Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for amyd67 @amyd67

I’ve been dealing with same since my Moderna vaccine, going on 14 months now. Not really pain, but same numbness and tingling/burning in feet and hands. Also radiates up my shins. Neurologist refuses to link to vaccine. I’ve also had autoimmune problems since. All of this is new onset, I have always been healthy. I’ve done my own research. Google “post Covid vaccine syndrome “. A new study and protocol for helping our symptoms has been prepared by doctors who are not in denial. They also state that all of the expensive tests, blood work and MRIs usually show nothing and are not necessary, and mine have all been normal. I’ve been following their protocol and seem to find relief, but have flairs. Good luck, be prepared to have the medical community treat you like you are crazy. Do your own research and take care of yourself.

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Hi again!
I have been searching google for the article you recommended to me, but could not find it, and the photo you enclosed doesn't show up well. Would you be willing to send that article, and/or let me know what the "protocol" is that you are following that has given you relief? I would greatly appreciate it Thank you so much! Tina

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Profile picture for amyd67 @amyd67

I’ve been dealing with same since my Moderna vaccine, going on 14 months now. Not really pain, but same numbness and tingling/burning in feet and hands. Also radiates up my shins. Neurologist refuses to link to vaccine. I’ve also had autoimmune problems since. All of this is new onset, I have always been healthy. I’ve done my own research. Google “post Covid vaccine syndrome “. A new study and protocol for helping our symptoms has been prepared by doctors who are not in denial. They also state that all of the expensive tests, blood work and MRIs usually show nothing and are not necessary, and mine have all been normal. I’ve been following their protocol and seem to find relief, but have flairs. Good luck, be prepared to have the medical community treat you like you are crazy. Do your own research and take care of yourself.

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I just found the article! Thank you!
Tina

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Profile picture for africalady @africalady

Hi again!
I have been searching google for the article you recommended to me, but could not find it, and the photo you enclosed doesn't show up well. Would you be willing to send that article, and/or let me know what the "protocol" is that you are following that has given you relief? I would greatly appreciate it Thank you so much! Tina

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Hi @africalady, We removed your personal email address from your message above. We recommend not posting personal contact information in the public forum. You can use the secure private message function to exchange contact information with @amyd67 or other members.

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Profile picture for africalady @africalady

I just found the article! Thank you!
Tina

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Could you tell me how you found it? I’m looking as well. Thank you!

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I started having Neuropathy after my 1st Moderna vaccine - started with a burning sensation, and now the nerves in my feet tingle, but this sensation has moved up my body into my hands, and even my heart. Has anyone tried using CBD gummies to alleviate these symptoms? These symptoms aren't painful, but very annoying.

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Profile picture for africalady @africalady

I started having Neuropathy after my 1st Moderna vaccine - started with a burning sensation, and now the nerves in my feet tingle, but this sensation has moved up my body into my hands, and even my heart. Has anyone tried using CBD gummies to alleviate these symptoms? These symptoms aren't painful, but very annoying.

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I use CBD gummies, 10mg and it does help. I take one at night with melatonin and helps relieve my symptoms enough to fall asleep. I also have the CBD sports balm that has menthol and peppermint in it, helps cool my feet when the burning starts.

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Profile picture for amyd67 @amyd67

I use CBD gummies, 10mg and it does help. I take one at night with melatonin and helps relieve my symptoms enough to fall asleep. I also have the CBD sports balm that has menthol and peppermint in it, helps cool my feet when the burning starts.

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Thank you for sharing this Amy! I was tempted to buy the CBD, but wanted to know if it does support release of our similar symptoms.

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Profile picture for selene53 @selene53

I received my 4th Pfizer shot on January 28th. To this very day, I am still experiencing nonstop numbness and tingling in my feet and fingers, weird electrical sensations pulsing through my limbs. Some days are better than others, but it never goes away and somedays it just takes over. I have had neck MRIs, EMG, a dozen blood tests looking for auto immune and vitamin issues. Every single test comes back normal. My neurologist believes it may be an auto immune related small fiber neuropathy caused by the vaccine. 2 of my other doctors also believe it is a vaccine side effect. I have tried Neurontin which just made me feel like a zombie and didn't help. I've tried every supplement said to possibly help, no response. I notice when I am stressed or try to do alot of physical activity, it gets worse. After long walks, my feet are numb ,like 2 blocks of ice. Everyone tells me it will go away, whatever "it" is.Whatever it is we are experiencing, I don't believe that there is a test for. Seems like everyone eventually does get better, whether 4 months or a year. I am in my fourth month of this craziness. I have reported it to Pfizer and to VAERS., for what it's worth. As an RN who saw many of my friends and colleagues die of covid before there was a vaccine, I am thankful to still be here , tingling and all. I probably would have stopped at the third shot. However, I am in a high risk group, over 60 and a poor immune system. I also live in an area where many people refused to follow any health precautions, even as the hospitals were piling the dead into refrigerated trucks. I wish everyone well. Oh, BTW, the European health agency (I forget what they are called, equivalent to the CDC) does acknowledge that the Pfizer vaccine can cause paresthesias as a side effect. Why or how to treat it or even diagnose it, no one seems to know.

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I had my 4th Pfizer shot on May 26th 2022 and both hands are numb and tingling starting abruptly on May 28th. I’ve never had these type of symptoms before. I saw my Dr on June 1st and she tested my B12 level which was 300 and told me to take a B12 supplement as she said low B12 can cause this. I’ve been taking 500mcg of Cyanocobalamin B12 for 18 days and have not seen any improvement. The condition has been constant since 2 days after the 4th shot. I’m 57 years old I’ve noticed my typing on my laptop is hindered by this which I need to do for my job. After 3rd dose Nov 2021 I had elevated liver enzymes and would have waited on getting a 4th but my Dr strongly urged me to get it since I had travel to a conference for my work in June. @selene53 have your symptoms improved or worsened? What treatments are you taking for it if any?

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Profile picture for debbie2252 @debbie2252

I had my 4th Pfizer shot on May 26th 2022 and both hands are numb and tingling starting abruptly on May 28th. I’ve never had these type of symptoms before. I saw my Dr on June 1st and she tested my B12 level which was 300 and told me to take a B12 supplement as she said low B12 can cause this. I’ve been taking 500mcg of Cyanocobalamin B12 for 18 days and have not seen any improvement. The condition has been constant since 2 days after the 4th shot. I’m 57 years old I’ve noticed my typing on my laptop is hindered by this which I need to do for my job. After 3rd dose Nov 2021 I had elevated liver enzymes and would have waited on getting a 4th but my Dr strongly urged me to get it since I had travel to a conference for my work in June. @selene53 have your symptoms improved or worsened? What treatments are you taking for it if any?

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As you know, I had my 4th Pfizer shot Jan 28 and that night the numbness and tingling started. I saw my family doctor and a neurologist several times. I had an EMG, numerous blood tests and a neck MRI. Everything normal.The paraesthesias continued through March. Then in April, my doctor had the idea of putting me on 5 days of prednisone. It seemed to help a little. By May, I felt like I was on the mend with hardly any tingling and numbness. It was 98% better. BUT, a few days ago, I was working in the garden and I felt some tingling in one of my feet and it is now back full strength accompanied with leg pains and back pain. I don't know what to think. I am seeing my doctor again an a week. Throughout this all I have taken Alpha Lipoic Acid on the recommendation of the neurologist, glutamine, my usual vitamins. Also tried gabapentin for several days, which made things worse, so I stopped. Nothing has made the slightest difference.
I live in a small southern Colorado town and have considered traveling to Denver to see a neurologist at a large teaching hospital. I called and the first appointment is 6 months out! December. Maybe I would get an answer up there. My own thought is that I have some some kind of small fiber neuropathy that was triggered by the last vaccine and that may come and go. I would love to get an actual diagnosis however. I wish you the best and hopefully these symptoms will fade for both of us.

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Profile picture for selene53 @selene53

As you know, I had my 4th Pfizer shot Jan 28 and that night the numbness and tingling started. I saw my family doctor and a neurologist several times. I had an EMG, numerous blood tests and a neck MRI. Everything normal.The paraesthesias continued through March. Then in April, my doctor had the idea of putting me on 5 days of prednisone. It seemed to help a little. By May, I felt like I was on the mend with hardly any tingling and numbness. It was 98% better. BUT, a few days ago, I was working in the garden and I felt some tingling in one of my feet and it is now back full strength accompanied with leg pains and back pain. I don't know what to think. I am seeing my doctor again an a week. Throughout this all I have taken Alpha Lipoic Acid on the recommendation of the neurologist, glutamine, my usual vitamins. Also tried gabapentin for several days, which made things worse, so I stopped. Nothing has made the slightest difference.
I live in a small southern Colorado town and have considered traveling to Denver to see a neurologist at a large teaching hospital. I called and the first appointment is 6 months out! December. Maybe I would get an answer up there. My own thought is that I have some some kind of small fiber neuropathy that was triggered by the last vaccine and that may come and go. I would love to get an actual diagnosis however. I wish you the best and hopefully these symptoms will fade for both of us.

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Yikes, I am so sorry about your situation. I am also in Colorado, in the Denver area.

I wish I had known about these risks when I got my fourth COVID-19 vaccine, my first Moderna after 3 Pfizer in mid-may. I had no adverse reactions to the three Pfizer shots. Ever since the Moderna vaccine, I have been experiencing neuropathy in my feet, hands and all over my body -- for 7 weeks now 😢. The worst symptom is burning mouth syndrome -- it is driving me nuts. I am really worried that I will have neuropathy symptoms for the rest of my life. I had zero such problems until the fourth shot, my first moderna. I am very much regretting that decision. Is there any hope that this will just go away? Does anyone know?

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