Thyroid? Or something else? Constant internal shakiness

@caseyn2020 hello. Have you just thought about a university hospital or major medical center in your state? When i got so sick with my autoimmune disease, no one at the local hospital knew anything about it. My husband called the university hospital near us, tried to explain everything going on, and asked for help. At the time, i was too sick to transfer, so the university doctor explained the use of high dose steroids, which i was given over several nights. When i was ‘with it’ enough, i went to the university hospital. Thank heavens! The neurologist there directs the care i receive in my town. University hospitals have higher levels of doctors than do local hospitals.
Can you at least call the medical center/university hospital and see what they say?

Hi there, have you figured out the cause of your internal tremors since you posted over a year ago? I’ve been getting them as well for about 6 months now. Mainly in my chest area, but can sometimes feel the jolts in my back, by my sternum, and the back of my head. These mainly happen when I’m sitting or laying down, not so much when I’m up walking around. I’ve had an EKG, holter monitor, and an echocardiogram in the last 2 weeks, and they see nothing wrong with my heart. So frustrating. Nobody understands 😞

Hi, yes, I was diagnosed with hypothyroidism about 5 years ago, and Hashimotos about 2 months ago

Pretty interesting.... Taking any thyroid medication yet? My theory on this is that the thyroid gland is sending out too much hormone, maybe because of nodules or who knows. But I've tried to see if completely suppressing my own thyroid again will help. I'm trying to get my TSH close to zero.

Hi Olive, are you working with your doctor suppressing your thyroid?

Good morning, well after waiting 2 months for skin biopsy results it came back
“ normal “ this don’t feel normal and idiopathic neuropathy means to me they have no clue, just saying… So going on 4 yrs later I told my local neurologist that I’m guessing I’m just going to have to live with this 😮‍💨

Hi @jewles63, I just have the numbness with my idiopathic small fiber PN and it can be a little depressing not knowing the cause behind the neuropathy. I was diagnosed through physical exam along with nerve conduction tests which weren't normal. They guessed mine may be hereditary and I can go along with that since I have a younger sister that has similar symptoms and another younger sister who passed away that had neuropathy due to diabetes. I also have some cousins with neuropathy. I do think cellular nutrition plays a part after reading Dr Terry Wahls story about her struggle with MS - https://terrywahls.com/about/about-terry-wahls/

The diagnosis may not be the answer we want but it can provide some incentive for us to learn as much as we can about our condition so that we can make better choices and ask better questions of our doctors. Hopefully along the way of our path of learning more about our condition we can run across something that helps us.

What amazes me is the how many health conditions can look similar and make diagnosis more important and difficult at the same time. Here's some information from 2015 on the topic.

Syndromes Mimic Nerve Entrapment of Peripheral Neuropathy: https://www.spineuniverse.com/professional/news/aans/syndromes-mimic-nerve-entrapment-peripheral-neuropathy

Are you still having the chest pains and vibrations? Just wondering if you found anything that gives you some relief.