Oh thank you for the photos!! It really helps me get a better understanding of what you’re dealing with. You have psoriasis of the nails and now it’s spreading to other parts of your body. I can sure empathize with the splitting and damage of your nails. It can be so painful and your nails catch on everything!
I went through almost a year of that after chemotherapy. I had to use glue on my nails to hold them in place when they tried to split and also used a clear fingernail polish to keep them intact. They’d catch on clothing all the time! There were several weeks where had to resort to wearing nitrile gloves so I could type, wash dishes, eat, bathe, etc. I’m sure you’re facing similar challenges.
I found another article on our Mayo Website that talks about Nail Psoriasis and how to care for your nails while the treatments start working.
I’ve looked for other members who have similar issues but so far haven’t been successful. So I hope we’ll get some feedback from other members with psoriasis who might be able to offer some suggestions for you.
In the meantime, keep up the good work with making modifications in your diet and keep using the ointment. This will take time for your body to respond. And nails take months to grow out…which is discouraging. But it all happens one cell at a time. We’ll hope for some good progress over the next few months!
Do you have a follow up appointment with a dermatologist?
It’s very reassuring that you have an appointment in couple days. I’m sure your doctor is as frustrated as you are about not being able to stop your progressing psoriasis. But it really does sound to me as though he is very helpful and trying to find the best medication by proceeding slowing.
He doesn’t want to bring out the most aggressive treatment first if your disease can be slowed by using something less powerful. That is the most logical step for a practitioner to take. Some medications can cause other side effects so taking a minimal approach is appropriate. Also, as we talked about, the change to an anti-inflammatory diet will take time for your body to react.
It might eventually calm the inflammation that is causing your immune system to over react because psoriasis is thought to be an autoimmune disease. That’s where your immune system attacks certain areas of your body. If you look back on some of the earlier posts, I’d given you links to really great information about your disease, causes, inflammation and autoimmune disease.
Unfortunately psoriasis isn’t curable but the symptoms can be reduced. But each person’s body reacts differently to treatments. Also, trying to find the underlying condition that triggers the symptoms can really take some time to ferret out.
I know you’re wanting this to be over and I’m really sorry this is leaving you feeling hopeless about finding a solution. But I really think, given a little more time, your doctor will help find something that works for you.
Is this impacting your ability to interact with family or keeping you in the house?
I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH
I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH
I'm sorry to hear that the topical medicine the doctor prescribed is not giving you the relief you had hoped for. How long ago were you diagnosed with psoriasis? Is this the first medicine you have tried?
Mayo Connect has a discussion group on Psoriasis. Here is the link, https://connect.mayoclinic.org/discussion/psoriasis-1/. Here you can meet with other members, like @bio, who have discussed having psoriasis. If you would like to ask a question or make a comment to anyone, just click on "Reply" and you can post your question.
I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH
Hi @xmohashi, I moved your question about tacrolimus ointment for psoriasis to the discussion that @hopeful33250 suggested. Along with @bio I'd like to also bring other members who have experience with psoriasis into this discussion like @rashida@cmtg@missagnes.
@xmohashi, have you told your dermatologist that the condition isn't improving? Do you know what type of psoriasis you have?
I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH
@xmohashi - I think liver problems and/or heart disease are side effects of medications taken for psoriasis. When on medications for psoriasis regular bloodwork is recommended to monitor for side effects of n liver and heart. Does your doctor order regular bloodwork?
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It started from toe and finger last year Around June and now my arms and knee including some part of my body
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1 ReactionOh thank you for the photos!! It really helps me get a better understanding of what you’re dealing with. You have psoriasis of the nails and now it’s spreading to other parts of your body. I can sure empathize with the splitting and damage of your nails. It can be so painful and your nails catch on everything!
I went through almost a year of that after chemotherapy. I had to use glue on my nails to hold them in place when they tried to split and also used a clear fingernail polish to keep them intact. They’d catch on clothing all the time! There were several weeks where had to resort to wearing nitrile gloves so I could type, wash dishes, eat, bathe, etc. I’m sure you’re facing similar challenges.
I found another article on our Mayo Website that talks about Nail Psoriasis and how to care for your nails while the treatments start working.
I’ve looked for other members who have similar issues but so far haven’t been successful. So I hope we’ll get some feedback from other members with psoriasis who might be able to offer some suggestions for you.
In the meantime, keep up the good work with making modifications in your diet and keep using the ointment. This will take time for your body to respond. And nails take months to grow out…which is discouraging. But it all happens one cell at a time. We’ll hope for some good progress over the next few months!
Do you have a follow up appointment with a dermatologist?
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Helpful -
Hug
1 ReactionThank you very much can’t wait for any suggestion
I can feel your frustration with this medication not working for you. Have you tried getting in sooner for an appointment with your dermatologist?
I will meet him this Friday but he has changed medication for the three times so far .
It’s very reassuring that you have an appointment in couple days. I’m sure your doctor is as frustrated as you are about not being able to stop your progressing psoriasis. But it really does sound to me as though he is very helpful and trying to find the best medication by proceeding slowing.
He doesn’t want to bring out the most aggressive treatment first if your disease can be slowed by using something less powerful. That is the most logical step for a practitioner to take. Some medications can cause other side effects so taking a minimal approach is appropriate. Also, as we talked about, the change to an anti-inflammatory diet will take time for your body to react.
It might eventually calm the inflammation that is causing your immune system to over react because psoriasis is thought to be an autoimmune disease. That’s where your immune system attacks certain areas of your body. If you look back on some of the earlier posts, I’d given you links to really great information about your disease, causes, inflammation and autoimmune disease.
Unfortunately psoriasis isn’t curable but the symptoms can be reduced. But each person’s body reacts differently to treatments. Also, trying to find the underlying condition that triggers the symptoms can really take some time to ferret out.
I know you’re wanting this to be over and I’m really sorry this is leaving you feeling hopeless about finding a solution. But I really think, given a little more time, your doctor will help find something that works for you.
Is this impacting your ability to interact with family or keeping you in the house?
I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH
Hello @xmohashi,
I'm sorry to hear that the topical medicine the doctor prescribed is not giving you the relief you had hoped for. How long ago were you diagnosed with psoriasis? Is this the first medicine you have tried?
Mayo Connect has a discussion group on Psoriasis. Here is the link, https://connect.mayoclinic.org/discussion/psoriasis-1/. Here you can meet with other members, like @bio, who have discussed having psoriasis. If you would like to ask a question or make a comment to anyone, just click on "Reply" and you can post your question.
Here is some information from the Mayo Clinic website about psoriasis that might be helpful to you as well,
https://www.mayoclinic.org/diseases-conditions/psoriasis/symptoms-causes/syc-20355840
If you care to share more, what symptom is the most bothersome to you right now?
Hi @xmohashi, I moved your question about tacrolimus ointment for psoriasis to the discussion that @hopeful33250 suggested. Along with @bio I'd like to also bring other members who have experience with psoriasis into this discussion like @rashida @cmtg @missagnes.
@xmohashi, have you told your dermatologist that the condition isn't improving? Do you know what type of psoriasis you have?
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Like -
Helpful -
Hug
4 Reactions@xmohashi - I think liver problems and/or heart disease are side effects of medications taken for psoriasis. When on medications for psoriasis regular bloodwork is recommended to monitor for side effects of n liver and heart. Does your doctor order regular bloodwork?