1. < Diabetes & Endocrine System

Thyroid? Or something else? Constant internal shakiness

Posted by amtxo1989 @amtxo1989, Feb 26, 2018

Going on 2months now everyday non stop. Sometimes mild and im able to ignore it but over the hours of day it becomes more severe and causing my heart rate to go up and my blood pressure to go very high (170/99) its episodic. Ive been to hospital for it 3 times for it and received no treatment as my vitals slowly return to normal. Xanex helps me feel calm but does not help the shakiness just helps me not get upset about it. Am only 28 years old and hypothyroid. I have never had symptoms like this in my entire life just started out of nowhere. Iam in good sTate of mind and aware of what's happening when the episodes happen. So far my doctors are clueless.

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

Langold | @rarelybees2889 | Feb 23, 2023
In reply to @khali "Disagree, do not take your thyroid out or do Iodine treatment either. The thyroid does around..." + (show)
@khali

Disagree, do not take your thyroid out or do Iodine treatment either. The thyroid does around 200 or more functions in your body

Jump to this post

I agree that removal of the thyriod is not a good solution. I have had Hashi for years and also other autoimmune disease.
If you don't supplement it, you are in trouble, especially if your thyriod is under attack...I wish there were better treatments, but there aren't, at least now now. Mine is probably dead and gone by now lol, but taking it out is worse.
Although there is a weak link via the research I've read, I still wonder if having Hashi "opens the door" to other autoimmune disease?

REPLY
1 reply
annewoodmayo | @annewoodmayo | Feb 23, 2023
In reply to @mothermary1 "Hi, I would never have surgery unless cancer. I have close relatives who had thyroid cancer...." + (show)
@mothermary1

Hi, I would never have surgery unless cancer. I have close relatives who had thyroid cancer. My mom and her two brothers as well. I have had that lab also and negative. I think it might be an iodine deficiency which I believe can be ruled out by an easy urine test. I understand it’s rare in this country but with gastroparesis my diet is very very poor. I keep asking to run it but doctors don’t agree. I’m looking through a local lab called Quest and I’ll pay to get it done. I’ve had positive ANA since 2017 too, but all the other tests normal. I have skin rashes all the time and mouth sores very frequently as well. Autoimmune is so hard to diagnose and I don’t want a diagnosis unless it’s proven a true positive. I’ll keep doing my research and take suggestions from here. Sometimes folks have wonderful ideas or tests that helped them.
Thanks…Joanne

Jump to this post

Hi Joanne,

You may want to reconsider your idea on the autoimmune diagnosis. Some autoimmune diseases can progress a LOT more and a lot faster without treatment.

My eye doctor-- who was seeing me every 3-6 months to check my field of vision while I was on plaquenil-- suggested to me that, since many of the treatments overlap, I continue treatments without an absolutely verified diagnosis.

This was hard for me to accept, but I did continue, and I'm really glad that I did.

The scientific research into autoimmune diseases and treatments is relatively new and changing rapidly. There are still many unknowns that hinder making an absolutely verified diagnosis. The science just ain't here yet, and we patients may just have to take the doctor's best guess.

I am not a medical professional. I was diagnosed with autoimmune diseases (one doc said Lupus, the next one said spondyloarthropathy) in 2012 with elevated ANA, fatigue, body pains.

When my treatment (biologic via infusion) was interrupted and sporadic for about 18 months, I went from mostly functional, working full-time to disability. Based on my experience, I would recommend treatment rather than waiting.

Good luck to you! Best wishes

REPLY
khali | @khali | Feb 23, 2023
In reply to @rarelybees2889 "I agree that removal of the thyriod is not a good solution. I have had Hashi..." + (show)
@rarelybees2889

I agree that removal of the thyriod is not a good solution. I have had Hashi for years and also other autoimmune disease.
If you don't supplement it, you are in trouble, especially if your thyriod is under attack...I wish there were better treatments, but there aren't, at least now now. Mine is probably dead and gone by now lol, but taking it out is worse.
Although there is a weak link via the research I've read, I still wonder if having Hashi "opens the door" to other autoimmune disease?

Jump to this post

Hi, in response at your comment that if i don't supplement one is in trouble, i don't supplement because all my levels are fine and my Dr don't see that i should do, if will make my hyper. Not everybody needs to take medicine for it dependes on their thyroid if it is dying or something else.

REPLY
olivesn | @olivesn | Feb 23, 2023
In reply to @mothermary1 "Hi, thanks for input but I have no TPO antibodies in my blood so no Hashimoto’s...." + (show)
@mothermary1

Hi, thanks for input but I have no TPO antibodies in my blood so no Hashimoto’s. I’ve had all thyroid labs you can think of associated with the thyroid and only tsh level goes up high for months and then normal. It changes like the seasons. I think the weather change plays a role. Recently had ultra sound and an 0.8x0.5x0.7 cm hypoechoic nodule. It’s located near strap muscle right thyroid. Doc just said repeat in 3 months.
Thank…Joanne

Jump to this post

You can have hashimoto's without having significant TPO antibodies in a blood test. I have never shown the antibodies, and I wasn't diagnosed with hashimoto's
until I had surgery to remove out of my thyroid. They look at the nodules and your symptoms and basically diagnose it from there.

REPLY
somde | @somde | Feb 23, 2023

The shakiness may be caused by low blood sugars but I am not sure. I also have hypothyroid condition and I have the same shakiness. When I eat a small snack it goes away. I may have low blood sugars at times. I am going to get tested. Just a thought. Debby

REPLY
plk | @plk | Mar 20, 2023

Could it be internal vibrations, a symptoms of autonomic dysfunction?

REPLY
jgriesbaum77 | @jgriesbaum77 | Oct 30, 2023

Hi, I'm 45 years old. I have Hoshimotos(with nodules) and Pernicious Anemia with Intrinsic Factor(B12 deficiency). I also have internal shakiness as well as vertigo. I highly suggest getting your B12, Vit D and iron tested. Also have your Thyroid tested thoroughly. Not just your TSH level but your antibodies, T4, T3, ect. Check out The Thyroid Pharmacist Dr Izabella Wentz . She has all the information you need about Thyroid and other related Auto Immune Disorders. I saw in this thread something about Calcium, so could also be calcium deficiencies. Something I'm gonna look into myself. As I have these internal shakiness tremors as well.

REPLY
jgriesbaum77 | @jgriesbaum77 | Oct 30, 2023
In reply to @joyg "Hi amtxo, I have experienced the internal tremors as well. It is in the back of..." + (show)
@joyg

Hi amtxo, I have experienced the internal tremors as well. It is in the back of my head, spine and hips. I have hashimotoe's (autoimmune thyroid disease) but not hypothyroid as of yet that I know of. I also experience neuropathy and weird imbalance issues like I am walking on sand or bouncing up and down really fast even though I am walking on normal ground and not bouncing! It's worse after using elevators and wearing heeled shoes. I have no diagnosis yet but I wanted to let you know that internal tremors I looked up may be harmless. I to do not know what causes it but I will keep you updated as I am undergoing test and treatments.

Jump to this post

That's vertigo. I have it as well. I suffer with Hoshimotos and Pernicious Anemia with Intrinsic Factor. It is a Vitamin B12 deficiency. I have to take B12 injections weekly or I start having memory issues and more vertigo and internal shakiness.

REPLY
jgriesbaum77 | @jgriesbaum77 | Oct 30, 2023
In reply to @tanap1 "@blulilbaby, Oh wow!! I can relate to those symptoms and more!! I have also been diagnosed..." + (show)
@tanap1

@blulilbaby, Oh wow!! I can relate to those symptoms and more!! I have also been diagnosed with Hashimoto's. I do have hypothroiditis. My thyroid hormones check out well with my medications, however, my TPO antibodies and TG antibodies remain crazy high! I have had numerous falls (2 broken bones) due to imbalance issues, temors in my hands and head-neck. The tremors seem to be more obvious to others the more physically tired I am. I have memory issues, possible witnessed absence seizures, loss of words, horrble spasms in my feet....ugh!! I could go on and on! I have been doing test after test for more than 5 years now! These symptoms come and go! I can tell you a bunch of things i DONT have! It IS frustrating!! I just wish i could find even i trigger to feel like i have some control over this

Jump to this post

Tell.your Dr to have a ln ultrasound done of your Thyroid. If you have High antibodies you probably have nodules. When those tests are high an ultrasound should have already been ordered. If you have nodules and non cancerous you can have what's called Raduo Frequency Ablasion to get rid of nodules.

REPLY
View MoreView Less
Please sign in or register to post a reply.