1. < Diabetes & Endocrine System

Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what's happening when the episodes happen. So far my doctors are clueless.

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caseyn2020 | @caseyn2020 | Aug 29, 2021
In reply to @becsbuddy "@caseyn2020 hello. Have you just thought about a university hospital or major medical center in your..." + (show)
@becsbuddy

@caseyn2020 hello. Have you just thought about a university hospital or major medical center in your state? When i got so sick with my autoimmune disease, no one at the local hospital knew anything about it. My husband called the university hospital near us, tried to explain everything going on, and asked for help. At the time, i was too sick to transfer, so the university doctor explained the use of high dose steroids, which i was given over several nights. When i was ‘with it’ enough, i went to the university hospital. Thank heavens! The neurologist there directs the care i receive in my town. University hospitals have higher levels of doctors than do local hospitals.
Can you at least call the medical center/university hospital and see what they say?

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I will definitely look into it. Thank you

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olivesn | @olivesn | Aug 30, 2021
In reply to @caseyn2020 "Hi there, have you figured out the cause of your internal tremors since you posted over..." + (show)
@caseyn2020

Hi there, have you figured out the cause of your internal tremors since you posted over a year ago? I’ve been getting them as well for about 6 months now. Mainly in my chest area, but can sometimes feel the jolts in my back, by my sternum, and the back of my head. These mainly happen when I’m sitting or laying down, not so much when I’m up walking around. I’ve had an EKG, holter monitor, and an echocardiogram in the last 2 weeks, and they see nothing wrong with my heart. So frustrating. Nobody understands 😞

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Hi,
I have this as well. I think it is my thyroid, and have been diagnosed with hashimotos a long time ago, and had a partial thyroidectomy. The vibrations and internal tremors started after I took birth control and then went off it. I think my thyroid overreacted, my tsh went up. But in terms of ways to get rid of them, I have had almost no answers from my endocrinologist or a neurologist I saw. I feel like I may have to have the rest of my thyroid removed to solve the issue. Have you been diagnosed with a thyroid disorder?

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caseyn2020 | @caseyn2020 | Aug 30, 2021

Hi, yes, I was diagnosed with hypothyroidism about 5 years ago, and Hashimotos about 2 months ago

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1 reply
olivesn | @olivesn | Aug 31, 2021
In reply to @caseyn2020 "Hi, yes, I was diagnosed with hypothyroidism about 5 years ago, and Hashimotos about 2 months..." + (show)
@caseyn2020

Hi, yes, I was diagnosed with hypothyroidism about 5 years ago, and Hashimotos about 2 months ago

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Pretty interesting.... Taking any thyroid medication yet? My theory on this is that the thyroid gland is sending out too much hormone, maybe because of nodules or who knows. But I've tried to see if completely suppressing my own thyroid again will help. I'm trying to get my TSH close to zero.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 4, 2021
In reply to @olivesn "Pretty interesting.... Taking any thyroid medication yet? My theory on this is that the thyroid gland..." + (show)
@olivesn

Pretty interesting.... Taking any thyroid medication yet? My theory on this is that the thyroid gland is sending out too much hormone, maybe because of nodules or who knows. But I've tried to see if completely suppressing my own thyroid again will help. I'm trying to get my TSH close to zero.

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Hi Olive, are you working with your doctor suppressing your thyroid?

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1 reply
olivesn | @olivesn | Sep 4, 2021
In reply to @colleenyoung "Hi Olive, are you working with your doctor suppressing your thyroid?" + (show)
@colleenyoung

Hi Olive, are you working with your doctor suppressing your thyroid?

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Oh yes. And that's what it was before for 14 years or so, before I took bc pills.

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jewles63 | @jewles63 | Oct 24, 2021

Good morning, well after waiting 2 months for skin biopsy results it came back
“ normal “ this don’t feel normal and idiopathic neuropathy means to me they have no clue, just saying… So going on 4 yrs later I told my local neurologist that I’m guessing I’m just going to have to live with this 😮‍💨

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1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Oct 24, 2021
In reply to @jewles63 "Good morning, well after waiting 2 months for skin biopsy results it came back “ normal..." + (show)
@jewles63

Good morning, well after waiting 2 months for skin biopsy results it came back
“ normal “ this don’t feel normal and idiopathic neuropathy means to me they have no clue, just saying… So going on 4 yrs later I told my local neurologist that I’m guessing I’m just going to have to live with this 😮‍💨

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Hi @jewles63, I just have the numbness with my idiopathic small fiber PN and it can be a little depressing not knowing the cause behind the neuropathy. I was diagnosed through physical exam along with nerve conduction tests which weren't normal. They guessed mine may be hereditary and I can go along with that since I have a younger sister that has similar symptoms and another younger sister who passed away that had neuropathy due to diabetes. I also have some cousins with neuropathy. I do think cellular nutrition plays a part after reading Dr Terry Wahls story about her struggle with MS - https://terrywahls.com/about/about-terry-wahls/

The diagnosis may not be the answer we want but it can provide some incentive for us to learn as much as we can about our condition so that we can make better choices and ask better questions of our doctors. Hopefully along the way of our path of learning more about our condition we can run across something that helps us.

What amazes me is the how many health conditions can look similar and make diagnosis more important and difficult at the same time. Here's some information from 2015 on the topic.

Syndromes Mimic Nerve Entrapment of Peripheral Neuropathy: https://www.spineuniverse.com/professional/news/aans/syndromes-mimic-nerve-entrapment-peripheral-neuropathy

Are you still having the chest pains and vibrations? Just wondering if you found anything that gives you some relief.

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1 reply
jewles63 | @jewles63 | Oct 25, 2021
In reply to @johnbishop "Hi @jewles63, I just have the numbness with my idiopathic small fiber PN and it can..." + (show)
@johnbishop

Hi @jewles63, I just have the numbness with my idiopathic small fiber PN and it can be a little depressing not knowing the cause behind the neuropathy. I was diagnosed through physical exam along with nerve conduction tests which weren't normal. They guessed mine may be hereditary and I can go along with that since I have a younger sister that has similar symptoms and another younger sister who passed away that had neuropathy due to diabetes. I also have some cousins with neuropathy. I do think cellular nutrition plays a part after reading Dr Terry Wahls story about her struggle with MS - https://terrywahls.com/about/about-terry-wahls/

The diagnosis may not be the answer we want but it can provide some incentive for us to learn as much as we can about our condition so that we can make better choices and ask better questions of our doctors. Hopefully along the way of our path of learning more about our condition we can run across something that helps us.

What amazes me is the how many health conditions can look similar and make diagnosis more important and difficult at the same time. Here's some information from 2015 on the topic.

Syndromes Mimic Nerve Entrapment of Peripheral Neuropathy: https://www.spineuniverse.com/professional/news/aans/syndromes-mimic-nerve-entrapment-peripheral-neuropathy

Are you still having the chest pains and vibrations? Just wondering if you found anything that gives you some relief.

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Thank so much for your encouragement. The vibration is still with me along with random chest pain. The meds for the chest pain consists metoprolol, isorbide,dilazam,and nitro and they do give a lot of relief.

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khali | @khali | Oct 30, 2021

I have the same internal shakiness but my BP don't get high usually it is low. Feel it in my head and affects my cardiovascular system. Going to do an Saliva Adrenal rest to see if it's related to cortisol or not. Horrible 😣

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