Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

This is the first time I have used this forum and am wondering about using art cherry juice for gout as I use only natural remedies if at all possible. I also have read that recent trauma can reactivate gout. I would appreciate any suggestions. Thank you!

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@writer99

This is the first time I have used this forum and am wondering about using art cherry juice for gout as I use only natural remedies if at all possible. I also have read that recent trauma can reactivate gout. I would appreciate any suggestions. Thank you!

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Hello @writer99, Welcome to Connect. I think it's wise to be proactive with your health and look for natural ways to help maintain your health. There is another discussion on gout that you might want to read through to learn what other members have shared helps them.

-- What are the best ways to manage Gout? Diet ideas welcome: https://connect.mayoclinic.org/discussion/gout-1/

Here's some information on the topic of trauma causing gout flares that might be helpful -- "Injury to some joints, especially your big toe, can also trigger a gout attack. This may happen because it causes inflammation and attracts uric acid crystals to the joint " --- What Causes Gout to Flare Up? Foods, Medications, and More: https://www.healthline.com/health/gout-triggers

Do you mind sharing a little more about your current gout flare? Can you think of any possible triggers that may have caused it?

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@johnbishop

Hello @writer99, Welcome to Connect. I think it's wise to be proactive with your health and look for natural ways to help maintain your health. There is another discussion on gout that you might want to read through to learn what other members have shared helps them.

-- What are the best ways to manage Gout? Diet ideas welcome: https://connect.mayoclinic.org/discussion/gout-1/

Here's some information on the topic of trauma causing gout flares that might be helpful -- "Injury to some joints, especially your big toe, can also trigger a gout attack. This may happen because it causes inflammation and attracts uric acid crystals to the joint " --- What Causes Gout to Flare Up? Foods, Medications, and More: https://www.healthline.com/health/gout-triggers

Do you mind sharing a little more about your current gout flare? Can you think of any possible triggers that may have caused it?

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I had it for the first time about a week ago, but never before . I was very stressed then. It went away and then came back again in both toes after a sudden surge of bad news. The left toe is okay now, just a bit red. The right one really hurts, but if I stay off it, not so bad.
I had seen the Mayo Clinic list, but noticed that healthline conflicts some with Mayo. I go to the Mayo and Cleveland Clinic for health info. I eat a natural diet with mostly organic foods and supplements. Other than the stress of the news and a small amount of whiskey (less than a regular shot, which I haven't had in ages), I really don't know. I do have serious osteoarthritis and am not young, except in spirit! Thank you for replying!

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@writer99

This is the first time I have used this forum and am wondering about using art cherry juice for gout as I use only natural remedies if at all possible. I also have read that recent trauma can reactivate gout. I would appreciate any suggestions. Thank you!

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Hello @writer99, welcome to Connect. I have high levels of uric acid due to one of my medications. I also have painful neuropathy in my feet. When my uric acid levels started to rise, the pain was quite excruciating.

Like you I try to manage what I can by eating well. The links John posted are helpful and will help you know what foods to avoid, if you don’t know already. I don’t drink and I don’t eat beef or pork. I also don’t eat refined sugars, white flour, etc. I used to eat turkey, but I’ve been phasing it out of my diet as I notice that I can get gout flare ups from it.

I’ve done research on cherries, which does seem to show a correlation in reducing uric acid in one’s body. Plus, they’re healthy certainly won’t hurt! My diet and eating 5-6 cherries each day seems to be working for me. I’ve not had a bad flare for a couple months. I buy frozen unsweetened cherries and keep them in a small jar in my refrigerator. I’ll be getting my quarterly labs done next month so I’ll be able to see what my uric acid levels are at.

Here’s an article - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6535740/

Best wishes, Athena

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@athenalee

Hello @writer99, welcome to Connect. I have high levels of uric acid due to one of my medications. I also have painful neuropathy in my feet. When my uric acid levels started to rise, the pain was quite excruciating.

Like you I try to manage what I can by eating well. The links John posted are helpful and will help you know what foods to avoid, if you don’t know already. I don’t drink and I don’t eat beef or pork. I also don’t eat refined sugars, white flour, etc. I used to eat turkey, but I’ve been phasing it out of my diet as I notice that I can get gout flare ups from it.

I’ve done research on cherries, which does seem to show a correlation in reducing uric acid in one’s body. Plus, they’re healthy certainly won’t hurt! My diet and eating 5-6 cherries each day seems to be working for me. I’ve not had a bad flare for a couple months. I buy frozen unsweetened cherries and keep them in a small jar in my refrigerator. I’ll be getting my quarterly labs done next month so I’ll be able to see what my uric acid levels are at.

Here’s an article - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6535740/

Best wishes, Athena

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Thanks, Athena. Good information on that site. I often go there, but missed that particular one.
I just remembered something I'd forgotten that happened before I had the first gout attack. I am very thin and underweight. Since I overdo and then become very tired, I thought (wrongly it turns out) that if I upped my protein it might give me more energy. Even though grass fed or as natural as possible for chicken, even ham, after a holiday meal of boeuf bourguignon, the next morning I was in agony with both toes. Looked it up online and it said that could also set it off.
Very careful now, back to eggs and some cheese until I find a balance.

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@writer99

Thanks, Athena. Good information on that site. I often go there, but missed that particular one.
I just remembered something I'd forgotten that happened before I had the first gout attack. I am very thin and underweight. Since I overdo and then become very tired, I thought (wrongly it turns out) that if I upped my protein it might give me more energy. Even though grass fed or as natural as possible for chicken, even ham, after a holiday meal of boeuf bourguignon, the next morning I was in agony with both toes. Looked it up online and it said that could also set it off.
Very careful now, back to eggs and some cheese until I find a balance.

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Unfortunately, one can find out the hard way with flare ups. I stick mostly with soy products, beans, and duck for protein. I only cook meat in sauces, beans, casseroles, so it limits the amount of protein I get in a single meal. Maybe that helps? It’s great you perceptive and tracking! Do you take cherries?

I’m also fairly thin, 5’ 5”, 107 pounds. So, I do a protein drink made with Orgain protein powder each morning to supplement. It’s a natural product and the plain flavor has no sweetener. It hasn’t thus far, anyway, bothered me.

Let me know if you find more useful info to share!

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@athenalee

Unfortunately, one can find out the hard way with flare ups. I stick mostly with soy products, beans, and duck for protein. I only cook meat in sauces, beans, casseroles, so it limits the amount of protein I get in a single meal. Maybe that helps? It’s great you perceptive and tracking! Do you take cherries?

I’m also fairly thin, 5’ 5”, 107 pounds. So, I do a protein drink made with Orgain protein powder each morning to supplement. It’s a natural product and the plain flavor has no sweetener. It hasn’t thus far, anyway, bothered me.

Let me know if you find more useful info to share!

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Thanks for the suggestion. I checked out the ingredients and the only one I could be allergic to are chia seeds. I have multiple allergies, and can be allergic to almost anything...and have! So I will try to locate another protein powder. Now if I could only remember the one I used to take?
I do use buckwheat which I find very good for health. I eat it as a cereal and also can be used in many vegetarian/vegan recipes.
Take care.

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@johnbishop

@theodore1238, My neurologist basically told me the same thing, there's nothing he can do to help with the numbness and said just to call if it gets worse. That's what brought me to Connect and searching for what coud help. The Foundation for Peripheral Neuropathy has some information on exercises that might be helpful here -- https://www.foundationforpn.org/living-well/lifestyle/exercise-and-physical-therapy/

They had a webinar on May 21, 2021 you might find helpful also.

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I was the first patient to receive platelet rich plasma injections in my feet today for neuropathy . At the Fargo Sanford Podiatry department.

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So, is thee a widely held view among neuropathy patients that diet change provides big improvement in symptoms?

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