How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

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Profile picture for sue225 @sue225

I've had dry eyes for forty years. Somewhere along the way, I listened to the opthalmologist and tried a plug in one eye only. It just caused more pain and didnt make things better at all.
Restasis caused a lot of burning for me. It takes about two to three months to know if Restasis is being effective. It is sometimes recommended to use a steroid drop for two weeks prior to starting Restasis and then for the first week of using it to reduce stinging.
Opthalmologist are now prescribing Xiidra. I did fill the prescription but never did start it. My opthalmologist also prescribed a steroid to be used for the first few weeks of starting the Xiidra drops.
I have for now decided to just keep using Refresh Celluvisc drops and DuoLube nighttime ointment.
With Covid19 still pretty active where I live, I did not want to have new problems with Xiidra and have to see a doctor. There are people on this blog who have had success with Xiidra.

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My eye dr today prescribed Restasis. My pharmacy called as soon as they got the prescription to warn me of the cost for the prescription. Medicare+ a supplement +Part D and I would pay $501 out of pocket! No! I cancelled that and ordered an eye gel from Amazon. At least for under $10. I will know right away if it helps.

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Profile picture for krisjb1 @krisjb1

My eye dr today prescribed Restasis. My pharmacy called as soon as they got the prescription to warn me of the cost for the prescription. Medicare+ a supplement +Part D and I would pay $501 out of pocket! No! I cancelled that and ordered an eye gel from Amazon. At least for under $10. I will know right away if it helps.

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Interestingly, Xiidra no longer being recommended to me. No told that if I had stinging with Restasis it would be the same or worse with Xiidra which is fine with me. Will continue doing my usual regimen.
My only bit of advice to you, whatever artificial tear,or gel you buy, always best to go with a preservative free product. The preservatives often irritate the dry eye.

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I have tried everything for severe dry eye due to Sjogren's disease. Finally the cornea specialist cauterized all four of my eyes and my eyes are still a major problem with margin lid disease, blepheritis and watery disfunctional tears.
I've lost a lot of lashes, they are red rimmed and swollen. Hope you've had better experiences. I wish they had not been all cauterized, it wasn't a good solution....

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Profile picture for krisjb1 @krisjb1

My eye dr today prescribed Restasis. My pharmacy called as soon as they got the prescription to warn me of the cost for the prescription. Medicare+ a supplement +Part D and I would pay $501 out of pocket! No! I cancelled that and ordered an eye gel from Amazon. At least for under $10. I will know right away if it helps.

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@krisjb1 the one thing I would say about Xiidra and Restasis is the benefit they provide in actually “correcting” (for lack of a better word) dry eyes. I used Xiidra for about 3 months and then could cut back to only once a day without the need to use any other drops. Unfortunately I became lazy and didn’t use for many months and had to start again with 2 applications a day and supplemental OTC preservative-free drops. Just thought I’d share that info.

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Profile picture for sue225 @sue225

Interestingly, Xiidra no longer being recommended to me. No told that if I had stinging with Restasis it would be the same or worse with Xiidra which is fine with me. Will continue doing my usual regimen.
My only bit of advice to you, whatever artificial tear,or gel you buy, always best to go with a preservative free product. The preservatives often irritate the dry eye.

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I have insurance so Restasis is not that expensiive unless I get in the doughnut hot. So I use Restatsis in the morning and evening(can get two doses from one tube). During the day, I use Systane preservative-free drops that come in long tubes. I use Systane preservative-free gel drops that come in a small bottle before I go to sleep at night.

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Profile picture for bustrbrwn22 @bustrbrwn22

@krisjb1 the one thing I would say about Xiidra and Restasis is the benefit they provide in actually “correcting” (for lack of a better word) dry eyes. I used Xiidra for about 3 months and then could cut back to only once a day without the need to use any other drops. Unfortunately I became lazy and didn’t use for many months and had to start again with 2 applications a day and supplemental OTC preservative-free drops. Just thought I’d share that info.

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Xiidra must be used twice a day. Unlike unpreserved eye drops, xiidra will reduce the cause of dryness.

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I use Systance Complete for my dry very dry eyes

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Profile picture for Langold @rarelybees2889

I have tried everything for severe dry eye due to Sjogren's disease. Finally the cornea specialist cauterized all four of my eyes and my eyes are still a major problem with margin lid disease, blepheritis and watery disfunctional tears.
I've lost a lot of lashes, they are red rimmed and swollen. Hope you've had better experiences. I wish they had not been all cauterized, it wasn't a good solution....

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Hello. I’m so sorry you are experiencing so many eye problems. Do you mean you had the tear duct cauterized? Just to reiterate others. Always use preservative free drops. Have you tried nighttime pm. Ointment?

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Profile picture for krisjb1 @krisjb1

My eye dr today prescribed Restasis. My pharmacy called as soon as they got the prescription to warn me of the cost for the prescription. Medicare+ a supplement +Part D and I would pay $501 out of pocket! No! I cancelled that and ordered an eye gel from Amazon. At least for under $10. I will know right away if it helps.

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I would recommend that you use only preservatives free drops and try pf pm ointment at night. My most recent eye doctor has prescribed The use of wearing a contact lens which is soft. It protects the Eye and has made my dry eyes dry I feel so much better. I do not need to use many drops during the day anymore.

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Profile picture for bustrbrwn22 @bustrbrwn22

@krisjb1 the one thing I would say about Xiidra and Restasis is the benefit they provide in actually “correcting” (for lack of a better word) dry eyes. I used Xiidra for about 3 months and then could cut back to only once a day without the need to use any other drops. Unfortunately I became lazy and didn’t use for many months and had to start again with 2 applications a day and supplemental OTC preservative-free drops. Just thought I’d share that info.

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It is great that they worked for you. I decided against the purchase of Restasis for $501 or Xiidra for $549 out of pocket. So far I can control the problem with hot compresses and over the counter meds. As long as it doesn't get worse I can deal with it.

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