time & don't need to be watched as if I'll fall off the chair. I'm still 99% independent. But to be asked if I shouldn't stop driving because I'm 68 is crossing the line. I don't appreciate someone trying to make me more disabled than I am. Especially when they try mental games on me. I tell them to leave & call the agency manager. I'm not 5 yrs old. Does anyone else have care helpers try to make out that you are worse off than you really are? Shoot, I still wrangle the fitted sheet on my queen bed alone & give my pup her bath. I even volunteer to work with VETS at the VA golf course. I love my Boots. I'm not letting anyone take my joys from me. I was made an honorary RANGERS by a company of RANGERS I was helped & I live it every day. I was taught to respect my elders. Not try to make them feel worthless. How fo your care helpers treat you?

REPLY
Please sign in or register to post a reply.