GI Disorder and Internal Shaking

Sounds like the same thing I'm experiencing. Let me ask, do you also feel like massive anxiety out of nowhere with the internal vibrations/ tremors? I really have it bad and never experienced anything like any of this before.

Hi,
i just saw these posts. And i thought if i answer, it might help someone. I have SIBO and Leaky gut syndrome. And i had internat tremors and other horrible symptoms. The only thing that helped me was a diet with no gluten, no lactose, no sugar. Most of the time only vegetables and fruits. That was when my symptoms got less and less over time. I hope you got better since then though. Because of the leaky gut i had a sensitivity for gluten, lactose and sugar. That‘s why, after i ate these things, in the night i was getting those weird tremors. I also had tinnitus and brain fog, i felt anxiety and my muscles feld very stiff. The most horror thing was the asthma at night , i couln’d sleep because i wasn’t able to breath. I took some medication for asthma, but none made it go away. I tried everything, i went to a lot of doctors and no one could help me. Besides i am a doctor myself and i didn’t know what’s going on with me. I am really happy that i feel better now.

I've had them since my bloating started a few years ago, slowly getting worse. Mine are in my trunk and abdomen. My internist just looks puzzled when I mention them and the gastroenterologist says to just take otc laxatives for my "obstipation" - both responses meaning they don't know. Yours is connected with diarrhea - not usually my issue unless I overdo the laxatives.
I have tried to pay more attention to mine and find they sometimes just stop but for no reason I can determine. But they are mostly present so I have tried to ignore them like tinnitus or chronic pain or whatever has unfortunately become ongoing.
I think this group is to help one another. We may be the only "someones". Just keep looking for help.

Do your tremors get worst at night? I try to go to sleep and it’s like a motor going off inside. I even tried melatonin but it didn’t calm them down.

I haven't noticed they get worse at night. I'm wondering if what feels like my tremors and shaking is actually atrial fibrillation or palpitations, but it feels like it is in my lower intestines. However I haven't taken the time to try a pulse oximeter to check out atrial fib.
Sorry to hear that yours interfere with your sleep. Had you heard that melatonin might help? How do you finally get the sleep you need?

Thanks for replying. I tried 2mg of melatonin & it didn’t do anything. I think I’ll try a higher dose tonight. My tremors were so bad that i stayed up till 2:30am and they were strong. Mine were going up to my neck. I have atrial fib and it wasn’t that for me. My gastroenterologist gave me dicyclomine. I really don’t get the sleep i need. …3 1/2 hrs last night. I just hope and pray that I’ll get a better night sleep tonight. I don’t know if i should call my gastroenterologist tomorrow or call a neurologist. I’m tried of feeling this way.

Again, so sorry to hear that you aren't getting your sleep. I feel lucky to get 4 hrs of sleep/night, so 3 1/2 hrs. doesn't sound very bad to me but I know I don't get enough sleep.
When I looked up dicyclomine on Medline Plus Drug Information, I found: "Dicyclomine side effects: fast or slow heartbeats, pounding heartbeats or fluttering in your chest".
Like you suggested, good to talk to a doctor about it. I know much less about all this than you. Would you sleep as much as you wanted if you didn't have the tremors?
Keep us informed.

Thanks I will. I usually slept about 6 hrs before the temors started. Hopefully the drs don’t pass it off as anxiety like I’ve heard on other comments. Take care.

Hello,

I am dealing with the EXACT same thing after Covid. This has been week number 6, though my symptoms seem to be improving as I am on a beta blocker. I am curious, 2 years later, did you ever receive a formal diagnosis? Thank you so much for sharing your story.

Thanks for replying. I tried 2mg of melatonin & it didn’t do anything. I think I’ll try a higher dose tonight. My tremors were so bad that i stayed up till 2:30am and they were strong. Mine were going up to my neck. I have atrial fib and it wasn’t that for me. My gastroenterologist gave me dicyclomine. I really don’t get the sleep i need. …3 1/2 hrs last night. I just hope and pray that I’ll get a better night sleep tonight. I don’t know if i should call my gastroenterologist tomorrow or call a neurologist. I’m tried of feeling this way.