Anyone had a problem with neuropathy after receiving the vaccine?
I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?
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@dhamill I plan to get a flu shot tomorrow. I’ll report back in a few days. I’ve been hesitant this year. Haven’t missed a flu shot in 30 years but after Pfizer induced neuropathy I am a different person. The flu reports are already bad. I’m not sure if it’s media hype or what, but I’m going to take the plunge. Fingers crossed.
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1 ReactionI had the flu shot. No issues but am worried and neuropathy and getting booster
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2 ReactionsI have not gotten the covid vaccine as I am still positive for antibodies. I have a painful case of neuropathy and I do not want to chance it getting worse with the vaccine. I did just get my flu shot last week and have had no reaction to it. I’ve gotten it for at least 15 yrs and only had one reaction.
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1 ReactionThis is the first article I’ve seen that documents the neurological side effects of the Covid vaccinations.
Neurological side effects of SARS-CoV-2 vaccinations
Josef Finsterer
First published: 08 November 2021
https://onlinelibrary.wiley.com/doi/10.1111/ane.13550
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3 ReactionsThank you for posting this. It's a start!
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1 ReactionAgreed. Finally at least some affirmation that there are potential neurological impacts from these vaccines.
I got the booster as I had no antibodies. The day after I felt like I was hit by a Mack truck. The days following I was fine.
Thank you for the link. It seems to validate my small fiber neuropathy as a result of the Pfizer vaccine. Is anyone getting advice from their neurologists/physicians about getting a booster? My neurologists say don't get it because I'll have a worse reaction. But I don't want to die of COVID. What advice are others getting from their doctors? Please relay. Thank you.
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1 ReactionThank you. I experienced a flare up in my small fiber neuropathy after the 2nd shot. I clicked on the note in this first article, which led me to an abstract in another article, which described my experience to a T. Anyway, thank you.
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1 ReactionI no longer go to a neurologist. We know my small fiber neuropathy is from celiac disease (at one point they suspected it was from my primary immune deficiency) and once I figured out my diet it flared down completely. I had not had a flare in months, maybe even a year or more, before getting the vaccine.
The small fiber neuropathy flared with the first shot but went away. It flared with the 2nd shot, and has diminished, but I am still experiencing a flare. Weirdly, I have pain in my small finger joints now - which had previously not been affected by my small fiber neuropathy. My normal areas of pain from small fiber neuropathy are all flared down now, but my small finger joints are still being affected.
We have moved and I no longer have a neurologist nor do I think I need one currently, or I would ask a neurologist. I did ask my immunologist (well his staff) and my PCP. I also talked with folks at The Immune Deficiency Foundation. They were all aware of neurological flares. They felt the risk, in my case, of not getting vaccinated outweighed the neuropathy - in my case. They said I could be put on Gabapentin or some other medication I have now forgotten the name of. I declined, hoping the neuropathy would flare back down again. It has. It has flared down almost entirely, but I worry about getting a booster. I really worry about getting frequent boosters. I am positive it will flare up my neuropathy. The question is how badly will it flare. It has been awful in the past. It was so bad that it felt like I was walking on glass, I could not feel part of my face, I got burning and stabbing pains. It felt like someone was sticking needles into my toes. Some places felt numb. Anyway, when all that flared down completely for all those months - well I felt like I had been given my life back. I had other problems from untreated celiac disease and those improved as well. Anyway, to risk my health now, because of a booster is a weighty decision. I am jealous of all the ground I gained back. Still, I know the risk of actually getting the virus. It is quite the dilemma I find myself in. My husband is so worried about my immune deficiency (I have something called common variable immune deficiency - although I am borderline at this point so not being treated, just monitored). He worries what the virus will do to me. I think my doctors are in that camp too. So, I will probably get one booster and then hope for the best. I am terrified, though to be frank. My best friend thinks I am a moron after getting the 2nd shot. But, it is my decision.
I hope this helped. I am afraid my situation may be too different from yours to be much help.