Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for rnlorena @rnlorena

I have small fiber neuropathy non length dependent also. Can you tell me how yours started? Mine started when I woke up one morning sudden onset. It was everywhere. Pinpricks. I have read where people have had the shots and then had those symptoms. My shots were in January. I woke up one am in March and mine was full blown on. I have eye pains also. I want to take the flu shot and a booster for Covid but I am worried about it. This is new to me so I am just trying to take it all in. Mine may be idiopathic. I will know soon.

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I've had the eye pain as well... neuropathy in face and thighs is more prominent

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Profile picture for nance78 @nance78

Hi Joey.
I had my first shot 4 days ago, it brought pin and needles. I am worried of having the second dose. How do you feel now?

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How are you doing? I had the same reaction and still have flares 11 moths later. Wondering if others are having long lasting symptoms?

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I have peripheral neuropathy and I have had the 3 vaccine shots from Pizer with absolutely no problems...Madge

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Have neuropathic pain in the legs after my Moderna booster on November 16th and had the same after the 2 vaccines, lasting a month or a bit more. I'm in the 6th week now and it seems to be improving.

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Profile picture for twobrooklyn @twobrooklyn

The problem is PN is not curable regardless of the reason.

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No, it’s not curable, regardless of the source. But, hopefully, we can find what best controls symptoms, avoiding advancement. That solution is likely different for everyone and may need to be tweaked, or altered, from time to time.

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I never had neuropathy. I had back surgery with a fusion 2 years ago and it has caused me so many problems. I got my first 2 COVID Pfizer shots and only symptom was my left arm pit would get really red and then peal. I got my booster and now I have neuropathy which I have never ever had before. I'm not sure if it is from the booster but since I never had neuropathy before and then to get it after my booster makes me think the booster caused the neuropathy. Anyone else feel like this? I'm so frustrated because my surgery was a failed back surgery and now onto of this I have to deal with painful neuropathy.

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Profile picture for faust73 @faust73

I never had neuropathy. I had back surgery with a fusion 2 years ago and it has caused me so many problems. I got my first 2 COVID Pfizer shots and only symptom was my left arm pit would get really red and then peal. I got my booster and now I have neuropathy which I have never ever had before. I'm not sure if it is from the booster but since I never had neuropathy before and then to get it after my booster makes me think the booster caused the neuropathy. Anyone else feel like this? I'm so frustrated because my surgery was a failed back surgery and now onto of this I have to deal with painful neuropathy.

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My doctors here thing it was caused either by the virus or the vaccines themselves, nothing else makes sense, but who really knows.

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I’ve had PN for many years, but we’ll controlled with medication. First Pfizer vaccine Aug 2nd and 12 hours later symptoms worsened and went up into both lower legs. Dr advised me, this would go away and I needed to get 2nd vaccine. Six hours later PN symptoms intensified and moved up both legs also involving both hands and arms. Currently, I have PN in both arms, hands, legs, feet, trunk and face. Neurologist and primary care dr, both feel the vaccines triggered a hyper immune response and “may” go away in time.

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Profile picture for faust73 @faust73

I never had neuropathy. I had back surgery with a fusion 2 years ago and it has caused me so many problems. I got my first 2 COVID Pfizer shots and only symptom was my left arm pit would get really red and then peal. I got my booster and now I have neuropathy which I have never ever had before. I'm not sure if it is from the booster but since I never had neuropathy before and then to get it after my booster makes me think the booster caused the neuropathy. Anyone else feel like this? I'm so frustrated because my surgery was a failed back surgery and now onto of this I have to deal with painful neuropathy.

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I had some neuropathy due to a spinal cord tumor. It mostly went away after removal of the tumor, but the Pfizer shots really fired it up again. Now-three months after the Pfizer booster-it has mostly gone away. It seems-from the comments on this page- fairly certain that there is an association between the vaccine and neuropathy flares. I hope that your neuropathy also fades as time goes by!

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Profile picture for milly93 @milly93

I had some neuropathy due to a spinal cord tumor. It mostly went away after removal of the tumor, but the Pfizer shots really fired it up again. Now-three months after the Pfizer booster-it has mostly gone away. It seems-from the comments on this page- fairly certain that there is an association between the vaccine and neuropathy flares. I hope that your neuropathy also fades as time goes by!

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I had my Moderna booster almost 6 weeks ago and the neuropathic pain and cramps seem to lessen a bit now, but in fact it's still on and off...high humidity and up it flares again. Let's hope we don't need a booster too often, or that they can tweak it a bit so it doesn't hurt people with a compromised immune system the way it does now. Not sure if that's possible though.

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