Spouse with cognitive problems and finances

Posted by Julie Chitwood @billchitwood, Feb 25, 2022

Bill uses a computer everyday, and has nothing but problems with it. He blames his Dell and I'm pretty sure it is the user lol. He has decided to buy another one (second in a year) and going to very suspect sites. If he does get a new one it won't 'work' for him either! Once again he asked me for our address.

He still has enough memory to think he knows what he is doing. I've had to get us out of quite a few scams that he has fallen for (keeps buying hearing aids while having an excellent pair). I don't know how to protect our finances from him - at least not without major battles. So far in the past year he has bought two computers. One I could give our math teacher daughter for her school (non returnable). The other is his Dell. He also has a working Lenovo, which he says is bad - besides having a crack from his throwing it, it does work ok.

He wants to buy every ad he sees on TV - especially supplements that his doctor says are bad for him. I hid the credit card but some sites we use are auto pay and in spite of everything he remembers how to access those.

Any suggestions?

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

@colleenyoung

Hi @janet7, I'm glad that you can connect here with Julie aka @billchitwood, @tsc @rgalitis @teacher502 and others.

I completely understand the feeling of what you said, "Fear of the unknown is starting to weigh on me so I must live just for today, and it’s a struggle." It is so important to live each day and hour as it comes, but also not losing yourself or your health.

Feeling more confident in your decisions is not easy when caring for someone with dementia. What seems like an absolute necessity one day may turn on a dime the next to be a non-issue. You can't help but doubt your assessment of the situation with these fluctuations. I'll be interested in hearing from others about how they learned to accept the future and trust their decisions and where they found support to make and uphold them.

So, let's start with one day at a time. How are you doing today, Janet?

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So agree. We just put our house on the market and will be living with our daughter. Yesterday Bill looked like he was going to collapse yet as soon as the realtor arrived he perked right up and was better walking, etc. I'm looking at him, thinking, 'is this the same Bill as a half hour ago?' - as soon as she left he was back in his exhausted state again. Sometimes I think I'm doing to much for him - but then he couldn't figure out how to use the phone - so backwards again. He was managing to finally connect - only problem it wasn't our son, it was an emergency number! No idea how he managed that. Just the day before our 16 month great grandson managed to dial 911 on his Mom's phone - she went looking for a way to child proof her phone. I think I need to child proof Bill's phone lol.

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@janet7

Hi Coleen, I’m feeling better today knowing that I am no longer alone,
thank you.

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Hi Coleen, having sign-in troubles after I just found the Mayo app and you.

I am asking my husband if he would be interested in an experimental study
for Alzheimer’s/Dementia. We just went to his doctor and she said there
were no more meds available for Dementia but I read meds for Alzheimer’s
does help with Dementia. It’s worth a try!
Have you heard of this before?

Janet

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@janet7

Hi Coleen, having sign-in troubles after I just found the Mayo app and you.

I am asking my husband if he would be interested in an experimental study
for Alzheimer’s/Dementia. We just went to his doctor and she said there
were no more meds available for Dementia but I read meds for Alzheimer’s
does help with Dementia. It’s worth a try!
Have you heard of this before?

Janet

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Hi Janet, it looks like you were able to sign-in. Phew. If you ever have technical issues, go to the bottom of any webpage on the Mayo Clinic Connect website (the footer) and click Contact Mayo Clinic Connect. That sends an email to me and you don't need to be signed in to get technical help.

Dementia and all the various types can be confusing. Dementia is the umbrella or general term for decline in cognitive abilities. There are many types of dementia. Alzheimer's is one type of dementia. It is a specific disease.

While medications can't reverse Alzheimer's, there are some medication that can temporarily help manage some symptoms. See more information here:
- Alzheimer's: Drugs help manage symptoms https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers/art-20048103

News stories with attention-grabbing headlines sometimes announce exciting new treatments, studies or even cures for Alzheimer's. Usually these treatments are still in the experimental stage. This article helps untangle some of the claims made in Alzhiemer or demential "breakthroughs" reported in the news.

- How to Evaluate the Latest Dementia Treatment "Breakthrough" https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/repost-how-to-evaluate-the-latest-dementia-treatment-breakthrough/

Janet, do you have more information about the experimental study to which you refer?

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@billchitwood

So agree. We just put our house on the market and will be living with our daughter. Yesterday Bill looked like he was going to collapse yet as soon as the realtor arrived he perked right up and was better walking, etc. I'm looking at him, thinking, 'is this the same Bill as a half hour ago?' - as soon as she left he was back in his exhausted state again. Sometimes I think I'm doing to much for him - but then he couldn't figure out how to use the phone - so backwards again. He was managing to finally connect - only problem it wasn't our son, it was an emergency number! No idea how he managed that. Just the day before our 16 month great grandson managed to dial 911 on his Mom's phone - she went looking for a way to child proof her phone. I think I need to child proof Bill's phone lol.

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Hi, @billchitwood Your post reminded me again of something with my wife. When it was a very special occasion, she could muster the energy to make it that day. However, the anxiety leading up to it and the exhaustion for the three days following were incredibly tough on her. Our favorite holiday was Thanksgiving and at first, she could make it the day, then half, then an hour, but always surprised me with her ability to make some hidden energy to do it. Not so for Christmas or other days.

With her phone, I did program speed dial for the few numbers she used most, like our kids, my cell, and her best friend. It helped stop the misdials and she could remember I was 1, daughter was 2, etc.

Strength, Courage, & Peace

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He has given up on all family functions. Sad as he is missing so much. Doesn't want family/friends over.
I have a few contacts set up for him but he doesn't remember how to make a phone call most of the time.
Just back from getting his hearing aids and remote fixed - he had goofed up the battery so goofed up the pairing. But first an emergency trip to the Vet's for our kitty as she showed up this morning with blood in her urine. Now he is singing. He used to have a wonderful voice but now it is worse than mine and I have the worse singing voice ever!

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@billchitwood

He has given up on all family functions. Sad as he is missing so much. Doesn't want family/friends over.
I have a few contacts set up for him but he doesn't remember how to make a phone call most of the time.
Just back from getting his hearing aids and remote fixed - he had goofed up the battery so goofed up the pairing. But first an emergency trip to the Vet's for our kitty as she showed up this morning with blood in her urine. Now he is singing. He used to have a wonderful voice but now it is worse than mine and I have the worse singing voice ever!

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(I hope it's a) Good morning, @billchitwood

My wife's world collapsed down to a tiny circle as well. Outside stimulations were overwhelming to her mind, having anyone over caused her anxiety that their mere presence might interfere with her daily routine, plus there was a part of her that just didn't want to be judged by others. Most importantly, I think (just me) daily living demanded so much of her energy it was all she could truly manage and was truly exhausted her each day.

For the entire 14 years of my wife's war we never turned on a TV, radio, music, etc. and she hated when the telephone rang. I guess our patients try and control what they can in their shrinking world.

I bet we could have a great 'bad voice' singing contest! Thanks for the laugh!

Strength, Courage, & Peace

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@IndianaScott

(I hope it's a) Good morning, @billchitwood

My wife's world collapsed down to a tiny circle as well. Outside stimulations were overwhelming to her mind, having anyone over caused her anxiety that their mere presence might interfere with her daily routine, plus there was a part of her that just didn't want to be judged by others. Most importantly, I think (just me) daily living demanded so much of her energy it was all she could truly manage and was truly exhausted her each day.

For the entire 14 years of my wife's war we never turned on a TV, radio, music, etc. and she hated when the telephone rang. I guess our patients try and control what they can in their shrinking world.

I bet we could have a great 'bad voice' singing contest! Thanks for the laugh!

Strength, Courage, & Peace

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Long night as he was very restless. At one point I noticed him putting his pillow on the floor and asked what was wrong. He was trying to get down onto the floor to sleep with Lady Gray, our kitty with UTI - which she wasn't having any of. If he had gotten down he wouldn't have been able to get back up. Lots of talking in his sleep.

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@billchitwood

Long night as he was very restless. At one point I noticed him putting his pillow on the floor and asked what was wrong. He was trying to get down onto the floor to sleep with Lady Gray, our kitty with UTI - which she wasn't having any of. If he had gotten down he wouldn't have been able to get back up. Lots of talking in his sleep.

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My husband has adopted the habit of waking up after a few hours of
sleeping, playing Solitaire in his recliner for a few hours, and then back
to bed. I wonder if this habit has changed him. It seems the last few weeks
he has changed from the energetic enthusiastic man I know into an old man
who walks slow, talks slow, and is just tired of it all. He even talked
about giving some items away to other family members. But he does keep
buying expensive items. I know I will have to make changes so he cannot
continue to put us into debt.

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@janet7

Reading your message about your husband, I can relate to you because we both have the same situations and I am relieved because I am not alone or going crazy. Fear of the unknown is starting to weigh on me so I must live just for today, and it’s a struggle. I hope to learn from this group so I am more confident about my decisions that I alone must make for my husband and myself.

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I am sorry but I can’t see all you wrote. I am having a problem signing in.

@janet7

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@janet7

My husband has adopted the habit of waking up after a few hours of
sleeping, playing Solitaire in his recliner for a few hours, and then back
to bed. I wonder if this habit has changed him. It seems the last few weeks
he has changed from the energetic enthusiastic man I know into an old man
who walks slow, talks slow, and is just tired of it all. He even talked
about giving some items away to other family members. But he does keep
buying expensive items. I know I will have to make changes so he cannot
continue to put us into debt.

Jump to this post

I know what you are facing. Bill hasn't been driving (thank heavens!) for over two years - doesn't leave the house - but is now insisting we need to buy a new expensive car (ours sits in the garage a lot lol). He also has a thing for wanting to buy everything advertised on the TV and responds to spam emails. Gets irate when I stop him. I have to be constantly on the alert. Nerve racking. Once he buys something then he wants me to get him out of it.

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