Scoliosis - Introduce yourself and meet others

I am currently a patient of Dr. Nassr. I saw him in Aug. of 2021. I only saw him once. But my experience with him was very good. He was kind and detail in describing my issues. He spent well over an hour with me. I also exchanged many messages with his nurse and PA. They are all outstanding. Just chiming in with my personal experience regarding Dr. Nassr and his staffs.

I am currently on Evenity because my bone density issue. Will re-evaluate in a few months regarding surgery.

I am interested in additional consult with a Neurosurgeon. Thanks to all who posted their experiences.

I’m about 10 weeks post fusion (T4-S1). Dr Nassr and his team did my surgery. It was a two day surgery.

So far no set backs. I contribute that to his Conservative nature and belief he does everything possible to improve your chances of a positive outcome.

I’ve been on tymlos for just over a year to improve my bone strength as I have osteoporosis. That has worked well.

The pain post surgery Was not bad and I was off all narcotics within a week. I’m back to work part time and I am up to 4 miles walking. Sitting for long periods of time is the biggest issue I have.

Dr Nassr and his team have been wonderful and are quick to respond to all of my post surgery questions.

Best of luck!

Hi, my name is Sandi and I am just here to talk about my experience with surgery for scoliosis. Mine was very short term, a little over a year. It was caused by my L1-2 rupturing. The 2-3 had been gone since 2013 so, the rupture caused my spine to collapse into itself.
I could not figure out why I kept leaning toward the lady sitting next to me in Church. It was very embarrassing. When I was referred to a neurosurgeon in another state, I mentioned that and that my physical therapist said I had to retrain my brain. The doctor turned around and told me my spine was leaning to the left so of course I would be leaning to the left, Puzzle solved.
I went back a month later for what I was told by local PA, was spine reconstruction. It was more painful than any of my fusions. However, my scoliosis was gone, I had a curve in my back again and gained back a half inch like I had asked for him to try for me. After the surgical pain was gone I realized that I did not have the pain that I had fought with for over thirty years. Told the surgeon it was a miracle. He was as surprised as I was that all the pain was gone.
I never really understood what scoliosis was, so I thought I would stop in to see what you all were talking about. Sorry this is so long I tend to give large explanations.

Hello @glaciermom and welcome to Connect. I'm so glad that you shared your good experience with surgery. You must be so pleased to be free from the pain that you experienced for years.

You were wondering about scoliosis. Here is a link to an explanation from the Mayo Clinic's website, https://www.mayoclinic.org/diseases-conditions/scoliosis/symptoms-causes/syc-20350716.

As you can see from reading this article, scoliosis is often first diagnosed in children and can be a result of birth defects or neurological/muscular disorders. From your post, it appears that yours was caused by a rupture of a lumbar disk. Is that correct?

I'm wondering if an accident or other injury caused the ruptured disk.

My name is Judy…I have scoliosis since childhood…I am now 70…it keeps getting worse…can anything be done for it? I have been told no.

I have mild scoliosis. The book, Back Mechanic, by Scott McGill Phd is helping me to understand how I need to function in every day activities. I'm also taking private classes with a McGill practitioner. It's a long process but I do have some relief. I wish you well and hope that you find some help.

I believe I was born with scoliosis. I was in my late thirties when a chiropractor showed me an x-ray of my spine. I thought it was a false x-ray! The curvature is pretty evident to the left just above my hip area. Why this was not addressed before, I will never know. When I thought about it, it explained so many things I could not do as a kid that others did so easily. I believe
the only thing that helped me live with it was having very strong bones and being athletically inclined. It showed itself through my right breast always being a bit lower than my left. Now, at my advanced age of 76, It seems my back is beginning to weaken; I can see the effects very clearly in my visible bone structure. I have lost an inch in height from 5’6” to 5’5”. I usually walk quite upright, so most people don’t notice, but I find myself tired every day from the effort. When I go to the gym, I find I’m also very tired afterwards. I’m concerned that I am on a downhill slide. Any help is appreciated. (Sorry for the long post. Thanks for reading this far!)

My Name is Seyi from Nigeria. How does one manage and prevent Scoliosis progression in an area of very bad and bumpy roads?

My Name is Seyi from Nigeria. How does one manage and prevent Scoliosis progression in an area of very bad and bumpy roads if and if one has no choice but to live in that location. Is bad roads a cause of scoliosis getting worse?

Welcome Seyi. Scoliosis is a progressive condition, but it is impossible to know how much progression a person will have. The degree of progression that a person faces will vary drastically from one person to the next, even if their condition starts out with similar characteristics.

Here's a list of do and don'ts about scoliosis that you might find helpful
- Scoliosis Do's and Don'ts https://www.treatingscoliosis.com/scoliosis-dos-and-donts/

Being jostled on very bad and bumpy roads is not included in the list. But you might adopt some of the stretching and core strengthening exercises to counter the unavoidable travel you must do.