Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I’ve just had a horrible pain in my head

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Profile picture for drg24242 @drg24242

Hi this is Darryl. I finally gave in and called my pain med dr. this afternoon. I could not continue the way I have been feeling. The pain has been getting worse rather than better. Whem the nurse called me back she told me that this is what the dr. was afraid this might happen. I have an emergency appointment for thursday. I was told to bring the Norco's with me, because he can not order any other opiod until returned. She also told me that he want's to perscribe Buprenorphine 5 mcg/hour. It is 5 mcg lower than I had been on but I'm not sure about that. I'll talk to him about his reasoning at appointment.
I also have that day a first time appointment with a reccomended neurologist to discuss my worsoning crpd. Big day on thursday. Thanks for listening.

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@drg24242 Excellent, you made the call and have a plan of action. Good for you! I'm very happy to hear you'll be meeting with a recommended neurologist. You're progressing in the right direction, and I hope you feel pleased about that.

In the meantime, what have you found to be good distraction from discomfort and symptoms? Are you exercising at all? Do you get out of the house regularly? What are your hobbies?

Word search puzzles helped me tremendously keep my brain focused and distracted, but I had to moderate them and know when to take breaks because of symptoms. I went through difficult years of not knowing how to handle pain, which in turn made it a whole lot worse. Also, phone calls or visits from friends, my kids, anyone really...just to talk, and NOT about pain, was huge in allowing my brain a "vacation".

What gives your brain a "vacation"? Inquiring minds want to know?!?! 😊

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Profile picture for river197843 @river197843

Hi I’m new to this my name is jaime

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@river197843 Hi Jaime, welcome! I'm glad you found us. What brings you to Connect and how can we help?

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Profile picture for sdgoddard10 @sdgoddard10

I’m new to this group

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@sdgoddard10 Hey there and welcome to the Chronic Pain group. I see you've been pretty active in other groups and have been having a tough time with shocking sinus pain and depression, I'm sorry for that.

What progress have you made in your journey? Are you still seeking answers about your diagnosis? Do you still have questions? Or are you now in a chronic situation and trying to figure out how to live with it all?

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Profile picture for Rachel, Volunteer Mentor @rwinney

@sdgoddard10 Hey there and welcome to the Chronic Pain group. I see you've been pretty active in other groups and have been having a tough time with shocking sinus pain and depression, I'm sorry for that.

What progress have you made in your journey? Are you still seeking answers about your diagnosis? Do you still have questions? Or are you now in a chronic situation and trying to figure out how to live with it all?

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Hello. Well I’ve going to have an mri this Monday and their has to be something there. I’ve had this trigeminal neuralgia pain for a long time and I’ll be brutally honest. I’ve thought about calling it quits. I was forced to quit my job in November and without my wife’s income I’d be homeless or dead. Sometimes you have to be brutally honest.

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This morning I had a horrible headache and I started swearing and screaming that I wanted to die. My wife was scared and took me in and I took some migraine meds and she massaged my neck and back. That helped but I’m not sure how much longer I can I can take it. Like I dais in another post, this is brutal torture.

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Profile picture for sdgoddard10 @sdgoddard10

This morning I had a horrible headache and I started swearing and screaming that I wanted to die. My wife was scared and took me in and I took some migraine meds and she massaged my neck and back. That helped but I’m not sure how much longer I can I can take it. Like I dais in another post, this is brutal torture.

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@sdgoddard I'm so sorry about your horrible headache this morning. Thankfully, you have migraine meds. Have they helped? What a gift your wife is and how nice that she massages your neck and back. Does ice temporarily relieve any of your neuralgia or migraine pain?

If you are feeling like you need assistance, call or text 988, the 988 Suicide & Crisis:

- https://988lifeline.org/

Have you sought the support of a psychologist during this challenging time? Learning coping strategies and stress management tools can help you work towards feeling more in control of your pain versus the other way around. Positive self-talk helps me a lot, and getting through the next 5 minutes.

When you're overwhelmed, it feels real difficult to handle, but I think you are stronger than you realize. You are persevering to find answers and an understanding of your diagnosis so that you can move forward to a plan of action. Be proud of that and keep your focus on hope. There IS HOPE. Give yourself grace. You've got this!

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Profile picture for Rachel, Volunteer Mentor @rwinney

@drg24242 Excellent, you made the call and have a plan of action. Good for you! I'm very happy to hear you'll be meeting with a recommended neurologist. You're progressing in the right direction, and I hope you feel pleased about that.

In the meantime, what have you found to be good distraction from discomfort and symptoms? Are you exercising at all? Do you get out of the house regularly? What are your hobbies?

Word search puzzles helped me tremendously keep my brain focused and distracted, but I had to moderate them and know when to take breaks because of symptoms. I went through difficult years of not knowing how to handle pain, which in turn made it a whole lot worse. Also, phone calls or visits from friends, my kids, anyone really...just to talk, and NOT about pain, was huge in allowing my brain a "vacation".

What gives your brain a "vacation"? Inquiring minds want to know?!?! 😊

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Hi! I was asked what I'm doing to distract me from my crps pain. A little after sunrise, I take my best friend, my little dog for about 45 min. walk. I really enjoy the calm refreashing air and looking at nature. Very relaxing. During the day, I have learned to put on a soft rock CD's, as pain and anxiety builds, like James Taylor, Micheal McDonald or Dan Folgelburg ect. I know by listing these artist I'm really dating myself. I also will try to find something light, like a comedy movie on TV. Then, about an hour before sunset, my best friend and I go for another long walk, talking to neighbor's along the way, until almost dark. These are thing's that I have learned, from this site in the last month, that I need to do to get out of the worst place for me, my head. Thank's , Darryl

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