How do you deal with dry eyes?

Posted by maryy @maryy, Jun 10, 2019

I have dry eyes due to sjogren's syndrome. Does anyone else deal with dry eyes?

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I have severe dry eye due to radiation treatment for eyelid skin cancer. I am researching IPL THERAPY. IPL stands for intensive pulsating light therapy. Has anyone had experience with this?

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@lioness

@maryy I have dry eyes Dr told me to get Systain drops out in 3 x a day also I have glaucoma use a drop at night of Latanoprist drops

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Restasis was like a miracle. Takes awhile to kick in but makes a huge difference when it does. I had a free month of Xiidra. Really liked it but Medicare wouldn’t cover it then. Not sure about now.

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@mary1950 Did Medicare pay for Restasis,when I go them they didn't .I may try again but they also left my eyes with tears and they stung

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@dreams

I have severe dry eye due to radiation treatment for eyelid skin cancer. I am researching IPL THERAPY. IPL stands for intensive pulsating light therapy. Has anyone had experience with this?

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I have dry eyes from sjogren's and 4 eye surgeries. I had IPL treatments over 4 months and this treatment has made a huge difference. There are times that my eyes feel wet! I use a Bruder mask with the Bruder Hygienic sheets once a day. Like your own mini spa. I no longer feel like my eyes are burning or have something in them. I use drops maybe 1-2 times per month, even in heavy allergy season. When I do use drops, I use Thera Tears and Blink Tears at night.

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Thank you so much for sharing your experiences. I will look into the Bruder mask. The radiation caused lacrimal gland problems. Do you know what gland IPL treats? I was diagnosed with Merkel cell cancer on the eyelid. I had it surgically removed and then had radiation. I had been using Restasis for six years prior for dry eyes. The doctors at Mayo clinic advised me to promptly stop using Restasis after the merkle cell cancer began. Restasis is an immuno suppressant antiinflammatory drug. They are not sure what started the cancer but it could’ve been from using reatatsis, as it is has immunosuppressant qualities. Just letting others know my experience. We continually need to consider the positives and the negatives with any treatments.

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@dreams thanks so much for sharing that possible side effect of Restasis, I had never heard that. My insurance required I use that first and it burned too badly so I was allowed to use Xiidra, which works much better for me anyway but requires more out of pocket. I am so sorry for what you are going through and feel so lucky this didn't happen to me as I am prone to bad luck!

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@bustrbrwn22

@dreams thanks so much for sharing that possible side effect of Restasis, I had never heard that. My insurance required I use that first and it burned too badly so I was allowed to use Xiidra, which works much better for me anyway but requires more out of pocket. I am so sorry for what you are going through and feel so lucky this didn't happen to me as I am prone to bad luck!

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If you apply a drop of unpreserved teats to your eyes before using Restasis, it will burn less.

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@sue225

My opthalmologist recommended getting a Bruder mask. I ordered it on Amazon. You put it in the microwave for 20 seconds..let it cool a bit if two warm and place over eyes. Have only used a few times but it does seem to stimulate the glands to produce more tears and does create moist environment. Just have to be diligent about using it.

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My wife and I started using the Bruder masks, and it has made a big difference. Much more convenient than the warm water compresses.
Thanks, Art

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Here's the protocol my ophthalmologist put me on. I had severe dry eyes. Use the Bruders eye mask four times a day for 5-10 mins at a time for at least two weeks. After each eye mask use, use the ocusoft plus eye wipes afterwards. Then use systane ultra preservative free drops at least for times per day. These products are all available on amazon. As you improve, usually after two weeks, you can decrease how often you use the Bruder eye mask. I only need to use it once per day now with the eye wipes but I still do the drops four times a day. This regimen has helped me tremendously! My eyes are doing great per my ophthalmologist and I no longer have any symptoms.

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@chelle2001

Here's the protocol my ophthalmologist put me on. I had severe dry eyes. Use the Bruders eye mask four times a day for 5-10 mins at a time for at least two weeks. After each eye mask use, use the ocusoft plus eye wipes afterwards. Then use systane ultra preservative free drops at least for times per day. These products are all available on amazon. As you improve, usually after two weeks, you can decrease how often you use the Bruder eye mask. I only need to use it once per day now with the eye wipes but I still do the drops four times a day. This regimen has helped me tremendously! My eyes are doing great per my ophthalmologist and I no longer have any symptoms.

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You can get a prescription for Restasis or Xiidra from your opthmalogist. Both worked for me. And use disposable moist heat eye masks, they can really relieve the pain (over the counter) and eye drops over the counter without preservatives. I have glaucoma and my dry eye syndrome was making my glaucoma scary-verging on blindness. I had X-gel stents put in both of my eyes by a glaucoma surgeon. And they work great for dry eyes! I used to be in so much pain when the ceiling fan was on, now I can stand,

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