Anyone had a problem with neuropathy after receiving the vaccine?

As you know, I had my 4th Pfizer shot Jan 28 and that night the numbness and tingling started. I saw my family doctor and a neurologist several times. I had an EMG, numerous blood tests and a neck MRI. Everything normal.The paraesthesias continued through March. Then in April, my doctor had the idea of putting me on 5 days of prednisone. It seemed to help a little. By May, I felt like I was on the mend with hardly any tingling and numbness. It was 98% better. BUT, a few days ago, I was working in the garden and I felt some tingling in one of my feet and it is now back full strength accompanied with leg pains and back pain. I don't know what to think. I am seeing my doctor again an a week. Throughout this all I have taken Alpha Lipoic Acid on the recommendation of the neurologist, glutamine, my usual vitamins. Also tried gabapentin for several days, which made things worse, so I stopped. Nothing has made the slightest difference.
I live in a small southern Colorado town and have considered traveling to Denver to see a neurologist at a large teaching hospital. I called and the first appointment is 6 months out! December. Maybe I would get an answer up there. My own thought is that I have some some kind of small fiber neuropathy that was triggered by the last vaccine and that may come and go. I would love to get an actual diagnosis however. I wish you the best and hopefully these symptoms will fade for both of us.

I wish I had known about these risks when I got my fourth COVID-19 vaccine, my first Moderna after 3 Pfizer in mid-may. I had no adverse reactions to the three Pfizer shots. Ever since the Moderna vaccine in mid-May 2022, I have been experiencing neuropathy in my feet, hands and all over my body -- for 7 weeks now 😢. The worst symptom is burning mouth syndrome -- it is driving me nuts. I am really worried that I will have neuropathy symptoms for the rest of my life. I have NEVER had any such symptoms and am a very healthy, fit, active 55 year old man.

I am very much regretting the decision to get a fourth vaccine and to mix and match as has been advocated by so many of the "experts". I really wonder if I would have had this reaction if I had taken another Pfizer, since I had had zero reactions to Pfizer.

Is there any hope that my apparently Moderna neuropathy will go away? Does anyone know?

I am really down about this, super down, and could use some good advice, support, anything.

Thank you. 🙏🏻

Yikes, I am so sorry about your situation. I am also in Colorado, in the Denver area.

I wish I had known about these risks when I got my fourth COVID-19 vaccine, my first Moderna after 3 Pfizer in mid-may. I had no adverse reactions to the three Pfizer shots. Ever since the Moderna vaccine, I have been experiencing neuropathy in my feet, hands and all over my body -- for 7 weeks now 😢. The worst symptom is burning mouth syndrome -- it is driving me nuts. I am really worried that I will have neuropathy symptoms for the rest of my life. I had zero such problems until the fourth shot, my first moderna. I am very much regretting that decision. Is there any hope that this will just go away? Does anyone know?

Since yours started in January I was hoping it was better by now! That is interesting that Prednisone temporarily cleared it up so wonder if it is the immune system attacking the nerves. I am in Iowa and I do see an internal medicine Dr at a University teaching hospital though she has not referred me to a neurologist yet but I plan to ask about that. Please keep me updated if you are able to see a neurologist in Denver. And if I see one here I will post updates. Hopefully one of us will learn of something that will help!

Hello,
Sorry you are continuing to have such difficult symptoms. In answer to your question, no I did not have these symptoms prior to my vaccine! I worked full time as an anesthesia provider and was healthy without any type of illness.

It might be a good idea to have your MRI just to rule out any spinal involvement.

Currently, I am receiving IgG infusions every three weeks and I am also receiving immunotherapy. My neurologist did say that he has treated many people for symptoms similar to ours and it was post vaccine. In the beginning I did have difficulty with my primary care MD getting diagnostic testing or referring me to specialty docs. I was very insistent that I see a neurologist and rheumatologist. It took 9 months until I finally got the diagnosis of CIPD related to COVID vaccine.

I hope that you get answers and please keep in touch.
Kim

Hi Kim! Well, I have exciting news. I decided to not go through with the MRI, and instead I went to see a Naturepath Dr. in my area that I had recently met. She put me on a detox program to remove the Covid vaccine out of my system. Within only a week, already my neuropathy symptoms started to fade away. At this point (10 days of detox), I'm about 75% healed from all symptoms. My Naturepath said it takes about a month to have the vaccine out of my system 100%. So, I'm delighted and finally am feeling wonderful. I also have much more energy, and feel so much better. I thought you might enjoy hearing about this.