Spouse with cognitive problems and finances
Bill uses a computer everyday, and has nothing but problems with it. He blames his Dell and I'm pretty sure it is the user lol. He has decided to buy another one (second in a year) and going to very suspect sites. If he does get a new one it won't 'work' for him either! Once again he asked me for our address.
He still has enough memory to think he knows what he is doing. I've had to get us out of quite a few scams that he has fallen for (keeps buying hearing aids while having an excellent pair). I don't know how to protect our finances from him - at least not without major battles. So far in the past year he has bought two computers. One I could give our math teacher daughter for her school (non returnable). The other is his Dell. He also has a working Lenovo, which he says is bad - besides having a crack from his throwing it, it does work ok.
He wants to buy every ad he sees on TV - especially supplements that his doctor says are bad for him. I hid the credit card but some sites we use are auto pay and in spite of everything he remembers how to access those.
Any suggestions?
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Hu @billchitwood Scott here again. I'll relate a couple of changes my wife went through and how I tried to manage them with her.
She, too, became confused by many things, which previously had been second nature to her. One thing I moved to was reading her items, letters, news, etc. that she once could have done for herself. I tried to remove the frustration from something she had previously enjoyed, but now some aspect of it got in her way and aggravated her anxiety level.
My wife also lost interest in many of the things she had previously taken an interest in, especially talking on the phone. She used to love talking on the phone, but this changed to it being an intrusion and turned into simple /yes' or 'no' conversations and then nothing. She also used to enjoy visits a lot, but then they became too intrusive and likewise the shorter the better was her mantra. Oftentimes, when our daughter would visit my wife's first question of her, was "when are you leaving?". Heartbreaking for her (and me) at first, but talking it through helped her understand.
In the case of my wife, with her brain so broken, it seemed everything pretty much changed and I had to accept the old adage of "the only constant is change" and that those changes were being dictated by something over which neither of us had any control whatsoever.
Strength, Courage, & Peace
Thank you for your advice. I can see where my husband is changing in so many ways, just like your wife. So hard to understand how they think but that is the way this disease works, and always changing from day to day. Trying to reason with him is useless so I wait until he is ready to go ahead with an idea. Sometimes when he finally accepts an idea, it affects our lives very badly and then we both have to pay the consequences. Telling him “I told you so” is detrimental and cruel and is a negative afterthought he doesn’t have to share. But sometimes it is hard to deal with his stubbornness and lack of foresight but I’m learning his decisions are challenges to him. He is trying to maintain his dignity and given choices rather than orders.
I like what you said about
“those changes were being dictated by something over which neither of us had any control whatsoever.”
Good morning, @janet7 You reminded me of another point. Over time, and often very quickly, I had to finesse (or wrest) control over almost all decision-making from my wife. Had I not, it would have resulted in even greater damage to us, especially financially. Each was tough, but then I'd remind myself that none of those held a candle to how hard it was when it came to telling her she could no longer drive.
Strength, Courage, & Peace
My husband has dementia and take a lot of pills. Often his first batch of pills in am he often vomit them. I’ve started taking his pills awau until he has eaten something. I’m not sure yet if it helps. Then often when he eats a meal he starts coughing. I ask him if he is chocking and he says he just has a tickle in his throat. I am worried one of these times he will aspirate and I’m in a wheelchair and will not be able to help him. He often coughs after drinking water as well.
Bill does the coughing bit after taking pills, drinking water, eating, etc. A speech therapist wanted him to have a test done as he was sure a valve in his throat wasn't working correctly - and could cause him to aspirate but Bill refused. During the couple of times the therapist was there Bill had to cough up a big pill which had gone down the 'wrong' tube. Not a pretty sight. I try to get him to take just one at a time but he insists on doing most of them at once - or won't take them. Although he has always loved taking pills - family always joked that there wasn't a pill he didn't like. I have to take D3 - his doctor said he didn't need it - but Bill insisted it be added to his daily pill taking and that was years ago.
I think his dementia started even before 2013. He would always get mad/upset easily but by 2010 it seemed to increase a 100 fold. He would get upset at the weirdest things. Some commercials would drive him up the wall - into swearing, etc., yet he would insist on watching them. And he would get mad at me if I didn't agree how terrible they were (I always tune commercials out). Seemed so strange to ruin an evening (every evening at that point) over a commercial. Bill used to do commercials as well. Would be fun seeing him on TV in one, or seeing him in the Princess cruise brochure. Maybe that is why he has a strong reaction to commercials. At least now with the new med he no longer seems to notice them.
Wishing you and your husband the best.
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Bill got to come home last Tuesday after about a month in the hospital and skilled NH. The therapy at the NH did wonders for him. He is now receiving some home health - which he doesn't want - for a few weeks. Still not eating well. During the time he was away he lost 20 pounds! Gained a few back but haven't weighed him recently. They took him off his medication for high BP and put him on one for low BP.
Yesterday he claimed he was up 11 times to pee (wants his pee bottle back but the last 3 falls he had were all related to his spilling the bottle, trying to walk on the slippery pee and falling). I normally am aware of when he gets up at night and only remember two times - not 11! We have a camera set up for the kitties so moved it so we could check on Bill - last night he didn't get up once. Will be interesting to see how many times he thinks he got up. I also put a notepad and pen in the bathroom so he could note how many times he is going (has an upcoming doctor's appointment so need a better grip on actual times due to medications). Like a ninny I forgot to check the pad when I got up at 6am - just looked and he is showing about 5 marks - camera still on so it should show when he got up after me.
Dobby, one of the kitties, joins him in bed every morning. We have a rescue kitty, Cutie, hiding under the couch. Cutie is the reason for the cameras to make sure he is coming out to eat, drink and use litter box at night. Can also access from phone so if Robin and I are not we will know if Bill is having problems. He can no longer use a phone unless I dial/answer for him and hold it so he is on speaker phone.
If not one thing it is another. Now he is apparently having explosive bowel moments - sometimes before he gets on the toilet. Apparently he was having them at the nursing home as well. Cleaned up after himself so no one, including me, would know. But then almost passes out in getting back to his chair. He thinks the new medication, Midodrine (to bring his BP up) is causing it.
Home health is supposed to have a nurse and/or doctor visit.
One minute he is saying he feels so good he knows he will make it to 105 - then later he announces he is dying and knows the doctors are keeping it from him.
Using the cameras is a great idea - can’t argue with that proof!
Have you tried Depends at night or won’t he wear them? There is regular underwear that is made with extra padding and I wear these at night - better than Depends because they are washable. They are expensive but they work. You can add extra padding if you need to.
Maybe tell his doctor about the explosions and medication might need adjustment.
He is using depends without fuss. But because he no longer has continually wet pants he thinks he is no longer has the problem.