GI Disorder and Internal Shaking

Posted by gigiraj @gigiraj, Feb 15, 2019

Hi all. I'm a 21 year old South Asian female and I have been having GI issues for about five years--mainly along the lines of constipation. I do have bowel movements every day but it takes a long time & I am rarely fully cleared out. These GI issues are always accompanied by other health issues (gas, pressure in head, etc). Recently, some scary new conditions have manifested: In the past few weeks, there have been times where my heart starts beating wildly and very fast. Sometimes, when I'm tired and constipated, my entire body feels like its vibrating internally; the shakes aren't visible but it feels like all my muscles are quivering. At this point, I feel a constant shaking/quivering within my body, especially in my heart cavity.

I have had TWO EKG's and both came back normal. All lab tests for diabetes, hypertension, cholesterol, etc came back within normal limits. I am very concerned about this internal shaking. My dad says he found something about how GI disorders can impact muscoskeletal system and since the heart is a muscle, it's contracting and being affected. But I wanted to know if anyone here can help!!!!!!! If anyone knows anything at all please please please let me know!!!!!

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for notmoff @notmoff

I haven't noticed they get worse at night. I'm wondering if what feels like my tremors and shaking is actually atrial fibrillation or palpitations, but it feels like it is in my lower intestines. However I haven't taken the time to try a pulse oximeter to check out atrial fib.
Sorry to hear that yours interfere with your sleep. Had you heard that melatonin might help? How do you finally get the sleep you need?

Jump to this post

Thanks for replying. I tried 2mg of melatonin & it didn’t do anything. I think I’ll try a higher dose tonight. My tremors were so bad that i stayed up till 2:30am and they were strong. Mine were going up to my neck. I have atrial fib and it wasn’t that for me. My gastroenterologist gave me dicyclomine. I really don’t get the sleep i need. …3 1/2 hrs last night. I just hope and pray that I’ll get a better night sleep tonight. I don’t know if i should call my gastroenterologist tomorrow or call a neurologist. I’m tried of feeling this way.

REPLY
Profile picture for loveofdogs @loveofdogs

Thanks for replying. I tried 2mg of melatonin & it didn’t do anything. I think I’ll try a higher dose tonight. My tremors were so bad that i stayed up till 2:30am and they were strong. Mine were going up to my neck. I have atrial fib and it wasn’t that for me. My gastroenterologist gave me dicyclomine. I really don’t get the sleep i need. …3 1/2 hrs last night. I just hope and pray that I’ll get a better night sleep tonight. I don’t know if i should call my gastroenterologist tomorrow or call a neurologist. I’m tried of feeling this way.

Jump to this post

Again, so sorry to hear that you aren't getting your sleep. I feel lucky to get 4 hrs of sleep/night, so 3 1/2 hrs. doesn't sound very bad to me but I know I don't get enough sleep.
When I looked up dicyclomine on Medline Plus Drug Information, I found: "Dicyclomine side effects: fast or slow heartbeats, pounding heartbeats or fluttering in your chest".
Like you suggested, good to talk to a doctor about it. I know much less about all this than you. Would you sleep as much as you wanted if you didn't have the tremors?
Keep us informed.

REPLY
Profile picture for notmoff @notmoff

Again, so sorry to hear that you aren't getting your sleep. I feel lucky to get 4 hrs of sleep/night, so 3 1/2 hrs. doesn't sound very bad to me but I know I don't get enough sleep.
When I looked up dicyclomine on Medline Plus Drug Information, I found: "Dicyclomine side effects: fast or slow heartbeats, pounding heartbeats or fluttering in your chest".
Like you suggested, good to talk to a doctor about it. I know much less about all this than you. Would you sleep as much as you wanted if you didn't have the tremors?
Keep us informed.

Jump to this post

Thanks I will. I usually slept about 6 hrs before the temors started. Hopefully the drs don’t pass it off as anxiety like I’ve heard on other comments. Take care.

REPLY
Profile picture for loveofdogs @loveofdogs

Thanks I will. I usually slept about 6 hrs before the temors started. Hopefully the drs don’t pass it off as anxiety like I’ve heard on other comments. Take care.

Jump to this post

I wonder if it was the doctor who felt anxious because he/she didn't know what was causing your tremors. Here's wishing you a peaceful sleep tonight.

REPLY
Profile picture for jordann23 @jordann23

Hello,

I am dealing with the EXACT same thing after Covid. This has been week number 6, though my symptoms seem to be improving as I am on a beta blocker. I am curious, 2 years later, did you ever receive a formal diagnosis? Thank you so much for sharing your story.

Jump to this post

Hi, I asked my doctor for a beta blocker. Which one are you on?
Thanks

REPLY
Profile picture for loveofdogs @loveofdogs

Thanks for replying. I tried 2mg of melatonin & it didn’t do anything. I think I’ll try a higher dose tonight. My tremors were so bad that i stayed up till 2:30am and they were strong. Mine were going up to my neck. I have atrial fib and it wasn’t that for me. My gastroenterologist gave me dicyclomine. I really don’t get the sleep i need. …3 1/2 hrs last night. I just hope and pray that I’ll get a better night sleep tonight. I don’t know if i should call my gastroenterologist tomorrow or call a neurologist. I’m tried of feeling this way.

Jump to this post

My doctor thought Bentyl wouldn't help and might make things worse. They gave me Levsin which I only tried once. I asked my doctor for a beta blocker. Haven't tried yet.

REPLY
Profile picture for loveofdogs @loveofdogs

I’m so sorry you are going thru this too. I also have IBS-D . Recently I’ve been taking Metamucil crackers. It seems to be helping me. I’m also on a anti spasmodic drug to help with the internal tremors form the last 2 weeks. I’m still having the tremors all day and night. I had my gallbladder remove 20 yrs ago. Reading your article sounds like what i go thru.

Jump to this post

Which antispasmodic drug? Is it working?

REPLY
Profile picture for rllanders @rllanders

I experienced internal shaking. I could never determine a correlation to any event like eating or anything else. The worse times were when I was pregnant and attended outdoor baseball games, my babies would shake inside of me as if they were terribly cold. I recently had an Electrophoresis and found that I have a Persistence of Fetal Heme. This makes me wonder if having less oxygen in my blood has anything to do with it. I have tried to donate blood on several occassions and was always told at 10.5 heme that I don't have enough to share. I was recently hospitalized and a brilliant doctor checked my magnesium levels. I'm 65 and to my knowlege no one has ever checked my Mg. It was found to be depleted. I was given a shot which felt like stars of energy going throughout my body and felt immediately better! Apparently, it's an iron and is not usually tested for, even though it's next to potassium, salt and calcium on the chart of elements. Perhaps it's essential because ever since having this shot, I have not experienced a tachycardia which I had experienced nightly for years or internal shaking or what I described as "burning blood." Electrophoresis costs $3-$60 and only takes a couple of days. I believe more people should have this to see if they also have heme that is different. Mine has a Gamma Globulin. I have noticed that Mosquitos don't bite me. Maybe they don't like my heme.
I also feel more energized in high elevations. Maybe this heme is good for that.

Jump to this post

Did they check your RBC Magnesium or regular magnesium?

REPLY
Profile picture for Amanda Burnett @amandaa

Hi @crayola1 and welcome to Mayo Clinic Connect. Glad you decided to join the group! You will see that I moved your post to a long standing discussion about GI disorders with internal shaking. There are lots of members talking about this and I think you would really benefit from reading their posts.
Have you consulted with a physician regarding this yet?

Jump to this post

Hi Amanda, Sorry for the delay in response. I just found my post. I didn't realize I had to sign in to see if I got a reply. I have been to several doctors. I have had a scope which showed gastritis so I am taking Nexium and Linzess for constipation. I am doing a Sibo test tomorrow. I did a home a sleep study which showed my airway shut down when I woke up shaking so now Ill do an in lab one. But that wouldn't explain the shaking I have during the day like before and after I have to go to the bathroom or sometimes with different movements or positions. My Primary Care doctor has no idea. My neurologist isnt sure but is paying attention. The GI Nurse Practitioner gave me Levsin which I tried once but didn't seem to help. Ill try it again. So far my Heart tests are fine. I would like to do a longer holter but may just try a beta blocker because its so uncomfortable when it happens that I just want a solution. Any suggestions you have for doctors or tests to ask about or treatments I can ask my doctor about I appreciate. Thanks

REPLY
Profile picture for crayola1 @crayola1

Which antispasmodic drug? Is it working?

Jump to this post

Hi! I’m on dicyclomine 2x a day. I take it in the am and right before i go to bed. It’s helping me because it stops the spasms in my gut. I just started B12 shots. My B12 was very low. I’ve noticed a big difference in my internal tremors. I’m getting the shot weekly. I also started a special magnesium supplement. Hope this helps.

REPLY
Please sign in or register to post a reply.