Alternative Treatments for MAC: immunotherapy, etc.

Posted by jspremich @jspremich, Apr 5, 2018

I was diagnosed with MAC a little over 2 years ago. Have not yet starting taking antibodies. Although I suspect this will happen in the very near future. Has anyone explored alternative treatment, i.e. immune therapy?

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Nancy C | @nac1 | Nov 4, 2021

In reply to @colleenyoung "Welcome to Connect, @jspremich You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/..." + (show)

Who is conducting the Nitric Oxide studies?

Colleen Young, Connect Director | @colleenyoung | Nov 4, 2021

In reply to @nac1 "Who is conducting the Nitric Oxide studies?" + (show)

Nancy, do you have a link to the nitric oxide studies to which you refer?

Nancy C | @nac1 | Nov 10, 2021

In reply to @colleenyoung "Nancy, do you have a link to the nitric oxide studies to which you refer?" + (show)

I might have picked it up in random research or from the NTM 2019 Conference on You Tube. Several excellent speakers including Dr. Charles Daley from National Jewish Health. I keep watching to catch everything recorded.

poodledoc | @poodledoc | Oct 17, 2022

In reply to @colleenyoung "Nancy, do you have a link to the nitric oxide studies to which you refer?" + (show)

Colleen @colleenyoung Here is a link to latest info on Nitric Oxide as a non-antibiotic treatment for NTM/MAC. https://www.beyondair.net/news-events/press-releases/beyond-air-announces-positive-data-from-at-home-pilot-study-in-patients-with-refractory-ntm-lung-infection-treated-with-no-using-the-lungfit-go-at-the-chest-annual-meeting-2022/ Bill

heathert | @heathert | Oct 17, 2022

In reply to @poodledoc "Colleen @colleenyoung Here is a link to latest info on Nitric Oxide as a non-antibiotic treatment..." + (show)

Thanks @poodledoc this is great news, wonder how long before it is on the market. Heather

ClaireW | @katlan | Oct 18, 2022

Sounds so promising!! No more big 3; that would be a dream! I wonder what the cost will be and when itll be available.

northland | @northland | Oct 27, 2022

In reply to @jkiemen "I had one pulmonologist tell me the only way to boost your immunity is to make..." + (show)

Yes, Vit D is really important that the levels are normal. Also Vit A. I found this on pubmed and brought the articles to my MD who checked my blood and sure enough they were both low. Interesting articles!

irenea8 | @irenea8 | Oct 28, 2022

In reply to @northland "Yes, Vit D is really important that the levels are normal. Also Vit A. I found..." + (show)

You want to try a vitamin D and then re test some time later to see if it has brought your levels up. I found that a vitamin D spray or a liposomal version brought my levels up (around 80 now) whereas a regular D did not. Also if you take D you also need to take vitamin K.