Scoliosis - Introduce yourself and meet others

Let's talk about living with scoliosis.
As a community moderator of the Bones, Joints & Muscles and Spine Health groups, I've noticed several members talking about scoliosis, but those discussions were scattered throughout the community. I thought I would start this discussion to bring us all together in one place.

Get comfortable in your favorite spot, grab a beverage of your choice, and let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Spine Health Support Group.

Has anyone had the Vertiflex procedure done for severe disc degeneration and spinal stenosis at four levels, accompanied by mild scoliosis, and had significant pain reduction? I'd appreciate your experience with the Vertiflex procedure. Thanks. Bill in Arizona.

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@arizonabill

Has anyone had the Vertiflex procedure done for severe disc degeneration and spinal stenosis at four levels, accompanied by mild scoliosis, and had significant pain reduction? I'd appreciate your experience with the Vertiflex procedure. Thanks. Bill in Arizona.

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Hi @arinzonabill, welcome. I think you'll appreciate connecting with members talking about Vertiflex in this related discussion:
- What's your experience with Vertiflex Superion Implant? https://connect.mayoclinic.org/discussion/veriflex-superion-implant/

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Hi, Justin (from April.). I am Marilyn. I have had cervical and thoracic MRIs last week, and will be seeing 2 spine surgeons this Monday & Tuesday for interpretations. (Second opinion together with first opinion.) Will write on results soon.

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Has anyone actually come out completely straitened after a fusion with scoliosis or does everyone bend forward as well? I had L-1 - L-5
Rodded 9 years ago and now I am bending forward. I’m going to pt but still even with exercising I bend forward.

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@jasnat

Has anyone actually come out completely straitened after a fusion with scoliosis or does everyone bend forward as well? I had L-1 - L-5
Rodded 9 years ago and now I am bending forward. I’m going to pt but still even with exercising I bend forward.

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Hi @jasnat, I thought you'd might like to connect with others who have scoliosis to get their take on whether or not they still bend forward after their fusion. People such as @djs51, @klsteffes, @bhamdlr, and @lifetimepain. You will see that I moved your post to the discussion about scoliosis for that purpose.

What did your physical Therapist say about the bending? Did they think that was normal?

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@amandaa

Hi @jasnat, I thought you'd might like to connect with others who have scoliosis to get their take on whether or not they still bend forward after their fusion. People such as @djs51, @klsteffes, @bhamdlr, and @lifetimepain. You will see that I moved your post to the discussion about scoliosis for that purpose.

What did your physical Therapist say about the bending? Did they think that was normal?

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Thank you for doing so. I was trying to find the scoliosis site.

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My physical therapist said she has seen this many times so I have a set of exercises to do. I have to keep standing up every hour that’s one of the most important steps in relieving sciatica

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I am currently a patient of Dr. Nassr. I saw him in Aug. of 2021. I only saw him once. But my experience with him was very good. He was kind and detail in describing my issues. He spent well over an hour with me. I also exchanged many messages with his nurse and PA. They are all outstanding. Just chiming in with my personal experience regarding Dr. Nassr and his staffs.

I am currently on Evenity because my bone density issue. Will re-evaluate in a few months regarding surgery.

I am interested in additional consult with a Neurosurgeon. Thanks to all who posted their experiences.

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I’m about 10 weeks post fusion (T4-S1). Dr Nassr and his team did my surgery. It was a two day surgery.

So far no set backs. I contribute that to his Conservative nature and belief he does everything possible to improve your chances of a positive outcome.

I’ve been on tymlos for just over a year to improve my bone strength as I have osteoporosis. That has worked well.

The pain post surgery Was not bad and I was off all narcotics within a week. I’m back to work part time and I am up to 4 miles walking. Sitting for long periods of time is the biggest issue I have.

Dr Nassr and his team have been wonderful and are quick to respond to all of my post surgery questions.

Best of luck!

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Hi, my name is Sandi and I am just here to talk about my experience with surgery for scoliosis. Mine was very short term, a little over a year. It was caused by my L1-2 rupturing. The 2-3 had been gone since 2013 so, the rupture caused my spine to collapse into itself.
I could not figure out why I kept leaning toward the lady sitting next to me in Church. It was very embarrassing. When I was referred to a neurosurgeon in another state, I mentioned that and that my physical therapist said I had to retrain my brain. The doctor turned around and told me my spine was leaning to the left so of course I would be leaning to the left, Puzzle solved.
I went back a month later for what I was told by local PA, was spine reconstruction. It was more painful than any of my fusions. However, my scoliosis was gone, I had a curve in my back again and gained back a half inch like I had asked for him to try for me. After the surgical pain was gone I realized that I did not have the pain that I had fought with for over thirty years. Told the surgeon it was a miracle. He was as surprised as I was that all the pain was gone.
I never really understood what scoliosis was, so I thought I would stop in to see what you all were talking about. Sorry this is so long I tend to give large explanations.

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