COVID vaccines and neuropathy

That’s great! It’s crazy how the vaccine has effected people so differently. Unfortunately I wasn’t so lucky. I always taken supplements too, would you mind sharing what you’ve been taking? You never know what may have made the difference.

D3 2000 mg bid (twice daily)
Vit c 250-500 mg qd (once daily)
Ubiquinol 200 mg bid
N-acetyl-L-Cysteine 500 mg bid
High dose R-lipoic Acid 300 mg bid
Acetyl-L-Carnitine 1000 mg bid
B multivitamin alternating with women’s vitam
B-12 1200 mcg qd (I’m on pariet for reflux which interferes with B-12 absorption)

For depression and cognitive issues I also take
Resveratrol concentrate 250 mg qd
PQQ-10 200 mg

The other thing that I think helped was getting my cholesterol under control with exercise, diet and medication over the last two years. It wasn’t terribly high but of any of my blood work, my neurologist was the most concerned it. I’ve also lowered my alcohol intake, not that it was very high to begin with but very little bit helps.

Note: These have been recommended by a medically trained naturopath and my psychiatrist. I also did some research on mitochondrial dysfunction as my smart neurologist believes that they’ll eventually discover that is the underlying cause of post viral neuropathy.

I’m looking into glutamine right now but am not on it at this point.

All the best! Please research these and consult a doc or medically trained naturopath!

D3 2000 mg bid (twice daily)
Vit c 250-500 mg qd (once daily)
Ubiquinol 200 mg bid
N-acetyl-L-Cysteine 500 mg bid
High dose R-lipoic Acid 300 mg bid
Acetyl-L-Carnitine 1000 mg bid
B multivitamin alternating with women’s vitam
B-12 1200 mcg qd (I’m on pariet for reflux which interferes with B-12 absorption)

For depression and cognitive issues I also take
Resveratrol concentrate 250 mg qd
PQQ-10 200 mg

The other thing that I think helped was getting my cholesterol under control with exercise, diet and medication over the last two years. It wasn’t terribly high but of any of my blood work, my neurologist was the most concerned it. I’ve also lowered my alcohol intake, not that it was very high to begin with but very little bit helps.

Note: These have been recommended by a medically trained naturopath and my psychiatrist. I also did some research on mitochondrial dysfunction as my smart neurologist believes that they’ll eventually discover that is the underlying cause of post viral neuropathy.

I’m looking into glutamine right now but am not on it at this point.

All the best! Please research these and consult a doc or medically trained naturopath!

Good morning, this is what was recorded in the visit notes: "The etiology of X's episodic facial numbness is unclear, but X relates onset to X COVID vaccine. It is possible that X suffered a post-vaccine autoimmune nerve injury." I am now seeing a well-regarded Doctor of Osteopathy and after two treatments the numbness has subsided significantly. That doctor did record the issue as a vaccine injury.

X = my name and gender pronouns

That's so great! Would that were the case for each person's unique biology. The only way to know for sure is take your chances.

Both my doctors, PCP and neurologist, have attributed the numbness and tingling to a "vaccine injury" after my 4th covid shot. The neurologist said it could have triggered a latent issue, which I didn't know I had any. I am due for an EMG and a C spine MRI. She wants to rue out a demyelination disease and a spine inflammation. She is thinking small fiber neuropathy or maybe even a mild Guillan Barre. After seeing her and being validated however, my anxiety went through the roof. It will take weeks to get anything scheduled here and then what? There doesn't seem to be any solutions. Hopefully time cures all. I certainly can't turn the clock back and not get that shot even though I wish to heavens I didn't do it. I am an RN working with the Native American population and have many friends and colleagues who have died before the vaccine was available. I am high risk myself. So, I thought I was doing a good thing. Sigh. She did say stop taking multi B vitamins and try Alpha Lipoic Acid, which I have already been doing. So far, one month of non stop tingling, numbness and muscles twitches. It's driving me crazy.

Both my doctors, PCP and neurologist, have attributed the numbness and tingling to a "vaccine injury" after my 4th covid shot. The neurologist said it could have triggered a latent issue, which I didn't know I had any. I am due for an EMG and a C spine MRI. She wants to rue out a demyelination disease and a spine inflammation. She is thinking small fiber neuropathy or maybe even a mild Guillan Barre. After seeing her and being validated however, my anxiety went through the roof. It will take weeks to get anything scheduled here and then what? There doesn't seem to be any solutions. Hopefully time cures all. I certainly can't turn the clock back and not get that shot even though I wish to heavens I didn't do it. I am an RN working with the Native American population and have many friends and colleagues who have died before the vaccine was available. I am high risk myself. So, I thought I was doing a good thing. Sigh. She did say stop taking multi B vitamins and try Alpha Lipoic Acid, which I have already been doing. So far, one month of non stop tingling, numbness and muscles twitches. It's driving me crazy.