Psoriasis: What treatment helps?

Posted by bio @bio, Oct 2, 2021

Do you have a cure

Interested in more discussions like this? Go to the Skin Health group.

Thank you very much can’t wait for any suggestion

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@bio

Thank you very much can’t wait for any suggestion

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I can feel your frustration with this medication not working for you. Have you tried getting in sooner for an appointment with your dermatologist?

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I will meet him this Friday but he has changed medication for the three times so far .

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@bio

I will meet him this Friday but he has changed medication for the three times so far .

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It’s very reassuring that you have an appointment in couple days. I’m sure your doctor is as frustrated as you are about not being able to stop your progressing psoriasis. But it really does sound to me as though he is very helpful and trying to find the best medication by proceeding slowing.
He doesn’t want to bring out the most aggressive treatment first if your disease can be slowed by using something less powerful. That is the most logical step for a practitioner to take. Some medications can cause other side effects so taking a minimal approach is appropriate. Also, as we talked about, the change to an anti-inflammatory diet will take time for your body to react.
It might eventually calm the inflammation that is causing your immune system to over react because psoriasis is thought to be an autoimmune disease. That’s where your immune system attacks certain areas of your body. If you look back on some of the earlier posts, I’d given you links to really great information about your disease, causes, inflammation and autoimmune disease.

Unfortunately psoriasis isn’t curable but the symptoms can be reduced. But each person’s body reacts differently to treatments. Also, trying to find the underlying condition that triggers the symptoms can really take some time to ferret out.
I know you’re wanting this to be over and I’m really sorry this is leaving you feeling hopeless about finding a solution. But I really think, given a little more time, your doctor will help find something that works for you.

Is this impacting your ability to interact with family or keeping you in the house?

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I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH

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@xmohashi

I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH

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Hello @xmohashi,

I'm sorry to hear that the topical medicine the doctor prescribed is not giving you the relief you had hoped for. How long ago were you diagnosed with psoriasis? Is this the first medicine you have tried?

Mayo Connect has a discussion group on Psoriasis. Here is the link, https://connect.mayoclinic.org/discussion/psoriasis-1/. Here you can meet with other members, like @bio, who have discussed having psoriasis. If you would like to ask a question or make a comment to anyone, just click on "Reply" and you can post your question.

Here is some information from the Mayo Clinic website about psoriasis that might be helpful to you as well,
https://www.mayoclinic.org/diseases-conditions/psoriasis/symptoms-causes/syc-20355840
If you care to share more, what symptom is the most bothersome to you right now?

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@xmohashi

I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH

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Hi @xmohashi, I moved your question about tacrolimus ointment for psoriasis to the discussion that @hopeful33250 suggested. Along with @bio I'd like to also bring other members who have experience with psoriasis into this discussion like @rashida @cmtg @missagnes.

@xmohashi, have you told your dermatologist that the condition isn't improving? Do you know what type of psoriasis you have?

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@xmohashi

I have been diagnosed with moderate Psoriasis and the doctor prescribed applying Tacrolimus Ointment 0.1% on the affected parts of my skin.
Unfortunately, after a few weeks, my condition is not getting better.
I am quite nervous about the long-term effects of this disease.
I have read that some patients can develop liver and heart disease after living with psoriasis.
I would like to hear about the experience of other members with similar condition.
Thank you
MH

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@xmohashi – I think liver problems and/or heart disease are side effects of medications taken for psoriasis. When on medications for psoriasis regular bloodwork is recommended to monitor for side effects of n liver and heart. Does your doctor order regular bloodwork?

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@bio

It started from toe and finger last year Around June and now my arms and knee including some part of my body

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@bio – I feel for you! I thought my psoriasis was bad, but yours looks far worse! Do you happen to have diabetes too?

I tried all types of lotions, creams, ointments and shampoos, etc., both allopathic and naturopathic but topicals have never worked for me.

What really worked for me – cleared all my psoriasis – was Methotrexate tablets. I took 2.5mg. X 8 tablets once a week and 5mg. Folic Acid the other six days. It took a couple of months to clear up and I stayed plaque free at that dose. Then I was reduced to 6 tablets of Methotrexate once a week with Folic Acid the other six weeks and did quite well at that dose too. But because I also have fatty liver disease my dermatologist reduced my dose to 4 Methotrexate pills and at that dose, my psoriasis started to come back. Since it was inadvisable for me to remain on Methotrexate indefinitely anyway, I was switched to biologics injections. Stelara did nothing for my psoriasis, so now I am trying Skyrizi. It seems to show improvement but time will tell if it will be as effective as Methotrexate was for me.

Unfortunately psoriasis cannot be cured. It can only be controlled. Ask your dermatologist if Methotrexate treatment would be right for you.

Also, ask your doctor if Lyderm gel would work for your skin in the meantime. I had lichen planus in my mouth (related to psoriasis) and although it is not meant for internal use, this gel rubbed on my gums and inside cheeks completely cleared not only internal but external lichen planus. It just might help your feet and hands.

I hope you get some relief soon!

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@rashida

@xmohashi – I think liver problems and/or heart disease are side effects of medications taken for psoriasis. When on medications for psoriasis regular bloodwork is recommended to monitor for side effects of n liver and heart. Does your doctor order regular bloodwork?

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Thank you for clarifying that liver and /or heart disease might come as effects of the medications.
I plan to discuss these issues on my next visit to my Doctor. I am using the ointment, but once and if the doctor prescribes medications, I will request
blood tests as recommended. Many thanks

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@colleenyoung

Hi @xmohashi, I moved your question about tacrolimus ointment for psoriasis to the discussion that @hopeful33250 suggested. Along with @bio I'd like to also bring other members who have experience with psoriasis into this discussion like @rashida @cmtg @missagnes.

@xmohashi, have you told your dermatologist that the condition isn't improving? Do you know what type of psoriasis you have?

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Good afternoon @xmohashi and @colleenyoung. I just wanted to add something about tacrolimus. I use it for neuropathic itch and AD. This is a strong steroid ointment I believe. It is recommended that you only use it twice a day and that you taper the use so that your skin doesn't overreact and become thin. It is also spendy. Good luck. I hope it works for you.
Chris

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@artscaping

Good afternoon @xmohashi and @colleenyoung. I just wanted to add something about tacrolimus. I use it for neuropathic itch and AD. This is a strong steroid ointment I believe. It is recommended that you only use it twice a day and that you taper the use so that your skin doesn't overreact and become thin. It is also spendy. Good luck. I hope it works for you.
Chris

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Appreciate recieving this advice. As mentioned I use the ointment sparingly (twice /day).
Many thanks

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