Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

I so appreciate all the detailed drug information shared here. When I asked my Kaiser spine doctor about oxylate-rich foods preventing my body form putting calcium into my bones, he referred me to an endocrinologist, but it appears most endocrinologists specialize in prescription drugs, not the effect of spinach on calcium absorption!
Now only 49 pages into the Mira and Jayson Calton book "Rebuild your Bones" that describes the horrors of Tymlos, Reclast, Forteo, Prolia, Eventity and the rest, I am so confused. Has anyone had experience trying the Calton micronutrient cure to osteoporosis? Did it help at all?

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@notmoff

I so appreciate all the detailed drug information shared here. When I asked my Kaiser spine doctor about oxylate-rich foods preventing my body form putting calcium into my bones, he referred me to an endocrinologist, but it appears most endocrinologists specialize in prescription drugs, not the effect of spinach on calcium absorption!
Now only 49 pages into the Mira and Jayson Calton book "Rebuild your Bones" that describes the horrors of Tymlos, Reclast, Forteo, Prolia, Eventity and the rest, I am so confused. Has anyone had experience trying the Calton micronutrient cure to osteoporosis? Did it help at all?

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What are the horrors of Tymlos, in the book? I am so grateful for this medication.

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@windyshores

What are the horrors of Tymlos, in the book? I am so grateful for this medication.

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The Calton described horrors are mostly in the other drugs. Glad to hear you find Tymlos helpful.
But since you asked . . .
This excerpt (please excuse my typos) is from the Calton 2019 "Build Your Bones" book, page 34-5 that ..."Abaloparatide is a newcomer to the osteoporosis drug market, approved by the FDA in 2017. It's a small tweak on teriparatide that the pharmaceutical companies are hoping brings them a big monetary reward. Because of their chemical similarities, these two drugs have similar adverse effects. However, there are some pluses and minuses to choosing abaloparatide vs teriparatide. First, and this is a plus, our odds of getting hypercalcemia are less. On the mnus side, although the initial increases in the bone formation marker were similar for abaloparatide and teriparatide within the first month, by month three, bone formation began to decrease in the abaloparatide group compared with the teriparatide group. Basically, it's not as good at building bone. Both cause plausible increases in cortisol and calcium levels, as well as decreases in cognition and magnesium levels. Here again, the main issue is cancer. . .

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@notmoff

The Calton described horrors are mostly in the other drugs. Glad to hear you find Tymlos helpful.
But since you asked . . .
This excerpt (please excuse my typos) is from the Calton 2019 "Build Your Bones" book, page 34-5 that ..."Abaloparatide is a newcomer to the osteoporosis drug market, approved by the FDA in 2017. It's a small tweak on teriparatide that the pharmaceutical companies are hoping brings them a big monetary reward. Because of their chemical similarities, these two drugs have similar adverse effects. However, there are some pluses and minuses to choosing abaloparatide vs teriparatide. First, and this is a plus, our odds of getting hypercalcemia are less. On the mnus side, although the initial increases in the bone formation marker were similar for abaloparatide and teriparatide within the first month, by month three, bone formation began to decrease in the abaloparatide group compared with the teriparatide group. Basically, it's not as good at building bone. Both cause plausible increases in cortisol and calcium levels, as well as decreases in cognition and magnesium levels. Here again, the main issue is cancer. . .

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There has not been a single case of bone cancer among people using Forteo (or Tymlos). The black box warning has been taken off Forteo and it can now be used for more than 2 years. This will most likely also happen for Tymlos but since it is new, it takes longer.

I have had breast cancer (2015) with risk of metastasis to bones but feel perfectly safe taking Tymlos.

These scare tactics are affecting people's health. There are certainly side effects and for some, possible health effects, but they need to be conveyed responsibly.

I would like to see the info on bone formation with Tymlos versus Forteo in the actual text on this, and any graphs.

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@windyshores

There has not been a single case of bone cancer among people using Forteo (or Tymlos). The black box warning has been taken off Forteo and it can now be used for more than 2 years. This will most likely also happen for Tymlos but since it is new, it takes longer.

I have had breast cancer (2015) with risk of metastasis to bones but feel perfectly safe taking Tymlos.

These scare tactics are affecting people's health. There are certainly side effects and for some, possible health effects, but they need to be conveyed responsibly.

I would like to see the info on bone formation with Tymlos versus Forteo in the actual text on this, and any graphs.

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@windyshores - Again, it is good to hear that you find Tymlos of help. And thank you for the updated information about cancer risk.

I am a newbie to all this, gathering information here and from library books which is where I got the 2019 Calton book, probably written before the cancer risk was debunked as you mentioned. I lack the energy to retype more text - my primitive method.
Yes, being frightened affects our health. Not being attentive to risks and finding oneself regretting unwise decisions made in haste can also be bad for our health.
I think it best I simply read, rather than write posts.

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@notmoff

@windyshores - Again, it is good to hear that you find Tymlos of help. And thank you for the updated information about cancer risk.

I am a newbie to all this, gathering information here and from library books which is where I got the 2019 Calton book, probably written before the cancer risk was debunked as you mentioned. I lack the energy to retype more text - my primitive method.
Yes, being frightened affects our health. Not being attentive to risks and finding oneself regretting unwise decisions made in haste can also be bad for our health.
I think it best I simply read, rather than write posts.

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Even in 2019, responsible reporting would not have indicated that cancer risk was significant. Huge doses were given to rats. Forteo had been around quite a long time by 2019. I would view any other info in that book with skepticism! Good luck!

ps There are many meds that I am unable to take. I am highly sensitive to meds, including fillers. This is a separate issue from side effects.

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@angelas

<p>Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I'm 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?</p>

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I am on Forteo for 1 year bad -3.2 no side affects wating for another scan i had a gastronomy at 26 years old i am 73 with a very bad t12 fracture i herd laser light therapy is good for osteoporosis is it true but how much?

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@callalloo

This is slightly off-topic but don't know a better thread for it. I found this article from the U.K. dealing with osteoporosis and fractures. It lists using a TENS unit as a help in dealing with pain. I had to use one for a year for a bad back injury and the TENS unit helped a lot. I am just putting this out there for anyone dealing with pain and unfamiliar with it.
*************
"If you're diagnosed with osteoporosis, there are steps you can take to reduce your chances of a fall, such as removing hazards from your home and having regular sight tests and hearing tests.

To help you recover from a fracture, you can try using:

hot and cold treatments such as warm baths and cold packs

transcutaneous electrical nerve stimulation (TENS) – where a small battery-operated device is used to stimulate the nerves and reduce pain by stimulating the nerves"

https://www.nhs.uk/conditions/osteoporosis/

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I have a t-12 fracture can not pick anything up over 5lbs always in pain can not take antiflamatory pills bad stomack so i juice 50 0z of juice daily GREAT GREAT for inflammation and mental stress !! many benefits also

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@notmoff

I so appreciate all the detailed drug information shared here. When I asked my Kaiser spine doctor about oxylate-rich foods preventing my body form putting calcium into my bones, he referred me to an endocrinologist, but it appears most endocrinologists specialize in prescription drugs, not the effect of spinach on calcium absorption!
Now only 49 pages into the Mira and Jayson Calton book "Rebuild your Bones" that describes the horrors of Tymlos, Reclast, Forteo, Prolia, Eventity and the rest, I am so confused. Has anyone had experience trying the Calton micronutrient cure to osteoporosis? Did it help at all?

Jump to this post

Hi, just catching up on Mayoclinic comments. I don't know anything about Caltron book/diet. I discovered the oxylate rich food issue recently on my own, doing research. In addition to that, I discovered an issue with phytic acid interfering with calcium absorption too. My endocrinologist just told me "more calcium" and recommended Reclast because I also have an issue with possible Barretts esophagus. Still holding off/trying to decide what to do. But one thing I read (don't remember where) was to stagger calcium supplements/foods by at 2 hours before or after high fiber, high oxylate foods. Don't know if it's going to work, but I think it's worth a try. Good luck!

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@etartaglione

I have a t-12 fracture can not pick anything up over 5lbs always in pain can not take antiflamatory pills bad stomack so i juice 50 0z of juice daily GREAT GREAT for inflammation and mental stress !! many benefits also

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Which fruit (or vegetables) are you juicing? Thanks in advance :-).

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