COVID vaccines and neuropathy

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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@dbeshears1

Hi – my head swirls at all the information sometimes! B Complex works for you? I have not tried yet, want to be careful. What symptoms does it help for you? My docs have zero idea what has caused my neuropathy, but 5 years ago they said “MAYBE” a vitamin deficiency or “MAYBE” too much B6 (kinda like the medicine warnings “may cause diarrhea OR constipation, May cause drowsiness OR sleeplessness….). Anyway, back then I didn’t take B6 or any other vitamin supplements, so they have succeeded in making me nervous about taking anything without narrowing down more specifically the MAYBE vitamins with more affirmative tests. But I have heard folks talk B Complex and would like to hear your thoughts. Thanks!

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My doctor recommended B12 only, not B6. I use the over the counter sublingual. This way more goes directly into your system rather than ingesting it. It does seem to help.

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@emf21

Hello everyone. I am reading your stories and convinced their absolutely has to be severe side effects like this from the Covid vaccinations! I had my 2nd Moderna vaccine on May 24th of last year and 2 1/2 months later I developed numbness on my right side from my buttocks down thru my foot! I have had this for 5 months now! Never experienced anything like this before. I am a Diabetic, however, it is interesting that this neuropathy and numbness developed shortly after getting the vaccine. I also got sick after vaccine number two with body aches, chills and 102.5 fever. I am really suspect of this vaccine now and afraid to get the booster. The neuropathy continues to get worse with burning, overactive nerve sensations that shoot thru my foot, hot and cold sensations, numbness etc. My PCP agrees there is a possibility this was caused by the vaccine.

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Good morning,
I had similar issues after my Moderna vaccines. My left foot and leg had numbness and tingling and it went to my other extremities over a period of about 2 months. It was very challenging for providers to make a diagnosis. After about 10 months of seeing various providers the neurologist said I have CIDP and the underlying cause is Lupus that might be caused by the vaccine but can not be sure. I am currently being treated with IGg infusions. I am a provider myself and even though I had many challenges post vaccine I am glad that it prevented me from getting COVID! I I am alive and able to talk about it!

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@emf21

Hello everyone. I am reading your stories and convinced their absolutely has to be severe side effects like this from the Covid vaccinations! I had my 2nd Moderna vaccine on May 24th of last year and 2 1/2 months later I developed numbness on my right side from my buttocks down thru my foot! I have had this for 5 months now! Never experienced anything like this before. I am a Diabetic, however, it is interesting that this neuropathy and numbness developed shortly after getting the vaccine. I also got sick after vaccine number two with body aches, chills and 102.5 fever. I am really suspect of this vaccine now and afraid to get the booster. The neuropathy continues to get worse with burning, overactive nerve sensations that shoot thru my foot, hot and cold sensations, numbness etc. My PCP agrees there is a possibility this was caused by the vaccine.

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So glad you shared this. I am type 11 diabetic, 82 years old, eat basically the same diet for years. After the second Pfizer dose a spike in my AIC and my thyroid levels went crazy. I do have neuropathy also. In ten years I have had 3 femur breaks, 1 shattered wrist, 2 broken ankles and 2 broken shoulder bones plus arthroplasty of my right thumb. I was very active and always athletic. I was trying to walk long distances and was doing great. Now after 2 doses, it felt like someone drilled a hole in my hips, severed low back pain, and hamstrings hurt. I could barely get out of bed. I would wake up at night crying from neuropathy pain. I have every oil on the market. No relief.
Skeleton 💕💕💕🙏🙏🙏🙏🙏🙏

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I preface the below my stating that this is a obviously a health forum. Comments regarding any perceived association between the COVID vaccine and PN should be (and in my case are) completely independent of any political views or influence. It's solely a public health issue.

With that as the preface, I have had SFN since 1994. It was generally mild, with periodic flareups. The first Pfizer dose caused no reaction, but exactly three weeks after the second dose, my legs started burning with intense pins and needles and a marked increase in fasciculations. It has generally gone unabated without a return to baseline for the past 11 months. Feeling permanent at this stage.

I understand that views and associations noted on in this forum – and by me as well – are purely anecdotal and not scientific. That said, I do believe that the vaccine is responsible for the marked worsening of my symptoms. I understand too that COVID itself has caused some to get PN symptoms in close proximity to contracting the virus. Anecdotal as well.

I just think it important that people have all the information they need to make informed decisions, no different than any other medical decision. I am profoundly NOT anti-vax. I get the flu shot annually and my entire family, including my three teenagers and wife, are fully vaccinated (and wife is boosted). Given my apparent reaction, however, I have (perhaps not surprisingly) elected to not get the booster at this time.

Take good care,

JayB

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@cyp238ress

I preface the below my stating that this is a obviously a health forum. Comments regarding any perceived association between the COVID vaccine and PN should be (and in my case are) completely independent of any political views or influence. It's solely a public health issue.

With that as the preface, I have had SFN since 1994. It was generally mild, with periodic flareups. The first Pfizer dose caused no reaction, but exactly three weeks after the second dose, my legs started burning with intense pins and needles and a marked increase in fasciculations. It has generally gone unabated without a return to baseline for the past 11 months. Feeling permanent at this stage.

I understand that views and associations noted on in this forum – and by me as well – are purely anecdotal and not scientific. That said, I do believe that the vaccine is responsible for the marked worsening of my symptoms. I understand too that COVID itself has caused some to get PN symptoms in close proximity to contracting the virus. Anecdotal as well.

I just think it important that people have all the information they need to make informed decisions, no different than any other medical decision. I am profoundly NOT anti-vax. I get the flu shot annually and my entire family, including my three teenagers and wife, are fully vaccinated (and wife is boosted). Given my apparent reaction, however, I have (perhaps not surprisingly) elected to not get the booster at this time.

Take good care,

JayB

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100% agreed. I had the reaction after both shots and the booster (all Moderna) and it's stil ongoing. My neuro surgeons says it can definitely be caused by the vaccine as he has other patients teling him the same things. This is why reporting to VAERS is so important: it might go from 'anecdotal' to facts. And from there, the vaccines can be finetuned.

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Yes, I developed numbness and pain in my feet and ankles the morning after my booster shot. I had the booster shot on Monday December 13th at 7pm and the next morning develop a “superficial blood clot” in my left inside ankle and both ankle are very painful to walk with. My feet go numb at nighttime and painful when I walk during the daytime. I am an active 64 year old and feel very tired and achy now for this past month which is unusual for me. I hope this subsides!

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@ninette

100% agreed. I had the reaction after both shots and the booster (all Moderna) and it's stil ongoing. My neuro surgeons says it can definitely be caused by the vaccine as he has other patients teling him the same things. This is why reporting to VAERS is so important: it might go from 'anecdotal' to facts. And from there, the vaccines can be finetuned.

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I have small fiber peripheral neuropathy. Three Moderna shots appear to be responsible for my dramatic increase in neuropathy symptoms.

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I’ve had neuropathy in my feet since getting the second of two Pfizer COVID vaccines. Also tired too and I’m normally very healthy. I have my first appointment with a rheumatologist in March.

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DrBeen Medical Lectures on YouTube provide a balanced science-supported discussion of the potential mechanisms for the adverse vaccine effects some are experiencing. He makes the content understandable for a non-medical audience. One recent topic is potential management approaches for autoimmune disease caused by the spike protein (such as I developed with resulting peripheral neuropathy). For example, he discusses the potential merits of anti-inflammatory treatments. I hope physicians are watching this video series.

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@pacer3702

DrBeen Medical Lectures on YouTube provide a balanced science-supported discussion of the potential mechanisms for the adverse vaccine effects some are experiencing. He makes the content understandable for a non-medical audience. One recent topic is potential management approaches for autoimmune disease caused by the spike protein (such as I developed with resulting peripheral neuropathy). For example, he discusses the potential merits of anti-inflammatory treatments. I hope physicians are watching this video series.

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Do you have the you tube link?

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@austintraining

Do you have the you tube link?

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Here's the YouTube channel for Drbeen Medical Lectures
https://www.youtube.com/channel/UCrtd2wePvAl6RN_D-9jWVQQ

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@cyp238ress

I preface the below my stating that this is a obviously a health forum. Comments regarding any perceived association between the COVID vaccine and PN should be (and in my case are) completely independent of any political views or influence. It's solely a public health issue.

With that as the preface, I have had SFN since 1994. It was generally mild, with periodic flareups. The first Pfizer dose caused no reaction, but exactly three weeks after the second dose, my legs started burning with intense pins and needles and a marked increase in fasciculations. It has generally gone unabated without a return to baseline for the past 11 months. Feeling permanent at this stage.

I understand that views and associations noted on in this forum – and by me as well – are purely anecdotal and not scientific. That said, I do believe that the vaccine is responsible for the marked worsening of my symptoms. I understand too that COVID itself has caused some to get PN symptoms in close proximity to contracting the virus. Anecdotal as well.

I just think it important that people have all the information they need to make informed decisions, no different than any other medical decision. I am profoundly NOT anti-vax. I get the flu shot annually and my entire family, including my three teenagers and wife, are fully vaccinated (and wife is boosted). Given my apparent reaction, however, I have (perhaps not surprisingly) elected to not get the booster at this time.

Take good care,

JayB

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How to report to VAERS?

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