Fibromyalgia: Anyone out there with the same diagnosis?

Posted by dknnkn @dknnkn, Apr 29, 2012

Hello! I was just diagnosed this Friday with Fibromyalgia. Is there anyone out there with the same condition. I am a 37 yr old female that was pretty active until I took a drastic decline with severe increases in pain in August. Initial blood tests were pointing towards lupus, but after a thorough exam---fibromyalgia it is. My rheumatologist started me on a 2 week trial of savella. Thanks so much for any insight you may have for me 🙂

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@alsikkan

I take 7000 to 10000mg of fish oil daily, 12000 mcg vitB12 sublingual each morning for energy, 5mg melatonin at night to help sleep, and 4 homeopathic magnilife fibromyalgia relief tablets daily. I am back to work and feel a lot better. I still have some pain, but it's not been debilitating lately. 2 yrs ago I was on Savella, Neurontin, and Ultram, but I got off the Rx's and went natural. The Rx's made me want to sleep all the time and didn't work as good.

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I am so sorry, Eliz... Today is one of those day's I call: "A day when my whole right side is shot down" ...pain from R jaw line down through toes. I end up worrying about the jaw line pain, afraid there will be something major wrong with a tooth and will require a dental proceedure. 🙁 My R neck hurts so bad...and all the trigger points all the way down...The one thing I know I have done that is different...eating WAY too much beginning Sunday (the 13th), far more meat than usual, and far more sweets than usual...and an elevated stress/level starting when I wake up and that usually wears itself away in several hrs... I know I have to keep AWAY from the computer in the mornings...I honestly believe there could be a connection between the severe fibro on the R side and hours of computer use...and I also am facing it is having a 'mental affect' on me, too. So beginning tomorrow AM, no computer until after lunch, and then limiting the amt of time on it. It is embarrassing to admit how addicted I am to the internet.... and I am the only one who can 'break' this addiction and I intend to. (I am not saying it caused the fibro...had that long before I owned a computer) but I believe that lately it HAS made it worse. We are each different in what trips our trigger points, eh? Eliz, I don't take Rx meds, but maybe you might consider it...its whatever works that makes it "Right" for any one of us.

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Hi dk,
How are you doing? I hope things are going well for you and that you are finding your way to the things that will help you the most. I hope you didn't get more confused and discouraged by all the posts!! 🙂 Sometimes our wanting to 'help' can get a little overwhelming!!... just know you WILL be ok and find your own way to what works best for you!! I hope you have a really good weekend. Have fun and relax!

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Hello I have Fibro as well as diabetics, kidney stones, frequent UTI's, IBS, depression and several other problems. I stay in pain and when I'm in pain my diabetics numbers go up! I have just started applying for my disability. I am 51 yrs old. Any suggestions?

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Go to the mayo clinic!!! And try Savella and an exercise program. Glad to talk to you if you want.
Grammy

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@anon98087003

Hello I have Fibro as well as diabetics, kidney stones, frequent UTI's, IBS, depression and several other problems. I stay in pain and when I'm in pain my diabetics numbers go up! I have just started applying for my disability. I am 51 yrs old. Any suggestions?

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Cut out all processed food, including bread, cake, biscuits, pastries, sweets or savory junk food. Increase your protein inc. beans, lentils, chickpeas, eggs, meat and some dairy (ideally fermented ie. yoghurt, not milk) and include in every meal and snacks. Protein is essential for the production of neurotransmitters needed to support depression and IBS, immune system for UTIs and to regulate blood sugar levels in diabetes. Drink minimum 2 liters water daily. Have Epsom salt baths (300gms salt) daily. Drink green vegetable drinks. All your conditions can be significantly reduced or possibly gone.

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Hi, RondaC here. I had Fibro for years all over my body to the point I could no longer be touched by my husband or anyone. I stopped shopping so no one would bump me. Tried medicines that did not work and made me feel worse. Did some research and found out about our diets and especially what the food industry is putting in our foods. Cut out red meat intirely for two months, felt better, kept it up for a year, felt much much better, went on the second year and no more Fibro. Doctors here in St. Louis said that really works for somepeople. It's the extra hormones they are putting in the beef. You can have chicken, fish and light on the pork, but no red meat. Now I can occassionaly eat a hamburger but there are slight pains in my body if I do. After it's gone through my system, I'm completely OK again. Also, spicy food and set it off and that includes katchup. I seem to do OK here. For me it was just the extra hormones in the beef. Hope this helps you and you are willing to take the two month trial. You'll feel a remarable difference in that time period if you are lucky one like me. Get Well Soon!

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Get regular massages from a therpist experienced in fibromyalgia. Also take 2 to 3 soaking baths (15minutes) with 1 to 11/2 cups of epsom salt.

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@rcisme

Good afternoon all! I'm so glad to have found this site. I am so confused and I don't know where to stop or start. I have seen so many doctors and tried so many pills and I'm so frustrated. I'm afraid to quit taking medication becuase I don't know if it hurts or helps. If anybody can give me your two cents i will appreciate it. Currently I take tramadol, about 200 mg per day, for pain, cymbalta for pain, levothyroxine which is for thyroid. I want to stop some of this. I can't hardly stay awake anymore during the day and it's making work very very hard.

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It is a very painful condition. I have had it for 15 yrs saw doc in Boston who specializes. I found helpful. Tramadol. And muscle relaxant take pain med if necessary. Most important is exercising. Whatever u can do.

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@kaydomac

What is your diet like?

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I am on a low carb high protein diet and have cut out all sugar, breads, pastas, potatoes , and starchy veggies etc. This is the only diet that helps with the fatigue, aches and pains, and brain fogginess.

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