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jspremich
@jspremich

Posts: 4
Joined: Apr 05, 2018

Alternative Treatments for MAC: immunotherapy, etc.

Posted by @jspremich, Thu, Apr 5 4:25pm

I was diagnosed with MAC a little over 2 years ago. Have not yet starting taking antibodies. Although I suspect this will happen in the very near future. Has anyone explored alternative treatment, i.e. immune therapy?

REPLY

Welcome to Connect, @jspremich
You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/
I'd like to bring @windwalker @ling123 @lindam272 @tdrell @boomerexpert and others into this discussion about therapy advancements for MAC and alternates to antibiotics.

JSPremich, what have you found out about immunotherapy for MAC?

I am not sure if there is any immune therapy out there. I am still waiting to see what the inhaled Nitric Oxide studies will reveal.

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Charlie, Thanks for that information. I am beginning to feel the need to start taking things to boost my immune system. My MAC has been stabilized since last July (thank you, God!) but I am far from healthy by any means. You mention "other supplements to fight MAC." Might I ask what those are please? Linda

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Amen to that!

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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What other type of supplements are you taking to boost I'm mine system???

@colleenyoung

Welcome to Connect, @jspremich
You'll find another related discussion on Connect about alternative therapies here: https://connect.mayoclinic.org/discussion/alternative-herb-medications/
I'd like to bring @windwalker @ling123 @lindam272 @tdrell @boomerexpert and others into this discussion about therapy advancements for MAC and alternates to antibiotics.

JSPremich, what have you found out about immunotherapy for MAC?

Jump to this post

Nothing yet. It's why I put out the feeler, hoping others may know of a possible immune therapy. I've asked my infectious disease md, but no response yet. Will let you know when I know. jerry s

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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@charlie999 Thank you for all of that info, Charlie. It is funny that all of us are thinking about ways to boost our immune systems at the same time. I guess that is all that is left to think about as we have hashed and rehashed everything else concerning this disease. I have been using raw honey for months to sweeten my coffee & tea. It is suppose to have good health benefits and is an antibacterial. I have been doing pretty well. Not sure if the honey helps, but it sure tastes good. I am glad to hear that you are doing well also. Better ct scan and no cough…Yay!!!

Liked by tdrell, Jen_b

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Thank you, Charlie for naming what you are taking. Very helpful.

@jkiemen

I am not sure if there is any immune therapy out there. I am still waiting to see what the inhaled Nitric Oxide studies will reveal.

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I had one pulmonologist tell me the only way to boost your immunity is to make sure your Vitamin D levels are adequate

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Hi Linda, Sophia and all our Brothers and Sisters on the forum. I am tied up today on a project, but will put together the info you asked for tonite, and send it to you. God Bless. Charlie

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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Charlie, I thank you for naming what you are taking. Jane Brown

@charlie999

I am also praying for the NO break thru. Got off the big three because it was affecting my liver and probably other organs as well. Taking powdered NO twice daily, and several other alt supplements to boost my immune system as high as possible. Also, avocado, red onions and garlic every day. Dr reported my last ct scan as improved. I have no cough or other symptoms. Also taking prebiotic and probiotics daily, as well as Super Bio-curcurmin, Immune Senescence, and other supplements to fight Mac. May God Bless and spread His Tender Mercy to all on our forum.
Charlie

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My pleasure, Jane. I listed a few supplements in my previous post and have been asked to list all, so here we go…MSM (methylsufonglmenthame), white mulberry,mushroom extract, maqui, clove, resveratrol, ground flaxseed, artichoke extract, blueberry extract, nut rim oats, aakg nitric oxide, and elderberry. I buy all these in powder form and mix with 8 oz of apple juice in a blender. Don’t like to swallow capsules. tip: I usually prepare a two week supply in zip bags.
Please understand ** I am not a medical person of any kind. Over the past few years I have developed an interest in alt supplements and wish I could find a real professional recipe. If anyone has an idea on this, or can suggest an additive to mine, sure would be glad to know about it.

Blessings to all,

Charlie

At the request of several members, I posted a list of supplements that I take. I am not suggesting that anyone take any supplement without first clearing it with your medical provider. This is very important.
Courteously,

Charlie

Liked by Jen_b

Thank you so much, Charlie! I printed out that list and will do some research of my own to see what would work best for me. Blessings, Linda

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